Paralyzed woman speaks via AI brain implant for 1st time after stroke 18 years ago | Canada News Media
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Paralyzed woman speaks via AI brain implant for 1st time after stroke 18 years ago

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Ann Johnson was just 30 years old when she experienced a life-altering stroke in 2005 that left her paralyzed and unable to speak. At the time, she was a math and P.E. teacher at Luther College in Regina, had an eight-year-old stepson and had just welcomed a baby girl into the world.

“Overnight, everything was taken from me,” she wrote, according to a post from Luther College.

The stroke left her with locked-in syndrome (LIS), a rare neurological disorder that can cause full paralysis except for the muscles that control eye movement, the National Institutes of Health writes.

Johnson, now 47, described her experience with LIS in a paper she wrote for a psychology class in 2020, painstakingly typed letter by letter.

“You’re fully cognizant, you have full sensation, all five senses work, but you are locked inside a body where no muscles work,” she wrote. “I learned to breathe on my own again, I now have full neck movement, my laugh returned, I can cry and read and over the years my smile has returned, and I am able to wink and say a few words.”

A year later, in 2021, Johnson learned of a research study that had the potential to change her life. She was selected as one of eight participants for the clinical trial, offered by the departments of neurology and neurosurgery at the University of California, San Francisco (UCSF), and was the only Canadian.

“I always knew that my injury was rare, and living in Regina was remote. My kids were young when my stroke happened, and I knew participating in a study would mean leaving them. So, I waited until this summer to volunteer – my kids are now 25 and 17,” she writes.

Now, the results of Johnson’s work with a team of U.S. neurologists and computer scientists have come to fruition.

A study published in Nature on Wednesday revealed that Johnson is the first person in the world to speak out loud via decoded brain signals.

An implant that rests on her brain records her neurological activity while an artificial intelligence (AI) model translates those signals into words. In real time, that decoded text is synthesized into speech, spoken out loud by a digital avatar that can even generate Johnson’s facial expressions.


Ann Johnson sits in front of a digital avatar, through which she can speak out loud via a brain-compter interface.


Noah Berger/UCSF

The system can translate Johnson’s brain activity into text at a rate of nearly 80 words per minute, much faster than the 14 words per minute she can achieve typing out words with her current communication device, which tracks her eye movements.

The breakthrough was demonstrated in a video released by UCSF, in which Johnson speaks to her husband for the first time using her own voice, which the AI model can mimic thanks to a recording of Johnson taken on her wedding day.

“How are you feeling about the Blue Jays today?” her husband Bill asks, wearing a cap from the Toronto baseball team.

“Anything is possible,” she responds via the avatar.

Johnson’s husband jokes that she doesn’t seem very confident in the Jays.

“You are right about that,” she says, smiling.

Ann Johnson working with researchers on a technology that allows her to speak via brain signals after a stroke left her paralyzed.

Ann Johnson working with researchers on a technology that allows her to speak via brain signals after a stroke left her paralyzed.


Noah Berger/UCSF

The research team behind the technology, known as a brain-computer interface, hopes it can secure approval from U.S. regulators to make this system accessible to the public.

“Our goal is to restore a full, embodied way of communicating, which is the most natural way for us to talk with others,” says Edward Chang, chair of neurological surgery at UCSF and one of the lead authors of the study. “These advancements bring us much closer to making this a real solution for patients.”

So, how did they do it?

The team surgically implanted a paper-thin grid of 253 electrodes onto the surface of Johnson’s brain, covering the areas that are important for speech.

“The electrodes intercepted the brain signals that, if not for the stroke, would have gone to muscles in Ann’s lips, tongue, jaw and larynx, as well as her face,” a news release from UCSF reads.

Those brain signals get transferred into a port that is screwed onto the outside of Johnson’s head. From there, a cable that plugs into the port can be hooked up to a bank of computers that decode the signals into text and synthesize the text into speech.


Animation of the brain implant Ann Johnson received that allows her to speak via a digital avatar.


Noah Berger/UCSF

The AI model doesn’t exactly decode Johnson’s thoughts, but interprets how Johnson’s brain would move her face to make sounds — a process that also allows the AI to generate her facial expressions and emotions.

The AI translates these muscle signals into the building blocks of speech: components called phonemes.

