'My muscles forget': B.C. people talk about the impact of Parkinson's - Kelowna Capital News | Canada News Media
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'My muscles forget': B.C. people talk about the impact of Parkinson's – Kelowna Capital News

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Documented as early as the 12th Century B.C. in Ancient Egypt, Parkinson’s disease (PD) was first extensively medically described in 1817 by English surgeon James Parkinson.

More than two centuries later, this progressive neurological disorder of the brain now affects more than 17,500 people in British Columbia and about 100,000 people across Canada.

As April marks Parkinson’s Awareness Month internationally, this time of the year presents a chance to educate the public about this incurable disease, which is projected to double globally by 2040.

Parkinson’s disease and its symptoms

Parkinson’s occurs when dopamine-producing cells in the brain deteriorate. Dopamine, an important neurotransmitter for nervous system functions, is responsible for regulating movements and emotions. The exact cause for the death of these cells remains unclear.

Individuals diagnosed with PD might exhibit common motor symptoms including tremors (shaking), slowness of movement, muscle stiffness, and impaired balance. Other less visible and non-motor symptoms frequently observed are fatigue, speaking difficulties, sleep disorders, and cognitive changes among other things. Some have also reported losing their sense of smell.

Despite the common symptoms associated with Parkinson’s disease, each individual’s experience varies greatly, with unique symptoms and requirements.

Researchers believe that Parkinson’s is likely caused by genetic and environmental factors. However, there’s still no clear understanding of what triggers the onset of the neurodegenerative disorder.

Commonly associated with older age, this progressive brain disease typically sees an increased risk of diagnosis as people grow older, with the average age being around 60. However, onset can occur as early as 40.

The risk of developing PD is twice as high in men than women but is known to progress faster and be more lethal to female patients.

Living with Parkinson’s

Ross Lane, a retired industrial electrician living in Courtenay, was diagnosed last year with the neurodegenerative condition at 76 years old.

Feeling increasingly tired, Lane first met with a sleep doctor who diagnosed him with sleep apnea. After visiting a clinic in Nanaimo, he was given a machine to help him sleep, but after a few months, his condition didn’t seem to improve.

“I (went back to my doctor) and by that time I had clear symptoms,” Lane said. “When I would reach for something, my hand would move very slowly. When I was writing, (everything) would get very tiny. After seeing this, my doctor said ‘That doesn’t sound like a sleep problem, it sounds like Parkinson’s.’”

Struggling with various motor and non-motor symptoms, Lane said that some are more apparent than others.

“When I walk, I stagger around like I’m drunk, but I haven’t had a drink in years,” Lane said.

When asked how it was to live with Parkinson’s disease, the man explained it was as if somehow, his “muscles forgot how to do stuff (he’s) been doing forever.”

Despite living independently, Lane finds that life’s most basic tasks often pose serious challenges daily.

“Normally, you wouldn’t really even think about dressing up because you would just whip your pants on or whatever,” said Lane. “But when you have Parkinson’s, you have much less mobility so I really struggle. That’s one of the reasons I went back to coveralls.”

Some things that many might consider trivial, like flipping pancakes or cleaning one’s home, take considerably more time and energy for Lane to accomplish.

Regardless of these physical limitations, the retiree mentioned that one of the most debilitating parts of Parkinson’s is the isolating nature of this disease. After surrendering his driver’s licence for fear of causing an accident, Lane now feels trapped within the confine of his apartment.

“It’s kind of lonely because I don’t have anybody to talk to about it,” said Lane. “Even though I’m in a support group, we only meet once a month. I can’t walk as far or as quickly as before.”

This loneliness is made worse by a lack of prognosis.

“The medical profession will not give me a prognosis and can’t tell me how quickly my disease is going to progress or (when I’m going) to be dead,” Lane said. “I feel a little abandoned.”

Comox Valley resident Bev White shares a similar story to Lane.

In 2022, at age 75, she was diagnosed with PD after her partner, Paul Atterton, asked their doctor to take a closer look at White’s gait.

In the following month, the woman was diagnosed with Parkinson’s disease and Lewy body dementia – which is commonly associated with Parkinson’s and Alzheimer’s.

