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As cost of living rises, diabetes remains an expensive condition for Atlantic Canadians – Global News

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Emily Gouthro says she’s fortunate to have health insurance. If not, she would struggle to manage her diabetes.

“Even if you do have coverage in Nova Scotia, sometimes it’s only 80 per cent of the pay,” said Gouthro in a recent interview. “And that’s if you have great coverage.”

Gouthro, a registered nurse, was diagnosed with Type 1 diabetes when she was four years old. The cost of her insulin is entirely covered by her insurance plan. But, as she explains, costs go well beyond the insulin itself.

People with Type 1 diabetes often rely on insulin pumps — which can cost thousands of dollars — to administer their medication. Then there’s the cost of reservoirs for insulin, infusion sets, testing strips and other equipment.

“A lot of people don’t realize that there’s so much to this disease,” said Gouthro. “It’s 24 hours a day – you’re thinking about it all the time.”


Emily Gouthro has been living with Type 1 diabetes for most of her life.


Submitted by Emily Gouthro

Goutro said under her insurance plan, she gets $10,000 to cover insulin pumps for her lifetime.

“But if you know anything about insulin pumps, they typically range anywhere from $4,000 to $6,000. That’s just for the pump itself, and the warranty’s only good for four years,” she said.

“They’re saying you only get $10,000 for your lifetime, but the insulin pump you’re only going to have for a couple of years. And then what are you supposed to do?”

As for the rest of her supplies, she has to pay hundreds of dollars out of pocket each month and wait to be reimbursed by her insurance.

“You’re always going to have something on your credit card or waiting to get paid back,” she said.

“Even if you do have coverage, and you’re lucky to have coverage, you’re still out money and you’re still waiting to get that back.”






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Great Nova Scotian Fingerprick Challenge


Great Nova Scotian Fingerprick Challenge – Aug 4, 2021

When she was a child, her family had to fundraise to purchase her first insulin pump. Nova Scotia now has an insulin pump program, but that only covers pumps for people aged 25 and under.

“The coverage here is so behind and so lacking. It’s great that there’s coverage for up to 25, but your disease doesn’t go away after 25,” she said.

“It’s almost discriminatory that after 25, then you’re not getting the help, you’re not going to be able to have your pump covered, you’re not going to get the basic supplies that you need.”

Read more:
Diabetes advocates in N.B., N.S. renew call to remove age discrimination cap

Gouthro said if diabetes isn’t managed properly, that can lead to many more serious problems down the road, putting further strain on the health-care system — something she has seen in her work as a nurse.

“If you’re kind of going along, having the bare-minimum supplies, the bare-minimum treatment, then you get there and you can have kidney failure, you can deal with blindness, you have amputations. It’s all the scary things that you hear about,” she said.

“If our province could help give people the tools to have the best possible chance with their disease, it would be phenomenal. It would give everyone a better chance.”

She said she is hopeful that the Tim Houston government — which has focused much of its mandate on health care — will make changes so people with diabetes can afford their supplies.

‘Prohibitive’ costs

Diabetes Canada agrees that some other jurisdictions are doing it better. According to their website, B.C., Alberta, Ontario, Yukon, Northwest Territories and Nunavut all cover insulin pumps and supplies for eligible people of all ages.

Nova Scotia, New Brunswick, P.E.I. and Saskatchewan cap the insulin pump coverage at age 25, while Manitoba, Quebec and Newfoundland and Labrador cap it at 17.

However, in Manitoba, full coverage is given to those recommended by an endocrinologist, and Newfoundland and Labrador says it will cover people up to 24 who are already in the program and meet the criteria. New applicants over the age of 18 who meet the criteria will be income tested.

Read more:
Manitoba programs to provide diabetes equipment for more young people

Coverage for insulin pumps is inconsistent across the country, Diabetes Canada notes.