“These are the sub-units of speech that form spoken words in the same way that letters form written words. ‘Hello,’ for example, contains four phonemes: ‘HH,’ ‘AH,’ ‘L’ and ‘OW,’” according to the UCSF release.

“Using this approach, the computer only needed to learn 39 phonemes to decipher any word in English. This both enhanced the system’s accuracy and made it three times faster.”

Over the course of many weeks, Johnson worked with the research team to train the AI to “recognize her unique brain signals for speech.”

They did this by repeating phrases from a bank of 1,024 words over and over again until the AI learned to recognize Johnson’s brain activity associated with each phoneme.

“The accuracy, speed and vocabulary are crucial,” said Sean Metzger, who developed the AI decoder with Alex Silva, both graduate students in the joint bioengineering program at UC Berkeley and UCSF. “It’s what gives Ann the potential, in time, to communicate almost as fast as we do, and to have much more naturalistic and normal conversations.”


Ann Johnson, 47, can speak out loud again for the first time after she was paralyzed in a stroke that happened in 2005.


Noah Berger/UCSF

Johnson is still getting used to hearing her old voice again, generated by the AI. The model was trained on a recording of a speech Johnson gave on her wedding day, allowing her digital avatar to sound similar to how she spoke before the stroke.

“My brain feels funny when it hears my synthesized voice,” she told UCSF. “It’s like hearing an old friend.

“My daughter was one when I had my injury, it’s like she doesn’t know Ann.… She has no idea what Ann sounds like.”

Her daughter only knows the British-accented voice of her current communication device.

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Another bonus of the brain-computer interface is that Johnson can control the facial movements of her digital avatar, making its jaw open, lips protrude and tongue go up and down if she wishes. She can also simulate facial expressions for happiness, sadness and surprise.

“When Ann first used this system to speak and move the avatar’s face in tandem, I knew that this was going to be something that would have a real impact,” said Kaylo Littlejohn, a graduate student working with the research team.

The next steps for the researchers will be to develop a wireless version of the system that wouldn’t require Johnson to be physically hooked up to computers. Currently, she’s wired in with cables that plug into the port on the top of her head.

“Giving people like Ann the ability to freely control their own computers and phones with this technology would have profound effects on their independence and social interactions,” said study co-author David Moses, a professor in neurological surgery.


A researcher plugs a wire into a port that is screwed into Ann Johnson’s head, which is connected to the grid of electrodes resting on her brain.


Noah Berger/UCSF

Johnson says being part of a brain-computer interface study has given her “a sense of purpose.”

“I feel like I am contributing to society. It feels like I have a job again. It’s amazing I have lived this long; this study has allowed me to really live while I’m still alive!”

Johnson was inspired to become a trauma counsellor after hearing about the Humboldt Broncos bus crash that claimed the lives of 16 young hockey players in 2018. With the help of this AI interface, and the freedom and ease of communication it allows, she hopes that dream will soon become a reality.

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What’s the greatest holiday gift: lips, hair, skin? Give the gift of great skin this holiday season

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Give the gift of great skin this holiday season

Skinstitut Holiday Gift Kits take the stress out of gifting

Toronto, October 31, 2024 – Beauty gifts are at the top of holiday wish lists this year, and Laser Clinics Canada, a leader in advanced beauty treatments and skincare, is taking the pressure out of seasonal shopping. Today, Laser Clincs Canada announces the arrival of its 2024 Holiday Gift Kits, courtesy of Skinstitut, the exclusive skincare line of Laser Clinics Group.

In time for the busy shopping season, the limited-edition Holiday Gifts Kits are available in Laser Clinics locations in the GTA and Ottawa. Clinics are conveniently located in popular shopping centers, including Hillcrest Mall, Square One, CF Sherway Gardens, Scarborough Town Centre, Rideau Centre, Union Station and CF Markville. These limited-edition Kits are available on a first come, first served basis.

“These kits combine our best-selling products, bundled to address the most relevant skin concerns we’re seeing among our clients,” says Christina Ho, Senior Brand & LAM Manager at Laser Clinics Canada. “With several price points available, the kits offer excellent value and suit a variety of gift-giving needs, from those new to cosmeceuticals to those looking to level up their skincare routine. What’s more, these kits are priced with a savings of up to 33 per cent so gift givers can save during the holiday season.

There are two kits to select from, each designed to address key skin concerns and each with a unique theme — Brightening Basics and Hydration Heroes.

