Ontario cancer patient who must travel to U.S. for treatment trapped in near-constant quarantines - CBC.ca | Canada News Media
Connect with us

News

Ontario cancer patient who must travel to U.S. for treatment trapped in near-constant quarantines – CBC.ca

Published

 on


The only good thing that Dean Nixon can say about his prison is that it has a view. 

From the balcony of his small, fourth-floor apartment, the Guelph, Ont., resident can see the open countryside. Able, at least, to imagine freedom, if not experience it.

Nixon, a 46-year-old horse trainer and Stage 4 cancer patient, is living in a bureaucratic limbo, obliged to self-isolate for the coming year while in Canada due to the country’s COVID-19 quarantine restrictions.

As far as border and health officials are concerned, Nixon poses a danger because he must travel to the United States twice a month for a life-saving treatment that’s not available in Canada. And according to current regulations, he has to self-isolate in his apartment for 14 days every time he returns, resulting in a perpetual quarantine. 

“It’s extremely frustrating,” Nixon said last week, standing on his balcony with his dog, Jeanna, as he spoke to a reporter on the sidewalk, four storeys below. “The only thing I’m guilty of is trying to save my life.

“We have people regularly crossing the border for work. We have American executives coming into Canada who are allowed to circumnavigate mandatory quarantine. I’m trying to figure out how a truck driver, or a nurse, poses less of a threat to the public health than I do, when I’m part of the at-risk population.”

Nixon was first diagnosed with anal cancer in the spring of 2016, and by that fall, the disease had metastasized, spreading to his liver. His doctors in Ontario could only offer more chemotherapy, and faint hope. So Nixon searched the internet and found an experimental program for patients with human papillomavirus-related cancers being run by the U.S. National Institutes of Health (NIH) in Bethesda, Md.  

Doctors there enrolled him in a year-long trial of a new immunotherapy drug starting in early 2017. Nixon’s cancer went into remission, but returned a few months after the treatment ended. He went back on the drug for another year at the beginning of 2019, with similarly promising results. But a follow-up scan this past July discovered new tumours, and in early October he began yet another round of treatments — requiring 26 visits to the United States over the course of the coming year.

Exemption for treatment in Canada, but not for those who go abroad

Nixon is usually out of the country for less than 48 hours. He wears a mask whenever he’s in public, keeps his distance and washes his hands frequently. He stays at a Maryland Airbnb that caters to NIH patients, taking extra care to sanitize its rooms. And at the hospital’s sprawling campus, COVID-19 precautions are even stricter, with screening, mandatory masks and gloves and limited interaction with staff. Since the pandemic began in March the NIH has recorded just one coronavirus transmission at its campus.

Nixon, pictured at his apartment, finds his situation especially galling given that people who travel to Canada to receive medical treatment don’t have to self-isolate. (Evan Mitsui/CBC News)

 

But none of this has made an impression on Canadian border agents or with officials from the Public Health Agency of Canada (PHAC), who have so far refused to exempt Nixon from following the mandatory, 14-day quarantine each time he returns home. His latest crossing and self-isolation order came on Nov. 18.

He finds the situation especially galling given that people who travel to Canada to receive medical treatment don’t have to self-isolate. More than five million federal quarantine exemptions have been handed out since last March, mostly to essential workers such as truckers, nurses and technicians. But corporate titans are receiving them too, as detailed in a series of recent CBC News Investigations that have uncovered discretionary business trips by senior U.S. executives.

“There’s really no consideration for what my routine would be like, where I live, my situation….” Nixon said. “On a personal level, it means I can’t visit friends, family, can’t take my dog for a walk, can’t be out in the open air, can’t exercise…. It leaves me alone here to sit and think about my disease. Which is not a great thing.”

Unable to work and facing financial ruin

The quarantine is also interfering with his livelihood — training standardbred harness racing horses. The farm where his operation is based is just a seven-minute drive from his apartment, but he hasn’t been able to visit since the beginning of October. Instead he tries to keep abreast of how the horses are running, eating and behaving via phone calls and text messages with his hired hand. He’s already lost two clients and fears that more might follow. 

