A tick bite, the Powassan virus, and MaryAnn's struggle | Canada News Media
Connect with us

Science

A tick bite, the Powassan virus, and MaryAnn’s struggle

Published

 on

More than a year and a half after a tick bite, MaryAnn Harris still breathes with a ventilator and remains nearly paralyzed.

It was Labour Day 2021 when MaryAnn Harris told her husband she was feeling tired and needed to go upstairs to lie down.

A few hours later she was feeling nauseous. She complained of double vision. Her husband, Charles de Lint, immediately called Telehealth Ontario, when the nurse told them to go straight to the emergency department.

Overnight she got encephalitis, a swelling of her brain. By the next morning, MarryAnn was in the ICU on life support, breathing with a ventilator.

“They didn’t know what was wrong,” said Charles, a popular author of fantasy novels, a three-time Aurora Award winner, and a member of Canada’s Science Fiction Writers Hall of Fame. “They assumed it was a virus of some sort. It looked like they had 70 little machines feeding her different kinds of antibiotics.”

Today, more than a year and a half after falling ill, MaryAnn hasn’t been back home. She still breathes with a ventilator and remains nearly paralyzed.

The culprit? A tick bite that transmitted the rare but increasingly common Powassan virus, a potentially deadly pathogen that caused encephalitis.

“We were never aware of the bite. We never even saw the tick,” Charles said. MaryAnn fell ill during the lockdown and the couple hadn’t travelled anywhere.

They figure she picked up the tick bite either in the yard of their Alta Vista area home or during one of their frequent walks around the community gardens in Pleasant Park. And it’s hardly the only question that can never be answered.

“If she was going to get sick,” Charles asks, “why did it have to be something so rare?”

Powassan virus was first identified in 1958 when it infected and killed a young boy in Powassan, Ont., on the outskirts of North Bay, 200 km northwest of Ottawa. Until 1998, there had been only 27 cases in all of North America. Since then, the numbers have been rising: 5-10 cases a year in the U.S. from 2010 to 2015; and 25-30 a year since. Since 2017, there have been 21 cases in Canada. Most infections occur in the northeastern U.S., Eastern Canada and the Great Lakes region.

In 2019, North Carolina Senator Kay Hagan died of Powassan virus several years after being bitten by a tick.

The virus is usually transmitted by Ixodes scapularis, commonly known as the deer or black-legged tick, the same vector for Lyme disease. While it takes 24 to 48 hours for a tick to transfer the bacteria that causes Lyme disease to its human host, a person can be infected with Powassan virus in as little as 15 minutes after the tick attaches.

Powassan symptoms appear between one and five weeks later. In most cases, the person doesn’t even know they’re infected, passing it off as a mild flu. But for an unfortunate few, the sickness can be severe. About half develop encephalitis or meningitis, leading to lifelong neurological disorders.

“There’s been a slow and steady increase in the number of cases reported,” said Saravanan Thangamani, director of the Center for Vector-Born Diseases at the State University of New York in Syracuse. “This is a rare virus. However, it is a dangerous virus. It can be fatal and those that survive can have long-term neurological consequences for the rest of their lives.”
MaryAnn Harris, 70, has been in hospital for a year and a half, partially paralyzed by Powassan virus, which she got from a tick bite in Ottawa. PHOTO COURTESY OF HARRIS FAMILY / POSTMEDIA

MaryAnn’s symptoms were classic Powassan: fever, headaches, vomiting, weakness, tremors, seizures and paralysis.

The disease is fatal in 10-15 per cent of cases. There is no cure, nor is there an established treatment beyond normal recuperative therapy.

Still, Charles doesn’t dwell on the disease or how MaryAnn caught it. He’s focused on the road ahead.

“Ok. She got bit by a tick. She has Powassan. She got encephalitis,” he said. “For me, I’m more interested in what’s happening now, not what happened before.”

MaryAnn’s recovery now depends on physiotherapy, but that’s been hampered by fluids that build up and constantly have to be suctioned out of her throat. Even before she got Powassan virus, she had immune problems and suffered from a build-up of fluids.

“It’s constantly in her throat and esophagus. She’s stuck on a ventilator and she’s constantly in need of being suctioned,” Charles said. “It’s an exhausting process so we’re not making a whole lot of headway with other stuff. We do exercises every day and she’s really good about it. Even when she’s exhausted she’ll still do it. But it’s just not going very fast because of these secretions.”