“Canadians living in provinces with limited coverage or not meeting eligibility criteria for their provincial plan must pay out-of-pocket for insulin pump therapy, which carries a $6,000 to $7,000 price tag,” the Diabetes Canada website says.

“In addition, the ongoing expense of monthly supplies is a constraint to the use of insulin pumps, costing up to $300 every month. For many people, these charges are prohibitive.”

Read more:
B.C. to eliminate rid of age restrictions covering insulin pump costs

Brooks Roche, the manager of patient knowledge and connection with Diabetes Canada, has lived with Type 1 diabetes for most of his life. He described it as a “relentless” disease that calls for constant self-management.

“Every single input — whether that’s food, sleep, exercise, stress, sickness, weather — everything comes into play,” he said in an interview from Charlottetown, P.E.I.

“Basically, we’re always hunting for some sense of normalcy, and there are no breaks and no days off.”

‘Horrifying decisions’

Roche said people with Type 1 diabetes who use insulin pumps can expect to pay $6,000 per year for their supplies, while those with other types of diabetes pay around $2,000 a year on average.

He said the high price of diabetes is an especially big problem in the four Atlantic provinces, which are the bottom four in the country in terms of median household income.

Read more:
Nova Scotia and New Brunswick minimum wages ‘well below’ a livable wage: report

“These out-of-pocket costs do not know what province or territory they’re in, so they eat up a much more significant chunk of people’s income in Atlantic Canada,” he said.

“It really does add up when folks have to make those horrifying decisions we hear about, where it’s: ‘Do I pay for all the groceries I need, or that my family needs this month? Or do I get this technology or treatment that I need to stay in a good quality of life?’

“Those are not choices that we want people to be making in a country with purportedly universal health care.”


Brooks Roche says the high price of diabetes supplies is forcing people to make difficult decisions.


Global News

He said the logic behind putting age caps on insulin pump coverage “falls apart really quickly,” as people of any age can be diagnosed with diabetes.

While Roche is encouraged by the federal government’s commitment in the last budget to fund a national diabetes framework, he said more work must be done on a provincial level to ensure people with diabetes have access to the equipment they need.

Noting that Sunday marks World Diabetes Day — and this year marks a significant anniversary of the discovery of insulin — Roche said now is the time for provinces to step up.

“It’s very important to take that momentum and roll it into provincial decisions that are being made,” he said. “This is the opportune time, because 2021 is the 100-year anniversary of the discovery of insulin … and we ought to celebrate that.”






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Kelowna father, son living with diabetes, 100 years after discovery of insulin


Kelowna father, son living with diabetes, 100 years after discovery of insulin – Nov 4, 2021

In a statement, Marla MacInnis, spokesperson for the Nova Scotia Department of Health, said in an email that eligibility for the provincial insulin pump program is “based on meeting medical criteria and a determination of financial support based on family income and size.”

“The age associated with this program was based on an evaluation of the needs of Nova Scotians together with a jurisdictional scan at the time the program was implemented,” she wrote. “The Department regularly reviews its programs to ensure they are meeting the needs of Nova Scotians and welcomes feedback on the Insulin Pump Program.”

Meanwhile, New Brunswick Health Minister Dorothy Shephard told Global News last week that insulin pump coverage is an important discussion to have, but one that’s been delayed due to COVID-19.

“It’s always been my intention that we have this type of conversation … but it’s just the department has had so many fires to deal with that this conversation has been delayed,” she said.

The cost of not managing diabetes

Dr. Tom Ransom, a Nova Scotia endocrinologist with Capital Health, said there have been many advancements in the last century when it comes to managing diabetes and administering insulin, and there is now a “menu” of supplies that help people with diabetes manage their disease.

However, the cost of these supplies remains a barrier — especially for those who are uninsured, or whose insurance is lacking.

“People who are employed and have private drug plans will have these things covered. But unfortunately for the working poor — the people who are maybe self-employed or don’t have the best drug plan, or when they got work had pre-existing diabetes so it wasn’t covered — for these people, they’re in a real bind,” he said.