“I think there were early signs if you knew that you were looking for. I think a lot of people don’t know (about PD’s symptoms,)” said White. “I was trying to learn how to play bridge because it’s supposed to be good for your brain, but for the life of me, I couldn’t (learn) anything beyond the very basics.”

After sharing his life for the last three decades with White, Atterton has seen the state of his partner decline drastically over the past 12 months.

“It’s been two years now and there’s been a dramatic change, especially on the cognitive side,” Atterton said. “(Her symptoms have just) exaggerated over time. The length of the awake day is shortened. Her shuffling is getting more (evident). There’s a lot of muscle stiffness, shortness of steps, loss of speech and overall confusion.”

Atterton describes every morning as a “business meeting,” during which both review the day’s schedule, ensuring they stay within a 24-hour time cycle to avoid further confusion on White’s part.

Considering herself lucky to be sharing life with her loved one, White recognized the chance she had to have a supportive partner.

“(Paul) is a rascal!” White said laughing. “But he’s been absolutely amazing and incredibly patient in the last couple of years as we’ve gone through all this.

“He makes me breakfast, lunch and dinner, and washes the dishes. He’s been very supportive and very patient. I can’t imagine where I would be without him.”

Yet, underneath this unwavering support, the couple is increasingly feeling the ever-growing weight of this disease. Having to give up his own hobbies and social life, Atterton is now fully dedicated to White.

“I don’t say that selfishly or begrudgingly, but we’re not getting the support we need and I’m basically Bev’s 24/7 health care system,” Atterton said. “She is not able to live by herself. If I wasn’t here, she’d be in the hospital today. Bev can’t manage simple things like putting out her medication, knowing what time of day it is or even what house she’s living in.”

The hardest thing for Atterton is to witness the disappearance of his lover, day by day, and watch Bev slowly become a shadow of her former self.

“(Everyday is just) like fixing a puzzle,” Atterton said. “I had Bev as a 1,000-piece puzzle and now she’s 400 pieces of it. It’s changing dramatically every day more so in the last two months than it was in the last year.”

Despite what the disease brings, White, Atterton, and Lane want to spread awareness about this progressive brain disorder.

“People seem to be afraid to even ask me what’s going on, but I’m not embarrassed by (my condition,)” Lane said. “It’s just the disease that I happen to have and I’m happy to talk about it. I don’t know if people are not curious or they’re scared to ask me questions, but I would say ask me about it if you’re interested!”

For more information about Parkinson’s disease and to learn more about services and resources available in B.C., visit parkinson.bc.ca.

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What’s the greatest holiday gift: lips, hair, skin? Give the gift of great skin this holiday season

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Give the gift of great skin this holiday season

Skinstitut Holiday Gift Kits take the stress out of gifting

Toronto, October 31, 2024 – Beauty gifts are at the top of holiday wish lists this year, and Laser Clinics Canada, a leader in advanced beauty treatments and skincare, is taking the pressure out of seasonal shopping. Today, Laser Clincs Canada announces the arrival of its 2024 Holiday Gift Kits, courtesy of Skinstitut, the exclusive skincare line of Laser Clinics Group.

In time for the busy shopping season, the limited-edition Holiday Gifts Kits are available in Laser Clinics locations in the GTA and Ottawa. Clinics are conveniently located in popular shopping centers, including Hillcrest Mall, Square One, CF Sherway Gardens, Scarborough Town Centre, Rideau Centre, Union Station and CF Markville. These limited-edition Kits are available on a first come, first served basis.

“These kits combine our best-selling products, bundled to address the most relevant skin concerns we’re seeing among our clients,” says Christina Ho, Senior Brand & LAM Manager at Laser Clinics Canada. “With several price points available, the kits offer excellent value and suit a variety of gift-giving needs, from those new to cosmeceuticals to those looking to level up their skincare routine. What’s more, these kits are priced with a savings of up to 33 per cent so gift givers can save during the holiday season.

There are two kits to select from, each designed to address key skin concerns and each with a unique theme — Brightening Basics and Hydration Heroes.

Brightening Basics is a mix of everyday essentials for glowing skin for all skin types. The bundle comes in a sleek pink, reusable case and includes three full-sized products: 200ml gentle cleanser, 50ml Moisture Defence (normal skin) and 30ml1% Hyaluronic Complex Serum. The Brightening Basics kit is available at $129, a saving of 33 per cent.