The couple — Charles is 71 and MaryAnn is 70 — have been together for 47 years and married for 42. With their guitar and banjo, they are well-known in Ottawa’s folk and bluegrass music scene.
MaryAnn Harris, with her husband Charles de Lint, is unable to move herself after a tick bite transmitted the rare but increasingly common Powassan virus. PHOTO COURTESY OF HARRIS FAMILY / POSTMEDIA

Charles’s novels, many of them set in the fantasy city of Newford, have a worldwide following. MaryAnn is his business manager, editor and illustrator. Her illness has left Charles with little time to write since he now spends five hours a day at Saint-Vincent Hospital, six days a week. He pays for a caregiver on the seventh.

Friends, family and fans have rallied around the couple. Musicians have visited the hospital to play for MaryAnn. A GoFundMe started to help pay for the many expenses they now face has topped $90,000. Fans have also subscribed to Charles’s Patreon account to help support his writing.

One fan, Julie Bartel, manages the GoFundMe and posts regular updates on MaryAnn’s progress on social media. Bartel, 52, grew up in tiny Orem, Utah, and as a teenager immersed herself in Charles’s fantasy novels.

“There was nothing in Orem but apple orchards and Mormons. You couldn’t even buy a coffee,” she said.

“I read Charles’s books all the way through high school. It’s not an exaggeration to say that they were a lifeline for me. That theme of estrangement — of being an outsider.”

Bartel met Charles and MaryAnn at a literary conference in Salt Lake City two decades ago and the fan turned into a friend. She’s visited them in Ottawa and together they’ve taken road trips across the U.S., guitars and banjos strapped to the roof, Charles dutifully writing on desert mornings.

“We immediately bonded over our mutual love of Buffy the Vampire Slayer,” Bartel jokes.

With MaryAnn in hospital, Bartel has pitched in to help proofread some of Charles’s writing. She’s collecting “sweet thoughts” that fans email for Charles to share with MaryAnn.

“It’s hard being friends and being so far away. I’m so grateful that I can give back in some way,” said Bartel. “At least she’s able to talk now.”

She describes MaryAnn as “a rock star” who faithfully does her exercises every day, determined to get better even if her progress has been glacially slow. She marvels at Charles’s dedication and devotion to MaryAnn’s care.

“They really are the most wonderful people. It’s an amazing love story.”

Meanwhile, MaryAnn bides her time in hospital. Charles manages her care, carefully protecting her from stresses that might trigger anxiety. Unable to move herself, she uses Siri to do what she can on her iPhone.

“She’s very stoic about it, but it’s really hard,” Charles said. “There’s just not a whole lot she can do. She can listen to audiobooks and podcasts, but that’s about all. Her vision is not doubled anymore, but it’s still not great so she can’t read. She has no real movement in her limbs, so she can’t operate her phone or her iPad.

“As helpful as those items are, they aren’t as handy as one might think. MaryAnn can use Siri on her phone to listen to music or start an audiobook, for example, but she can’t necessarily make it stop: Siri can’t hear her when the music is playing.”

Through a friend, the couple was put in touch with another woman who contracted Powassan virus four years before MaryAnn and has mostly recovered. It’s a glimmer of hope.

“She’s not fully recovered, but she walks around and she’s able to garden. She’s an artist — like MaryAnn — so she can paint again. She can play her piano again, at least to some degree,” Charles said.

“Ultimately, our hopes are for a full recovery — to get her moving and get her back home. With Powassan, there’s so little known about it, it’s hard to know what’s going to happen.”

Source link

Continue Reading

Science

The body of a Ugandan Olympic athlete who was set on fire by her partner is received by family

Published

 on

 

NAIROBI, Kenya (AP) — The body of Ugandan Olympic athlete Rebecca Cheptegei — who died after being set on fire by her partner in Kenya — was received Friday by family and anti-femicide crusaders, ahead of her burial a day later.

Cheptegei’s family met with dozens of activists Friday who had marched to the Moi Teaching and Referral Hospital’s morgue in the western city of Eldoret while chanting anti-femicide slogans.

She is the fourth female athlete to have been killed by her partner in Kenya in yet another case of gender-based violence in recent years.

Viola Cheptoo, the founder of Tirop Angels – an organization that was formed in honor of athlete Agnes Tirop, who was stabbed to death in 2021, said stakeholders need to ensure this is the last death of an athlete due to gender-based violence.

“We are here to say that enough is enough, we are tired of burying our sisters due to GBV,” she said.

It was a somber mood at the morgue as athletes and family members viewed Cheptegei’s body which sustained 80% of burns after she was doused with gasoline by her partner Dickson Ndiema. Ndiema sustained 30% burns on his body and later succumbed.

Ndiema and Cheptegei were said to have quarreled over a piece of land that the athlete bought in Kenya, according to a report filed by the local chief.

Cheptegei competed in the women’s marathon at the Paris Olympics less than a month before the attack. She finished in 44th place.