Brightening Basics is a mix of everyday essentials for glowing skin for all skin types. The bundle comes in a sleek pink, reusable case and includes three full-sized products: 200ml gentle cleanser, 50ml Moisture Defence (normal skin) and 30ml1% Hyaluronic Complex Serum. The Brightening Basics kit is available at $129, a saving of 33 per cent.

Hydration Heroes is a mix of hydration essentials and active heroes that cater to a wide variety of clients. A perfect stocking stuffer, this bundle includes four deluxe products: Moisture 15 15 ml Defence for normal skin, 10 ml 1% Hyaluronic Complex Serum, 10 ml Retinol Serum and 50 ml Expert Squalane Cleansing Oil. The kit retails at $59.

In addition to the 2024 Holiday Gifts Kits, gift givers can easily add a Laser Clinic Canada gift card to the mix. Offering flexibility, recipients can choose from a wide range of treatments offered by Laser Clinics Canada, or they can expand their collection of exclusive Skinstitut products.

 

Brightening Basics 2024 Holiday Gift Kit by Skinstitut, available exclusively at Laser Clincs Canada clinics and online at skinstitut.ca.

Hydration Heroes 2024 Holiday Gift Kit by Skinstitut – available exclusively at Laser Clincs Canada clinics and online at skinstitut.ca.

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Here is how to prepare your online accounts for when you die

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LONDON (AP) — Most people have accumulated a pile of data — selfies, emails, videos and more — on their social media and digital accounts over their lifetimes. What happens to it when we die?

It’s wise to draft a will spelling out who inherits your physical assets after you’re gone, but don’t forget to take care of your digital estate too. Friends and family might treasure files and posts you’ve left behind, but they could get lost in digital purgatory after you pass away unless you take some simple steps.

Here’s how you can prepare your digital life for your survivors:

Apple

The iPhone maker lets you nominate a “ legacy contact ” who can access your Apple account’s data after you die. The company says it’s a secure way to give trusted people access to photos, files and messages. To set it up you’ll need an Apple device with a fairly recent operating system — iPhones and iPads need iOS or iPadOS 15.2 and MacBooks needs macOS Monterey 12.1.

For iPhones, go to settings, tap Sign-in & Security and then Legacy Contact. You can name one or more people, and they don’t need an Apple ID or device.

You’ll have to share an access key with your contact. It can be a digital version sent electronically, or you can print a copy or save it as a screenshot or PDF.

Take note that there are some types of files you won’t be able to pass on — including digital rights-protected music, movies and passwords stored in Apple’s password manager. Legacy contacts can only access a deceased user’s account for three years before Apple deletes the account.

Google

Google takes a different approach with its Inactive Account Manager, which allows you to share your data with someone if it notices that you’ve stopped using your account.

When setting it up, you need to decide how long Google should wait — from three to 18 months — before considering your account inactive. Once that time is up, Google can notify up to 10 people.

You can write a message informing them you’ve stopped using the account, and, optionally, include a link to download your data. You can choose what types of data they can access — including emails, photos, calendar entries and YouTube videos.

There’s also an option to automatically delete your account after three months of inactivity, so your contacts will have to download any data before that deadline.

Facebook and Instagram

Some social media platforms can preserve accounts for people who have died so that friends and family can honor their memories.

When users of Facebook or Instagram die, parent company Meta says it can memorialize the account if it gets a “valid request” from a friend or family member. Requests can be submitted through an online form.

The social media company strongly recommends Facebook users add a legacy contact to look after their memorial accounts. Legacy contacts can do things like respond to new friend requests and update pinned posts, but they can’t read private messages or remove or alter previous posts. You can only choose one person, who also has to have a Facebook account.

You can also ask Facebook or Instagram to delete a deceased user’s account if you’re a close family member or an executor. You’ll need to send in documents like a death certificate.

TikTok

The video-sharing platform says that if a user has died, people can submit a request to memorialize the account through the settings menu. Go to the Report a Problem section, then Account and profile, then Manage account, where you can report a deceased user.

Once an account has been memorialized, it will be labeled “Remembering.” No one will be able to log into the account, which prevents anyone from editing the profile or using the account to post new content or send messages.

X

It’s not possible to nominate a legacy contact on Elon Musk’s social media site. But family members or an authorized person can submit a request to deactivate a deceased user’s account.

