Aging Parents With Dementia: Preparing For The Long Goodbye - Forbes | Canada News Media
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Aging Parents With Dementia: Preparing For The Long Goodbye – Forbes

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It seems that we hear of yet another family facing dementia just about every day at AgingParents.com. They want to understand options about how to pay for care, what to do with sibling fights about the elders, and they seek answers many related legal questions. In the midst of this, they are trying to cope with the sadness. They see a parent losing ground and know it’s the long goodbye.

Dementia, in its most common form, Alzheimer’s disease, can move slowly over years, or it can create sudden, unexplained declines. However it manifests, it is progressive. Spouses and adult children must continually adapt to whatever shows up in the aging loved one, and it’s a struggle. An elder with dementia behaves differently from what the family was used to seeing. The family may react to what they see with anger, dismay, fear, and their own depression. Some families have gotten guidance from the elder’s healthcare providers. But what I observe more often is that no one is telling the family how to address the caregiving issues and how to manage their own reactions to dementia and the changes it brings.

It is important to know where to go for guidance if you know or suspect that a loved one or your own aging parent has dementia. The journey is often a long one and seeing your aging parent decline is never easy. It does not matter if anyone has given the elder a formal diagnosis of any particular kind of dementia. It is helpful to know but even if you do not yet have specifics, you can still find the resources to help you manage as best you can.

We recommend as a first resource for any family caregiver the website for the Alzheimer’s Association. You will learn the 10 warning signs that signal the disease, even if no doctor has yet made a diagnosis. There is a Help and Support menu on the site that directs you to groups, places to get your questions answered and information about what you may expect on the path ahead. The Alzheimer’s Association does community presentations, invites speakers and those in the caregiving role and allows for question-and-answer sessions. It is a worldwide research entity as well.

Another excellent resource is the Family Caregiver Alliance. There you can get a wide range of caregiver help, including caregiving tips, information and encouragement about taking care of yourself as a caregiver, connections to community organizations and agencies, and overviews of health conditions. The emphasis is on helping those who are doing the family caregiving job or supervising those who do.

Any place you reach out for support in the journey of the long goodbye can help you. Millions of people share the experience of caregiving, as there are over six million folks diagnosed with Alzheimer’s disease in the U.S. alone. I suspect, based on conversations with families of elders over the last 15 years, that there are many more who simply have not been formally diagnosed but who present all the warning signs. Somehow, the words “Alzheimer’s disease” terrify so much that some individuals do not want to hear them. “Dementia” may feel less threatening as a descriptor, but the effect on the person with the disease is the same no matter how you label it. And the effect on the family can be just as burdensome with or without a formal name.

Some kinds of dementia require different kinds of medications and strategy from other kinds and that is why a proper diagnosis can be helpful. For example, there is Lewy Body Dementia (with a particular kind of deposit in the brain) which needs a specific plan to manage the associated behavior changes. The medications used with this kind are different from those used with Alzheimer’s disease. By medications, I do not refer to anything that slows or stops the disease process. We have no medications that can do that as yet! Rather, medications can help families manage difficult and aggressive behavior, facilitate calmness, and assist with outbursts. They can be hugely important when hard-to-handle behavior changes wreak havoc on the caregivers. Using the right medications can help everyone involved.

The takeaway message is this:

If your loved one demonstrates memory loss that interferes with daily life, that is the first warning sign of dementia. The Alzheimer’s Association website walks you through the other nine warning signs. If these are present, it is important to take it seriously, as we have no cure as yet and the disease will progress no matter what you do. You as a family need to undertake your plans for the long goodbye to your loved one. These include legal, financial, caregiving planning and support for yourself. Treasure the moments of clarity and enjoyment you have with your loved one. He or she will live only in the moment more and more. You have to adapt to getting past other expectations about your aging loved one and about plans for what used to be normal. The dignity of anyone with dementia can be maintained with careful planning. That dignity is what any aging parent deserves. Indeed it is what we all need.

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B.C. mayors seek ‘immediate action’ from federal government on mental health crisis

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VANCOUVER – Mayors and other leaders from several British Columbia communities say the provincial and federal governments need to take “immediate action” to tackle mental health and public safety issues that have reached crisis levels.

Vancouver Mayor Ken Sim says it’s become “abundantly clear” that mental health and addiction issues and public safety have caused crises that are “gripping” Vancouver, and he and other politicians, First Nations leaders and law enforcement officials are pleading for federal and provincial help.

In a letter to Prime Minister Justin Trudeau and Premier David Eby, mayors say there are “three critical fronts” that require action including “mandatory care” for people with severe mental health and addiction issues.

