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This man is biking across Canada to raise $1M and break barriers for those with multiple sclerosis

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When Jonathan Allenger begins his epic cycling journey across Canada this weekend, it won’t just be to raise a million dollars to fight multiple sclerosis.

The 39-year-old wants to show Canadians living with MS that they can still dream big.

“I hope that it shows people there’s no shame in talking about what they’re experiencing. I hope it breaks down that barrier,” said Allenger, who was diagnosed with the condition following an onset of symptoms in 2013.

Allenger’s ride begins during MS Awareness month, and he hopes the money raised will contribute to curing the condition that affects nearly 100,000 Canadians.

Multiple sclerosis is a disease in which the body’s immune system attacks myelin, an insulating layer around nerves. The resulting damage prevents the nervous system from properly transmitting signals.

For Allenger, the range of physical and mental symptoms include fatigue, brain fog and periodic difficulty with executive function, which allows people to plan, organize or problem-solve.

“The uncertainty can be debilitating,” said Allenger, adding that it can also cause extreme anxiety and panic attacks.

Progressive forms of the disease can result in paralysis and inability to independently function.

12 people diagnosed each day, says MS Canada

Becky Mitts, vice-president of community for MS Canada, says 12 people a day are diagnosed with the condition in Canada. Women are three times more likely in Canada to have MS than men, she says.

According to Mitts, there are now 19 “disease-modifying therapies” for MS, but no cure. And its causes are still unknown. Nevertheless, MS Canada has funded $200 million in research over its 75-year history with nearly all its current backing coming from private donations or fundraising like Allenger’s.

“Our vision at MS Canada is a world free of MS,” she said.

Becky Mitts, vice-president of community for MS Canada, says Canada has one of the highest rates of multiple sclerosis in the world. (Submitted by Becky Mitts)

Allenger is now hoping to add to that total with a dream he’s had for almost a decade.

He says the idea of cycling across Canada came into focus when he suffered a “mental health crisis” after learning from his neurologist in January that his MS had progressed.

Allenger says he’s long found comfort in cycling, which he took up in 2014 after his friends joined an MS Bike event to show solidarity following his diagnosis.

“Getting out there, being active makes me feel good. It helps me counter some of these effects of having this disease.”

No cure yet, but major recent discoveries made

Mitts tells CBC News that research from Harvard University shows nearly everybody living with MS had the Epstein–Barr Virus (which causes mono) before diagnosis.

“We’ve just discovered this interesting puzzle piece.”

Researchers in Canada such as Dr. Maryam Faiz, a University of Toronto-based neuroscientist and researcher with Medicine by Design, a community of regenerative medicine researchers, are working hard on new technologies that could help treat MS.

Dr. Maryam, a University of Toronto-based neuroscientist, is working on a technology that would reprogram cells driving the progression of MS by turning them into cells that are lost in the disease and needed for proper function.
Dr. Maryam Faiz, a University of Toronto-based neuroscientist, is working on a technology that would reprogram cells driving the progression of MS by turning them into cells that are lost in the disease and needed for proper function. (Laura Pedersen/CBC)

Faiz invited CBC Toronto to her lab, where a team works on a cutting-edge gene therapy involving reprogramming the cells that drive the progression of MS into cells that are lost in the disease and needed for proper function.

“We can deliver codes or instructions to cells to tell them to become another type of cell,” said Faiz.

She says this includes the type of cell that produces myelin, adding that replacing those cells could potentially improve some of those symptoms.

“I think that would lead to an improvement in the quality of life for MS patients,” said Faiz.

The research, which is partly funded through Medicine by Design, is still in early development, but Faiz says it could potentially have wide-ranging applicability for other diseases.

She also hopes it will eventually go to clinical trials.

‘We need to invest in this now’

Mitts says the kind of work Faiz and her team are doing could have “massive” benefits. But, she says, more money is needed.

Mitts says she was in Ottawa the same day she spoke to CBC News, asking members of Parliament for $15 million in research funding.

“The time is now. We know we need to invest in this now. We have the information, we have the data,” she said .

Meanwhile, she’s proud of Allenger and grateful for the work he’s doing for MS Canada.

“He is so remarkable,” said Mitts.

A team of people will help Allenger along the way, including his step-dad and cousin.

He’s also hoping people will engage with him in person or through social media and contribute to the campaign as he makes his way from coast to coast.

“Journey with Jonathan is about having other people join us and participate because we’re trying to do this together as a community.”

 

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Canada to donate up to 200,000 vaccine doses to combat mpox outbreaks in Africa

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The Canadian government says it will donate up to 200,000 vaccine doses to fight the mpox outbreak in Congo and other African countries.

It says the donated doses of Imvamune will come from Canada’s existing supply and will not affect the country’s preparedness for mpox cases in this country.

Minister of Health Mark Holland says the donation “will help to protect those in the most affected regions of Africa and will help prevent further spread of the virus.”

Dr. Madhukar Pai, Canada research chair in epidemiology and global health, says although the donation is welcome, it is a very small portion of the estimated 10 million vaccine doses needed to control the outbreak.

Vaccine donations from wealthier countries have only recently started arriving in Africa, almost a month after the World Health Organization declared the mpox outbreak a public health emergency of international concern.