“Sort of sacrificing ideal care at a cost and putting themselves at risk.”


Dr. Tom Ransom says he wants his patients to have access to the medical supplies they need.


Global News

Ransom said the question is less about the cost of managing diabetes and more about the cost of not managing diabetes.

“If you’re not managing it, you incur the costs later,” he said. “You increase the risk of eye disease, which ultimately can lead to blindness, or kidney disease, which can lead to dialysis. Or neuropathy — people could potentially lose their foot — and heart disease, heart attacks and things like that, that are at a great cost.”

Read more:
With diabetes on the rise, Canadian doctor awarded for advancing treatment

Ransom said he and others have been lobbying the government for “quite some time” to get insulin pumps and other equipment covered, but said things have been delayed due to the COVID-19 pandemic.

However, he remains hopeful that the province will begin covering these important supplies.

“I talk to people all day who have diabetes, and I advocate for them every chance I get,” he said.

“For me, it just makes sense to have these things covered.”

© 2021 Global News, a division of Corus Entertainment Inc.

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Health Canada approves updated Moderna COVID-19 vaccine

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TORONTO – Health Canada has authorized Moderna’s updated COVID-19 vaccine that protects against currently circulating variants of the virus.

The mRNA vaccine, called Spikevax, has been reformulated to target the KP.2 subvariant of Omicron.

It will replace the previous version of the vaccine that was released a year ago, which targeted the XBB.1.5 subvariant of Omicron.

Health Canada recently asked provinces and territories to get rid of their older COVID-19 vaccines to ensure the most current vaccine will be used during this fall’s respiratory virus season.

Health Canada is also reviewing two other updated COVID-19 vaccines but has not yet authorized them.

They are Pfizer’s Comirnaty, which is also an mRNA vaccine, as well as Novavax’s protein-based vaccine.

This report by The Canadian Press was first published Sept. 17, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

The Canadian Press. All rights reserved.

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These people say they got listeria after drinking recalled plant-based milks

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TORONTO – Sanniah Jabeen holds a sonogram of the unborn baby she lost after contracting listeria last December. Beneath, it says “love at first sight.”

Jabeen says she believes she and her baby were poisoned by a listeria outbreak linked to some plant-based milks and wants answers. An investigation continues into the recall declared July 8 of several Silk and Great Value plant-based beverages.

“I don’t even have the words. I’m still processing that,” Jabeen says of her loss. She was 18 weeks pregnant when she went into preterm labour.

The first infection linked to the recall was traced back to August 2023. One year later on Aug. 12, 2024, the Public Health Agency of Canada said three people had died and 20 were infected.

The number of cases is likely much higher, says Lawrence Goodridge, Canada Research Chair in foodborne pathogen dynamics at the University of Guelph: “For every person known, generally speaking, there’s typically 20 to 25 or maybe 30 people that are unknown.”

The case count has remained unchanged over the last month, but the Public Health Agency of Canada says it won’t declare the outbreak over until early October because of listeria’s 70-day incubation period and the reporting delays that accompany it.

Danone Canada’s head of communications said in an email Wednesday that the company is still investigating the “root cause” of the outbreak, which has been linked to a production line at a Pickering, Ont., packaging facility.

Pregnant people, adults over 60, and those with weakened immune systems are most at risk of becoming sick with severe listeriosis. If the infection spreads to an unborn baby, Health Canada says it can cause miscarriage, stillbirth, premature birth or life-threatening illness in a newborn.

The Canadian Press spoke to 10 people, from the parents of a toddler to an 89-year-old senior, who say they became sick with listeria after drinking from cartons of plant-based milk stamped with the recalled product code. Here’s a look at some of their experiences.

Sanniah Jabeen, 32, Toronto

Jabeen says she regularly drank Silk oat and almond milk in smoothies while pregnant, and began vomiting seven times a day and shivering at night in December 2023. She had “the worst headache of (her) life” when she went to the emergency room on Dec. 15.