The letter says senior governments also need to bring in “meaningful bail reform” for repeat offenders, and the federal government must improve policing at Metro Vancouver ports to stop illicit drugs from coming in and stolen vehicles from being exported.

Sim says the “current system” has failed British Columbians, and the number of people dealing with severe mental health and addiction issues due to lack of proper care has “reached a critical point.”

Vancouver Police Chief Adam Palmer says repeat violent offenders are too often released on bail due to a “revolving door of justice,” and a new approach is needed to deal with mentally ill people who “pose a serious and immediate danger to themselves and others.”

This report by The Canadian Press was first published Sept. 16, 2024

The Canadian Press. All rights reserved.

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Canada to donate up to 200,000 vaccine doses to combat mpox outbreaks in Africa

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The Canadian government says it will donate up to 200,000 vaccine doses to fight the mpox outbreak in Congo and other African countries.

It says the donated doses of Imvamune will come from Canada’s existing supply and will not affect the country’s preparedness for mpox cases in this country.

Minister of Health Mark Holland says the donation “will help to protect those in the most affected regions of Africa and will help prevent further spread of the virus.”

Dr. Madhukar Pai, Canada research chair in epidemiology and global health, says although the donation is welcome, it is a very small portion of the estimated 10 million vaccine doses needed to control the outbreak.

Vaccine donations from wealthier countries have only recently started arriving in Africa, almost a month after the World Health Organization declared the mpox outbreak a public health emergency of international concern.

A few days after the declaration in August, Global Affairs Canada announced a contribution of $1 million for mpox surveillance, diagnostic tools, research and community awareness in Africa.

On Thursday, the Africa Centres for Disease Control and Prevention said mpox is still on the rise and that testing rates are “insufficient” across the continent.

Jason Kindrachuk, Canada research chair in emerging viruses at the University of Manitoba, said donating vaccines, in addition to supporting surveillance and diagnostic tests, is “massively important.”

But Kindrachuk, who has worked on the ground in Congo during the epidemic, also said that the international response to the mpox outbreak is “better late than never (but) better never late.”

“It would have been fantastic for us globally to not be in this position by having provided doses a much, much longer time prior than when we are,” he said, noting that the outbreak of clade I mpox in Congo started in early 2023.

Clade II mpox, endemic in regions of West Africa, came to the world’s attention even earlier — in 2022 — as that strain of virus spread to other countries, including Canada.

Two doses are recommended for mpox vaccination, so the donation may only benefit 100,000 people, Pai said.

Pai questioned whether Canada is contributing enough, as the federal government hasn’t said what percentage of its mpox vaccine stockpile it is donating.

“Small donations are simply not going to help end this crisis. We need to show greater solidarity and support,” he said in an email.

“That is the biggest lesson from the COVID-19 pandemic — our collective safety is tied with that of other nations.”

This report by The Canadian Press was first published Sept. 13, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

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How many Nova Scotians are on the doctor wait-list? Number hit 160,000 in June

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HALIFAX – The Nova Scotia government says it could be months before it reveals how many people are on the wait-list for a family doctor.

The head of the province’s health authority told reporters Wednesday that the government won’t release updated data until the 160,000 people who were on the wait-list in June are contacted to verify whether they still need primary care.

Karen Oldfield said Nova Scotia Health is working on validating the primary care wait-list data before posting new numbers, and that work may take a matter of months. The most recent public wait-list figures are from June 1, when 160,234 people, or about 16 per cent of the population, were on it.

“It’s going to take time to make 160,000 calls,” Oldfield said. “We are not talking weeks, we are talking months.”

The interim CEO and president of Nova Scotia Health said people on the list are being asked where they live, whether they still need a family doctor, and to give an update on their health.

A spokesperson with the province’s Health Department says the government and its health authority are “working hard” to turn the wait-list registry into a useful tool, adding that the data will be shared once it is validated.

Nova Scotia’s NDP are calling on Premier Tim Houston to immediately release statistics on how many people are looking for a family doctor. On Tuesday, the NDP introduced a bill that would require the health minister to make the number public every month.

“It is unacceptable for the list to be more than three months out of date,” NDP Leader Claudia Chender said Tuesday.

Chender said releasing this data regularly is vital so Nova Scotians can track the government’s progress on its main 2021 campaign promise: fixing health care.

The number of people in need of a family doctor has more than doubled between the 2021 summer election campaign and June 2024. Since September 2021 about 300 doctors have been added to the provincial health system, the Health Department said.

“We’ll know if Tim Houston is keeping his 2021 election promise to fix health care when Nova Scotians are attached to primary care,” Chender said.

This report by The Canadian Press was first published Sept. 11, 2024.

The Canadian Press. All rights reserved.

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