Hydration Heroes is a mix of hydration essentials and active heroes that cater to a wide variety of clients. A perfect stocking stuffer, this bundle includes four deluxe products: Moisture 15 15 ml Defence for normal skin, 10 ml 1% Hyaluronic Complex Serum, 10 ml Retinol Serum and 50 ml Expert Squalane Cleansing Oil. The kit retails at $59.

In addition to the 2024 Holiday Gifts Kits, gift givers can easily add a Laser Clinic Canada gift card to the mix. Offering flexibility, recipients can choose from a wide range of treatments offered by Laser Clinics Canada, or they can expand their collection of exclusive Skinstitut products.

 

Brightening Basics 2024 Holiday Gift Kit by Skinstitut, available exclusively at Laser Clincs Canada clinics and online at skinstitut.ca.

Hydration Heroes 2024 Holiday Gift Kit by Skinstitut – available exclusively at Laser Clincs Canada clinics and online at skinstitut.ca.

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Here is how to prepare your online accounts for when you die

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LONDON (AP) — Most people have accumulated a pile of data — selfies, emails, videos and more — on their social media and digital accounts over their lifetimes. What happens to it when we die?

It’s wise to draft a will spelling out who inherits your physical assets after you’re gone, but don’t forget to take care of your digital estate too. Friends and family might treasure files and posts you’ve left behind, but they could get lost in digital purgatory after you pass away unless you take some simple steps.

Here’s how you can prepare your digital life for your survivors:

Apple

The iPhone maker lets you nominate a “ legacy contact ” who can access your Apple account’s data after you die. The company says it’s a secure way to give trusted people access to photos, files and messages. To set it up you’ll need an Apple device with a fairly recent operating system — iPhones and iPads need iOS or iPadOS 15.2 and MacBooks needs macOS Monterey 12.1.

For iPhones, go to settings, tap Sign-in & Security and then Legacy Contact. You can name one or more people, and they don’t need an Apple ID or device.

You’ll have to share an access key with your contact. It can be a digital version sent electronically, or you can print a copy or save it as a screenshot or PDF.

Take note that there are some types of files you won’t be able to pass on — including digital rights-protected music, movies and passwords stored in Apple’s password manager. Legacy contacts can only access a deceased user’s account for three years before Apple deletes the account.

Google

Google takes a different approach with its Inactive Account Manager, which allows you to share your data with someone if it notices that you’ve stopped using your account.

When setting it up, you need to decide how long Google should wait — from three to 18 months — before considering your account inactive. Once that time is up, Google can notify up to 10 people.

You can write a message informing them you’ve stopped using the account, and, optionally, include a link to download your data. You can choose what types of data they can access — including emails, photos, calendar entries and YouTube videos.

There’s also an option to automatically delete your account after three months of inactivity, so your contacts will have to download any data before that deadline.

Facebook and Instagram

Some social media platforms can preserve accounts for people who have died so that friends and family can honor their memories.

When users of Facebook or Instagram die, parent company Meta says it can memorialize the account if it gets a “valid request” from a friend or family member. Requests can be submitted through an online form.

The social media company strongly recommends Facebook users add a legacy contact to look after their memorial accounts. Legacy contacts can do things like respond to new friend requests and update pinned posts, but they can’t read private messages or remove or alter previous posts. You can only choose one person, who also has to have a Facebook account.

You can also ask Facebook or Instagram to delete a deceased user’s account if you’re a close family member or an executor. You’ll need to send in documents like a death certificate.

TikTok

The video-sharing platform says that if a user has died, people can submit a request to memorialize the account through the settings menu. Go to the Report a Problem section, then Account and profile, then Manage account, where you can report a deceased user.

Once an account has been memorialized, it will be labeled “Remembering.” No one will be able to log into the account, which prevents anyone from editing the profile or using the account to post new content or send messages.

X

It’s not possible to nominate a legacy contact on Elon Musk’s social media site. But family members or an authorized person can submit a request to deactivate a deceased user’s account.