Passwords

Besides the major online services, you’ll probably have dozens if not hundreds of other digital accounts that your survivors might need to access. You could just write all your login credentials down in a notebook and put it somewhere safe. But making a physical copy presents its own vulnerabilities. What if you lose track of it? What if someone finds it?

Instead, consider a password manager that has an emergency access feature. Password managers are digital vaults that you can use to store all your credentials. Some, like Keeper,Bitwarden and NordPass, allow users to nominate one or more trusted contacts who can access their keys in case of an emergency such as a death.

But there are a few catches: Those contacts also need to use the same password manager and you might have to pay for the service.

___

Is there a tech challenge you need help figuring out? Write to us at onetechtip@ap.org with your questions.

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Pediatric group says doctors should regularly screen kids for reading difficulties

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The Canadian Paediatric Society says doctors should regularly screen children for reading difficulties and dyslexia, calling low literacy a “serious public health concern” that can increase the risk of other problems including anxiety, low self-esteem and behavioural issues, with lifelong consequences.

New guidance issued Wednesday says family doctors, nurses, pediatricians and other medical professionals who care for school-aged kids are in a unique position to help struggling readers access educational and specialty supports, noting that identifying problems early couldhelp kids sooner — when it’s more effective — as well as reveal other possible learning or developmental issues.

The 10 recommendations include regular screening for kids aged four to seven, especially if they belong to groups at higher risk of low literacy, including newcomers to Canada, racialized Canadians and Indigenous Peoples. The society says this can be done in a two-to-three-minute office-based assessment.

Other tips encourage doctors to look for conditions often seen among poor readers such as attention-deficit hyperactivity disorder; to advocate for early literacy training for pediatric and family medicine residents; to liaise with schools on behalf of families seeking help; and to push provincial and territorial education ministries to integrate evidence-based phonics instruction into curriculums, starting in kindergarten.

Dr. Scott McLeod, one of the authors and chair of the society’s mental health and developmental disabilities committee, said a key goal is to catch kids who may be falling through the cracks and to better connect families to resources, including quicker targeted help from schools.

“Collaboration in this area is so key because we need to move away from the silos of: everything educational must exist within the educational portfolio,” McLeod said in an interview from Calgary, where he is a developmental pediatrician at Alberta Children’s Hospital.

“Reading, yes, it’s education, but it’s also health because we know that literacy impacts health. So I think that a statement like this opens the window to say: Yes, parents can come to their health-care provider to get advice, get recommendations, hopefully start a collaboration with school teachers.”

McLeod noted that pediatricians already look for signs of low literacy in young children by way of a commonly used tool known as the Rourke Baby Record, which offers a checklist of key topics, such as nutrition and developmental benchmarks, to cover in a well-child appointment.

But he said questions about reading could be “a standing item” in checkups and he hoped the society’s statement to medical professionals who care for children “enhances their confidence in being a strong advocate for the child” while spurring partnerships with others involved in a child’s life such as teachers and psychologists.

The guidance said pediatricians also play a key role in detecting and monitoring conditions that often coexist with difficulty reading such as attention-deficit hyperactivity disorder, but McLeod noted that getting such specific diagnoses typically involves a referral to a specialist, during which time a child continues to struggle.

He also acknowledged that some schools can be slow to act without a specific diagnosis from a specialist, and even then a child may end up on a wait list for school interventions.

“Evidence-based reading instruction shouldn’t have to wait for some of that access to specialized assessments to occur,” he said.

“My hope is that (by) having an existing statement or document written by the Canadian Paediatric Society … we’re able to skip a few steps or have some of the early interventions present,” he said.

McLeod added that obtaining specific assessments from medical specialists is “definitely beneficial and advantageous” to know where a child is at, “but having that sort of clear, thorough assessment shouldn’t be a barrier to intervention starting.”

McLeod said the society was partly spurred to act by 2022’s “Right to Read Inquiry Report” from the Ontario Human Rights Commission, which made 157 recommendations to address inequities related to reading instruction in that province.

He called the new guidelines “a big reminder” to pediatric providers, family doctors, school teachers and psychologists of the importance of literacy.

“Early identification of reading difficulty can truly change the trajectory of a child’s life.”

This report by The Canadian Press was first published Oct. 23, 2024.

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