“[The horses] don’t speak. So the No. 1 tool at our disposal is to be able to monitor the animals. And if you can’t observe them, you can’t do your job,” said Nixon.

Nixon, left, poses in the winner’s circle with driver Doug Brown and part-owner Jeralene Roland, right, following a July 2019 victory by Artofficial Flavor at Kawartha Downs racetrack in Ontario. (Dean Nixon)

Over the past six weeks, Nixon has tried reaching out to his local Liberal MP, the Canadian Human Rights Commission and the Canadian Cancer Society for assistance. So far, no one has been able to help. He has also appealed to PHAC for a special exemption but has been rejected.

In an email sent earlier this week, the federal health agency told Nixon that quarantine exemptions “are purposefully limited to minimize the introduction and spread of COVID-19” and that he is unlikely to qualify for one. 

“Unfortunately, there are no exemptions for travellers returning to Canada from receiving medical treatment in the U.S.,” reads the note.

CBC News contacted the Canada Border Services Agency and PHAC about Nixon’s case, asking why the medical exemptions flow in only one direction. The CBSA said that it only enforces the rules as set out by the Public Health Agency of Canada and the federal government. PHAC has yet to provide a comment or explanation. 

No choice but to seek treatment in U.S.

Dr. Julius Strauss, who oversees Nixon’s treatment at the NIH’s Clinical Center, says he worries about how his patient will cope with the effects of a year-long lockdown. 

“I am concerned about Mr. Nixon’s mental health, about being locked down with this diagnosis and not having any ability to interact,” Strauss said.

“I understand the safety precautions, but also have concerns about his financial hardships, because he’s not able to do his normal job.” 

The immunotherapy is Nixon’s only viable choice, says the doctor. 

“It’s critical for him, this treatment,” Strauss said. “It’s not experimental for him. Because for him, we know it works.”

Nixon isn’t sure if he’s the only one facing such a cross-border dilemma. There are no other Canadians currently receiving treatment at the NIH. And no one has come forward in the patient support forums he posts to. 

Nixon’s goal is to someday set up a group to help more Canadians access foreign clinical trials. But first he must find a way to navigate the pandemic and its restrictions.

“If I don’t go to the States, I won’t get treatment and I’ll probably die. If I don’t go to work, I can’t afford to go to the States and I’ll probably die,” he said. 

His wishes are as simple as the government regulations are complex.

“I really just would like to be able to go to work, maybe take my dog for a walk, and that’s about it. I’m not asking for a lot. What they’re asking, I think, is considerably more.”

Let’s block ads! (Why?)



Source link

Continue Reading

News

Looking for the next mystery bestseller? This crime bookstore can solve the case

Published

 on

WINNIPEG – Some 250 coloured tacks pepper a large-scale world map among bookshelves at Whodunit Mystery Bookstore.

Estonia, Finland, Japan and even Fenwick, Ont., have pins representing places outside Winnipeg where someone has ordered a page-turner from the independent bookstore that specializes in mystery and crime fiction novels.

For 30 years, the store has been offering fans of Agatha Christie’s Hercule Poirot or Arthur Conan Doyle’s Sherlock Holmes a place to get lost in whodunits both old and new.

Jack and Wendy Bumsted bought the shop in the Crescentwood neighbourhood in 2007 from another pair of mystery lovers.

The married couple had been longtime customers of the store. Wendy Bumsted grew up reading Perry Mason novels while her husband was a historian with vast knowledge of the crime fiction genre.

At the time, Jack Bumsted was retiring from teaching at the University of Manitoba when he was looking for his next venture.

“The bookstore came up and we bought it, I think, within a week,” Wendy Bumsted said in an interview.

“It never didn’t seem like a good idea.”

In the years since the Bumsteds took ownership, the family has witnessed the decline in mail-order books, the introduction of online retailers, a relocation to a new space next to the original, a pandemic and the death of beloved co-owner Jack Bumsted in 2020.

But with all the changes that come with owning a small business, customers continue to trust their next mystery fix will come from one of the shelves at Whodunit.

Many still request to be called about books from specific authors, or want to be notified if a new book follows their favourite format. Some arrive at the shop like clockwork each week hoping to get suggestions from Wendy Bumsted or her son on the next big hit.