“I just wasn’t functioning like a normal human being,” Jabeen says.

Told she was dehydrated, Jabeen was given fluids and a blood test and sent home. Four days later, she returned to hospital.

“They told me that since you’re 18 weeks, there’s nothing you can do to save your baby,” says Jabeen, who moved to Toronto from Pakistan five years ago.

Jabeen later learned she had listeriosis and an autopsy revealed her baby was infected, too.

“It broke my heart to read that report because I was just imagining my baby drinking poisoned amniotic fluid inside of me. The womb is a place where your baby is supposed to be the safest,” Jabeen said.

Jabeen’s case is likely not included in PHAC’s count. Jabeen says she was called by Health Canada and asked what dairy and fresh produce she ate – foods more commonly associated with listeria – but not asked about plant-based beverages.

She’s pregnant again, and is due in several months. At first, she was scared to eat, not knowing what caused the infection during her last pregnancy.

“Ever since I learned about the almond, oat milk situation, I’ve been feeling a bit better knowing that it wasn’t something that I did. It was something else that caused it. It wasn’t my fault,” Jabeen said.

She’s since joined a proposed class action lawsuit launched by LPC Avocates against the manufacturers and sellers of Silk and Great Value plant-based beverages. The lawsuit has not yet been certified by a judge.

Natalie Grant and her seven year-old daughter, Bowmanville, Ont.

Natalie Grant says she was in a hospital waiting room when she saw a television news report about the recall. She wondered if the dark chocolate almond milk her daughter drank daily was contaminated.

She had brought the girl to hospital because she was vomiting every half hour, constantly on the toilet with diarrhea, and had severe pain in her abdomen.

“I’m definitely thinking that this is a pretty solid chance that she’s got listeria at this point because I knew she had all the symptoms,” Grant says of seeing the news report.

Once her daughter could hold fluids, they went home and Grant cross-checked the recalled product code – 7825 – with the one on her carton. They matched.

“I called the emerg and I said I’m pretty confident she’s been exposed,” Grant said. She was told to return to the hospital if her daughter’s symptoms worsened. An hour and a half later, her fever spiked, the vomiting returned, her face flushed and her energy plummeted.

Grant says they were sent to a hospital in Ajax, Ont. and stayed two weeks while her daughter received antibiotics four times a day until she was discharged July 23.

“Knowing that my little one was just so affected and how it affected us as a family alone, there’s a bitterness left behind,” Grant said. She’s also joined the proposed class action.

Thelma Feldman, 89, Toronto

Thelma Feldman says she regularly taught yoga to friends in her condo building before getting sickened by listeria on July 2. Now, she has a walker and her body aches. She has headaches and digestive problems.

“I’m kind of depressed,” she says.

“It’s caused me a lot of physical and emotional pain.”

Much of the early days of her illness are a blur. She knows she boarded an ambulance with profuse diarrhea on July 2 and spent five days at North York General Hospital. Afterwards, she remembers Health Canada officials entering her apartment and removing Silk almond milk from her fridge, and volunteers from a community organization giving her sponge baths.

“At my age, 89, I’m not a kid anymore and healing takes longer,” Feldman says.

“I don’t even feel like being with people. I just sit at home.”

Jasmine Jiles and three-year-old Max, Kahnawake Mohawk Territory, Que.

Jasmine Jiles says her three-year-old son Max came down with flu-like symptoms and cradled his ears in what she interpreted as a sign of pain, like the one pounding in her own head, around early July.

When Jiles heard about the recall soon after, she called Danone Canada, the plant-based milk manufacturer, to find out if their Silk coconut milk was in the contaminated batch. It was, she says.

“My son is very small, he’s very young, so I asked what we do in terms of overall monitoring and she said someone from the company would get in touch within 24 to 48 hours,” Jiles says from a First Nations reserve near Montreal.