Cheptegei’s father, Joseph, said that the body will make a brief stop at their home in the Endebess area before proceeding to Bukwo in eastern Uganda for a night vigil and burial on Saturday.

“We are in the final part of giving my daughter the last respect,” a visibly distraught Joseph said.

He told reporters last week that Ndiema was stalking and threatening Cheptegei and the family had informed police.

Kenya’s high rates of violence against women have prompted marches by ordinary citizens in towns and cities this year.

Four in 10 women or an estimated 41% of dating or married Kenyan women have experienced physical or sexual violence perpetrated by their current or most recent partner, according to the Kenya Demographic and Health Survey 2022.

The Canadian Press. All rights reserved.

Source link

Continue Reading

News

The ancient jar smashed by a 4-year-old is back on display at an Israeli museum after repair

Published

 on

 

TEL AVIV, Israel (AP) — A rare Bronze-Era jar accidentally smashed by a 4-year-old visiting a museum was back on display Wednesday after restoration experts were able to carefully piece the artifact back together.

Last month, a family from northern Israel was visiting the museum when their youngest son tipped over the jar, which smashed into pieces.

Alex Geller, the boy’s father, said his son — the youngest of three — is exceptionally curious, and that the moment he heard the crash, “please let that not be my child” was the first thought that raced through his head.

The jar has been on display at the Hecht Museum in Haifa for 35 years. It was one of the only containers of its size and from that period still complete when it was discovered.

The Bronze Age jar is one of many artifacts exhibited out in the open, part of the Hecht Museum’s vision of letting visitors explore history without glass barriers, said Inbal Rivlin, the director of the museum, which is associated with Haifa University in northern Israel.

It was likely used to hold wine or oil, and dates back to between 2200 and 1500 B.C.

Rivlin and the museum decided to turn the moment, which captured international attention, into a teaching moment, inviting the Geller family back for a special visit and hands-on activity to illustrate the restoration process.

Rivlin added that the incident provided a welcome distraction from the ongoing war in Gaza. “Well, he’s just a kid. So I think that somehow it touches the heart of the people in Israel and around the world,“ said Rivlin.

Roee Shafir, a restoration expert at the museum, said the repairs would be fairly simple, as the pieces were from a single, complete jar. Archaeologists often face the more daunting task of sifting through piles of shards from multiple objects and trying to piece them together.

Experts used 3D technology, hi-resolution videos, and special glue to painstakingly reconstruct the large jar.

Less than two weeks after it broke, the jar went back on display at the museum. The gluing process left small hairline cracks, and a few pieces are missing, but the jar’s impressive size remains.

The only noticeable difference in the exhibit was a new sign reading “please don’t touch.”

The Canadian Press. All rights reserved.

Source link

Continue Reading

News

B.C. sets up a panel on bear deaths, will review conservation officer training

Published

 on

 

VICTORIA – The British Columbia government is partnering with a bear welfare group to reduce the number of bears being euthanized in the province.

Nicholas Scapillati, executive director of Grizzly Bear Foundation, said Monday that it comes after months-long discussions with the province on how to protect bears, with the goal to give the animals a “better and second chance at life in the wild.”

Scapillati said what’s exciting about the project is that the government is open to working with outside experts and the public.

“So, they’ll be working through Indigenous knowledge and scientific understanding, bringing in the latest techniques and training expertise from leading experts,” he said in an interview.

B.C. government data show conservation officers destroyed 603 black bears and 23 grizzly bears in 2023, while 154 black bears were killed by officers in the first six months of this year.

Scapillati said the group will publish a report with recommendations by next spring, while an independent oversight committee will be set up to review all bear encounters with conservation officers to provide advice to the government.

Environment Minister George Heyman said in a statement that they are looking for new ways to ensure conservation officers “have the trust of the communities they serve,” and the panel will make recommendations to enhance officer training and improve policies.

Lesley Fox, with the wildlife protection group The Fur-Bearers, said they’ve been calling for such a committee for decades.

“This move demonstrates the government is listening,” said Fox. “I suspect, because of the impending election, their listening skills are potentially a little sharper than they normally are.”

Fox said the partnership came from “a place of long frustration” as provincial conservation officers kill more than 500 black bears every year on average, and the public is “no longer tolerating this kind of approach.”

“I think that the conservation officer service and the B.C. government are aware they need to change, and certainly the public has been asking for it,” said Fox.

Fox said there’s a lot of optimism about the new partnership, but, as with any government, there will likely be a lot of red tape to get through.

“I think speed is going to be important, whether or not the committee has the ability to make change and make change relatively quickly without having to study an issue to death, ” said Fox.

This report by The Canadian Press was first published Sept. 9, 2024.

The Canadian Press. All rights reserved.

Source link

Continue Reading

Trending

Exit mobile version