A few days after the declaration in August, Global Affairs Canada announced a contribution of $1 million for mpox surveillance, diagnostic tools, research and community awareness in Africa.

On Thursday, the Africa Centres for Disease Control and Prevention said mpox is still on the rise and that testing rates are “insufficient” across the continent.

Jason Kindrachuk, Canada research chair in emerging viruses at the University of Manitoba, said donating vaccines, in addition to supporting surveillance and diagnostic tests, is “massively important.”

But Kindrachuk, who has worked on the ground in Congo during the epidemic, also said that the international response to the mpox outbreak is “better late than never (but) better never late.”

“It would have been fantastic for us globally to not be in this position by having provided doses a much, much longer time prior than when we are,” he said, noting that the outbreak of clade I mpox in Congo started in early 2023.

Clade II mpox, endemic in regions of West Africa, came to the world’s attention even earlier — in 2022 — as that strain of virus spread to other countries, including Canada.

Two doses are recommended for mpox vaccination, so the donation may only benefit 100,000 people, Pai said.

Pai questioned whether Canada is contributing enough, as the federal government hasn’t said what percentage of its mpox vaccine stockpile it is donating.

“Small donations are simply not going to help end this crisis. We need to show greater solidarity and support,” he said in an email.

“That is the biggest lesson from the COVID-19 pandemic — our collective safety is tied with that of other nations.”

This report by The Canadian Press was first published Sept. 13, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

The Canadian Press. All rights reserved.

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How many Nova Scotians are on the doctor wait-list? Number hit 160,000 in June

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HALIFAX – The Nova Scotia government says it could be months before it reveals how many people are on the wait-list for a family doctor.

The head of the province’s health authority told reporters Wednesday that the government won’t release updated data until the 160,000 people who were on the wait-list in June are contacted to verify whether they still need primary care.

Karen Oldfield said Nova Scotia Health is working on validating the primary care wait-list data before posting new numbers, and that work may take a matter of months. The most recent public wait-list figures are from June 1, when 160,234 people, or about 16 per cent of the population, were on it.

“It’s going to take time to make 160,000 calls,” Oldfield said. “We are not talking weeks, we are talking months.”

The interim CEO and president of Nova Scotia Health said people on the list are being asked where they live, whether they still need a family doctor, and to give an update on their health.

A spokesperson with the province’s Health Department says the government and its health authority are “working hard” to turn the wait-list registry into a useful tool, adding that the data will be shared once it is validated.

Nova Scotia’s NDP are calling on Premier Tim Houston to immediately release statistics on how many people are looking for a family doctor. On Tuesday, the NDP introduced a bill that would require the health minister to make the number public every month.

“It is unacceptable for the list to be more than three months out of date,” NDP Leader Claudia Chender said Tuesday.

Chender said releasing this data regularly is vital so Nova Scotians can track the government’s progress on its main 2021 campaign promise: fixing health care.

The number of people in need of a family doctor has more than doubled between the 2021 summer election campaign and June 2024. Since September 2021 about 300 doctors have been added to the provincial health system, the Health Department said.

“We’ll know if Tim Houston is keeping his 2021 election promise to fix health care when Nova Scotians are attached to primary care,” Chender said.

This report by The Canadian Press was first published Sept. 11, 2024.

The Canadian Press. All rights reserved.

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Newfoundland and Labrador monitoring rise in whooping cough cases: medical officer

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ST. JOHN’S, N.L. – Newfoundland and Labrador‘s chief medical officer is monitoring the rise of whooping cough infections across the province as cases of the highly contagious disease continue to grow across Canada.

Dr. Janice Fitzgerald says that so far this year, the province has recorded 230 confirmed cases of the vaccine-preventable respiratory tract infection, also known as pertussis.

Late last month, Quebec reported more than 11,000 cases during the same time period, while Ontario counted 470 cases, well above the five-year average of 98. In Quebec, the majority of patients are between the ages of 10 and 14.

Meanwhile, New Brunswick has declared a whooping cough outbreak across the province. A total of 141 cases were reported by last month, exceeding the five-year average of 34.

The disease can lead to severe complications among vulnerable populations including infants, who are at the highest risk of suffering from complications like pneumonia and seizures. Symptoms may start with a runny nose, mild fever and cough, then progress to severe coughing accompanied by a distinctive “whooping” sound during inhalation.

“The public, especially pregnant people and those in close contact with infants, are encouraged to be aware of symptoms related to pertussis and to ensure vaccinations are up to date,” Newfoundland and Labrador’s Health Department said in a statement.

Whooping cough can be treated with antibiotics, but vaccination is the most effective way to control the spread of the disease. As a result, the province has expanded immunization efforts this school year. While booster doses are already offered in Grade 9, the vaccine is now being offered to Grade 8 students as well.

Public health officials say whooping cough is a cyclical disease that increases every two to five or six years.

Meanwhile, New Brunswick’s acting chief medical officer of health expects the current case count to get worse before tapering off.

A rise in whooping cough cases has also been reported in the United States and elsewhere. The Pan American Health Organization issued an alert in July encouraging countries to ramp up their surveillance and vaccination coverage.

This report by The Canadian Press was first published Sept. 10, 2024.

The Canadian Press. All rights reserved.

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