“She has really excellent instincts on what we should be getting and what we should be promoting,” Micheal Bumsted said of his mother.

Wendy Bumsted suggested the store stock “Thursday Murder Club,” the debut novel from British television host Richard Osman, before it became a bestseller. They ordered more copies than other bookstores in Canada knowing it had the potential to be a hit, said Michael Bumsted.

The store houses more than 18,000 new and used novels. That’s not including the boxes of books that sit in Wendy Bumsted’s tiny office, or the packages that take up space on some of the only available seating there, waiting to be added to the inventory.

Just as the genre has evolved, so has the Bumsteds’ willingness to welcome other subjects on their shelves — despite some pushback from loyal customers and initially the Bumsted patriarch.

For years, Jack Bumsted refused to sell anything outside the crime fiction genre, including his own published books. Instead, he would send potential buyers to another store, but would offer to sign the books if they came back with them.

Wendy Bumsted said that eventually changed in his later years.

Now, about 15 per cent of the store’s stock is of other genres, such as romance or children’s books.

The COVID-19 pandemic forced them to look at expanding their selection, as some customers turned to buying books through the store’s website, which is set up to allow purchasers to get anything from the publishers the Bumsteds have contracts with.

In 2019, the store sold fewer than 100 books online. That number jumped to more than 3,000 in 2020, as retailers had to deal with pandemic lockdowns.

After years of running a successful mail-order business, the store was able to quickly adapt when it had to temporarily shut its doors, said Michael Bumsted.

“We were not a store…that had to figure out how to get books to people when they weren’t here.”

He added being a community bookstore with a niche has helped the family stay in business when other retailers have struggled. Part of that has included building lasting relationships.

“Some people have put it in their wills that their books will come to us,” said Wendy Bumsted.

Some of those collections have included tips on traveling through Asia in the early 2000s or the history of Australian cricket.

Micheal Bumsted said they’ve had to learn to be patient with selling some of these more obscure titles, but eventually the time comes for them to find a new home.

“One of the great things about physical books is that they can be there for you when you are ready for them.”

This report by The Canadian Press was first published on Sept. 15, 2024.



Source link

Continue Reading

News

Labour Minister praises Air Canada, pilots union for avoiding disruptive strike

Published

 on

MONTREAL – Canada’s labour minister is praising both Air Canada and the union representing about 5,200 of its pilots for averting a work stoppage that would have disrupted travel for hundreds of thousands of passengers.

Steven MacKinnon’s comments came in a statement shared to social media shortly after Canada’s largest air carrier announced it had reached a tentative labour deal with the Air Line Pilots Association.

MacKinnon thanked both sides and federal mediators, saying the airline and its pilots approached negotiations with “seriousness and a resolve to get a deal.”

The tentative agreement averts a strike or lockout that could have begun as early as Wednesday for Air Canada and Air Canada Rouge, with flight cancellations expected before then.

The airline now says flights will continue as normal while union members vote on the tentative four-year contract.

Air Canada had called on the federal government to intervene in the dispute, but Prime Minister Justin Trudeau said Friday that would only happen if it became clear no negotiated agreement was possible.

This report from The Canadian Press was first published Sept. 15, 2024.

Companies in this story: (TSX:AC)

The Canadian Press. All rights reserved.



Source link

Continue Reading

News

As plant-based milk becomes more popular, brands look for new ways to compete

Published

 on

When it comes to plant-based alternatives, Canadians have never had so many options — and nowhere is that choice more abundantly clear than in the milk section of the dairy aisle.

To meet growing demand, companies are investing in new products and technology to keep up with consumer tastes and differentiate themselves from all the other players on the shelf.

“The product mix has just expanded so fast,” said Liza Amlani, co-founder of the Retail Strategy Group.

She said younger generations in particular are driving growth in the plant-based market as they are consuming less dairy and meat.

Commercial sales of dairy milk have been weakening for years, according to research firm Mintel, likely in part because of the rise of plant-based alternatives — even though many Canadians still drink dairy.

The No. 1 reason people opt for plant-based milk is because they see it as healthier than dairy, said Joel Gregoire, Mintel’s associate director for food and drink.