Passwords

Besides the major online services, you’ll probably have dozens if not hundreds of other digital accounts that your survivors might need to access. You could just write all your login credentials down in a notebook and put it somewhere safe. But making a physical copy presents its own vulnerabilities. What if you lose track of it? What if someone finds it?

Instead, consider a password manager that has an emergency access feature. Password managers are digital vaults that you can use to store all your credentials. Some, like Keeper,Bitwarden and NordPass, allow users to nominate one or more trusted contacts who can access their keys in case of an emergency such as a death.

But there are a few catches: Those contacts also need to use the same password manager and you might have to pay for the service.

___

Is there a tech challenge you need help figuring out? Write to us at onetechtip@ap.org with your questions.

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Pediatric group says doctors should regularly screen kids for reading difficulties

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The Canadian Paediatric Society says doctors should regularly screen children for reading difficulties and dyslexia, calling low literacy a “serious public health concern” that can increase the risk of other problems including anxiety, low self-esteem and behavioural issues, with lifelong consequences.

New guidance issued Wednesday says family doctors, nurses, pediatricians and other medical professionals who care for school-aged kids are in a unique position to help struggling readers access educational and specialty supports, noting that identifying problems early couldhelp kids sooner — when it’s more effective — as well as reveal other possible learning or developmental issues.

The 10 recommendations include regular screening for kids aged four to seven, especially if they belong to groups at higher risk of low literacy, including newcomers to Canada, racialized Canadians and Indigenous Peoples. The society says this can be done in a two-to-three-minute office-based assessment.

Other tips encourage doctors to look for conditions often seen among poor readers such as attention-deficit hyperactivity disorder; to advocate for early literacy training for pediatric and family medicine residents; to liaise with schools on behalf of families seeking help; and to push provincial and territorial education ministries to integrate evidence-based phonics instruction into curriculums, starting in kindergarten.

Dr. Scott McLeod, one of the authors and chair of the society’s mental health and developmental disabilities committee, said a key goal is to catch kids who may be falling through the cracks and to better connect families to resources, including quicker targeted help from schools.

“Collaboration in this area is so key because we need to move away from the silos of: everything educational must exist within the educational portfolio,” McLeod said in an interview from Calgary, where he is a developmental pediatrician at Alberta Children’s Hospital.

“Reading, yes, it’s education, but it’s also health because we know that literacy impacts health. So I think that a statement like this opens the window to say: Yes, parents can come to their health-care provider to get advice, get recommendations, hopefully start a collaboration with school teachers.”

McLeod noted that pediatricians already look for signs of low literacy in young children by way of a commonly used tool known as the Rourke Baby Record, which offers a checklist of key topics, such as nutrition and developmental benchmarks, to cover in a well-child appointment.

But he said questions about reading could be “a standing item” in checkups and he hoped the society’s statement to medical professionals who care for children “enhances their confidence in being a strong advocate for the child” while spurring partnerships with others involved in a child’s life such as teachers and psychologists.

The guidance said pediatricians also play a key role in detecting and monitoring conditions that often coexist with difficulty reading such as attention-deficit hyperactivity disorder, but McLeod noted that getting such specific diagnoses typically involves a referral to a specialist, during which time a child continues to struggle.

He also acknowledged that some schools can be slow to act without a specific diagnosis from a specialist, and even then a child may end up on a wait list for school interventions.

“Evidence-based reading instruction shouldn’t have to wait for some of that access to specialized assessments to occur,” he said.

“My hope is that (by) having an existing statement or document written by the Canadian Paediatric Society … we’re able to skip a few steps or have some of the early interventions present,” he said.

McLeod added that obtaining specific assessments from medical specialists is “definitely beneficial and advantageous” to know where a child is at, “but having that sort of clear, thorough assessment shouldn’t be a barrier to intervention starting.”

McLeod said the society was partly spurred to act by 2022’s “Right to Read Inquiry Report” from the Ontario Human Rights Commission, which made 157 recommendations to address inequities related to reading instruction in that province.

He called the new guidelines “a big reminder” to pediatric providers, family doctors, school teachers and psychologists of the importance of literacy.

“Early identification of reading difficulty can truly change the trajectory of a child’s life.”

This report by The Canadian Press was first published Oct. 23, 2024.

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