“I never got a call back. I never got an email”

At home, her son’s fever broke after three days, but gas pains stuck with him, she says. It took a couple weeks for him to get back to normal.

“In hindsight, I should have taken him (to the hospital) but we just tried to see if we could nurse him at home because wait times are pretty extreme,” Jiles says, “and I don’t have child care at the moment.”

Joseph Desmond, 50, Sydney, N.S.

Joseph Desmond says he suffered a seizure and fell off his sofa on July 9. He went to the emergency room, where they ran an electroencephalogram (EEG) test, and then returned home. Within hours, he had a second seizure and went back to hospital.

His third seizure happened the next morning while walking to the nurse’s station.

In severe cases of listeriosis, bacteria can spread to the central nervous system and cause seizures, according to Health Canada.

“The last two months have really been a nightmare,” says Desmond, who has joined the proposed lawsuit.

When he returned home from the hospital, his daughter took a carton of Silk dark chocolate almond milk out of the fridge and asked if he had heard about the recall. By that point, Desmond says he was on his second two-litre carton after finishing the first in June.

“It was pretty scary. Terrifying. I honestly thought I was going to die.”

Cheryl McCombe, 63, Haliburton, Ont.

The morning after suffering a second episode of vomiting, feverish sweats and diarrhea in the middle of the night in early July, Cheryl McCombe scrolled through the news on her phone and came across the recall.

A few years earlier, McCombe says she started drinking plant-based milks because it seemed like a healthier choice to splash in her morning coffee. On June 30, she bought two cartons of Silk cashew almond milk.

“It was on the (recall) list. I thought, ‘Oh my God, I got listeria,’” McCombe says. She called her doctor’s office and visited an urgent care clinic hoping to get tested and confirm her suspicion, but she says, “I was basically shut down at the door.”

Public Health Ontario does not recommend listeria testing for infected individuals with mild symptoms unless they are at risk of developing severe illness, such as people who are immunocompromised, elderly, pregnant or newborn.

“No wonder they couldn’t connect the dots,” she adds, referencing that it took close to a year for public health officials to find the source of the outbreak.

“I am a woman in my 60s and sometimes these signs are of, you know, when you’re vomiting and things like that, it can be a sign in women of a bigger issue,” McCombe says. She was seeking confirmation that wasn’t the case.

Disappointed, with her stomach still feeling off, she says she decided to boost her gut health with probiotics. After a couple weeks she started to feel like herself.

But since then, McCombe says, “I’m back on Kawartha Dairy cream in my coffee.”

This report by The Canadian Press was first published Sept. 16, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

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B.C. mayors seek ‘immediate action’ from federal government on mental health crisis

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VANCOUVER – Mayors and other leaders from several British Columbia communities say the provincial and federal governments need to take “immediate action” to tackle mental health and public safety issues that have reached crisis levels.

Vancouver Mayor Ken Sim says it’s become “abundantly clear” that mental health and addiction issues and public safety have caused crises that are “gripping” Vancouver, and he and other politicians, First Nations leaders and law enforcement officials are pleading for federal and provincial help.

In a letter to Prime Minister Justin Trudeau and Premier David Eby, mayors say there are “three critical fronts” that require action including “mandatory care” for people with severe mental health and addiction issues.

The letter says senior governments also need to bring in “meaningful bail reform” for repeat offenders, and the federal government must improve policing at Metro Vancouver ports to stop illicit drugs from coming in and stolen vehicles from being exported.

Sim says the “current system” has failed British Columbians, and the number of people dealing with severe mental health and addiction issues due to lack of proper care has “reached a critical point.”

Vancouver Police Chief Adam Palmer says repeat violent offenders are too often released on bail due to a “revolving door of justice,” and a new approach is needed to deal with mentally ill people who “pose a serious and immediate danger to themselves and others.”

This report by The Canadian Press was first published Sept. 16, 2024

The Canadian Press. All rights reserved.

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