“Plant-based milk, the one thing about it — it’s not new. It’s been around for quite some time. It’s pretty established,” said Gregoire.

Because of that, it serves as an “entry point” for many consumers interested in plant-based alternatives to animal products, he said.

Plant-based milk consumption is expected to continue growing in the coming years, according to Mintel research, with more options available than ever and more consumers opting for a diet that includes both dairy and non-dairy milk.

A 2023 report by Ernst & Young for Protein Industries Canada projected that the plant-based dairy market will reach US$51.3 billion in 2035, at a compound annual growth rate of 9.5 per cent.

Because of this growth opportunity, even well-established dairy or plant-based companies are stepping up their game.

It’s been more than three decades since Saint-Hyacinthe, Que.-based Natura first launched a line of soy beverages. Over the years, the company has rolled out new products to meet rising demand, and earlier this year launched a line of oat beverages that it says are the only ones with a stamp of approval from Celiac Canada.

Competition is tough, said owner and founder Nick Feldman — especially from large American brands, which have the money to ensure their products hit shelves across the country.

Natura has kept growing, though, with a focus on using organic ingredients and localized production from raw materials.

“We’re maybe not appealing to the mass market, but we’re appealing to the natural consumer, to the organic consumer,” Feldman said.

Amlani said brands are increasingly advertising the simplicity of their ingredient lists. She’s also noticing more companies offering different kinds of products, such as coffee creamers.

Companies are also looking to stand out through eye-catching packaging and marketing, added Amlani, and by competing on price.

Besides all the companies competing for shelf space, there are many different kinds of plant-based milk consumers can choose from, such as almond, soy, oat, rice, hazelnut, macadamia, pea, coconut and hemp.

However, one alternative in particular has enjoyed a recent, rapid ascendance in popularity.

“I would say oat is the big up-and-coming product,” said Feldman.

Mintel’s report found the share of Canadians who say they buy oat milk has quadrupled between 2019 and 2023 (though almond is still the most popular).

“There seems to be a very nice marriage of coffee and oat milk,” said Feldman. “The flavour combination is excellent, better than any other non-dairy alternative.”

The beverage’s surge in popularity in cafés is a big part of why it’s ascending so quickly, said Gregoire — its texture and ability to froth makes it a good alternative for lattes and cappuccinos.

It’s also a good example of companies making a strong “use case” for yet another new entrant in a competitive market, he said.

Amid the long-standing brands and new entrants, there’s another — perhaps unexpected — group of players that has been increasingly investing in plant-based milk alternatives: dairy companies.

For example, Danone has owned the Silk and So Delicious brands since an acquisition in 2014, and long-standing U.S. dairy company HP Hood LLC launched Planet Oat in 2018.

Lactalis Canada also recently converted its facility in Sudbury, Ont., to manufacture its new plant-based Enjoy! brand, with beverages made from oats, almonds and hazelnuts.

“As an organization, we obviously follow consumer trends, and have seen the amount of interest in plant-based products, particularly fluid beverages,” said Mark Taylor, president and CEO of Lactalis Canada, whose parent company Lactalis is the largest dairy products company in the world.

The facility was a milk processing plant for six decades, until Lactalis Canada began renovating it in 2022. It now manufactures not only the new brand, but also the company’s existing Sensational Soy brand, and is the company’s first dedicated plant-based facility.

“We’re predominantly a dairy company, and we’ll always predominantly be a dairy company, but we see these products as complementary,” said Taylor.

It makes sense that major dairy companies want to get in on plant-based milk, said Gregoire. The dairy business is large — a “cash cow,” if you will — but not really growing, while plant-based products are seeing a boom.

“If I’m looking for avenues of growth, I don’t want to be left behind,” he said.

Gregoire said there’s a potential for consumers to get confused with so many options, which is why it’s so important for brands to find a way to differentiate themselves, whether it’s with taste, health, or how well the drink froths for a latte.

Competition in a more crowded market is challenging, but Taylor believes it results in better products for consumers.

“It keeps you sharp, and it forces you to be really good at what you’re doing. It drives innovation,” he said.

This report by The Canadian Press was first published Sept. 15, 2024.



Source link

Continue Reading

Trending

Exit mobile version