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People with dementia among hardest hit by COVID-19 health restrictions – CBC.ca

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Before COVID-19, Lyne Gauthier did her best to keep her husband’s mind from slipping away by organizing activities they had enjoyed together before he was diagnosed with early-onset Alzheimer’s disease.

She would visit the long term facility where Yves Dessureault, 66, has lived for three years and take him on simple outings.

“We’d go grocery shopping, go out for an ice cream cone,” said Gauthier. Sometimes they would just “listen to music and dance.”

But then the coronavirus hit, and there were no more outings.

There were also no more services like pet therapy or music therapy within the facility due to the pandemic. 

Gauthier says she has watched her husband deteriorate dramatically in the past six months. He’s now considered to be in the late stages of Alzheimer’s.

“I think COVID has really fast-tracked the progression of his symptoms,” she said.

Lyne Gauthier has watched her husband slip further and further away amid restrictions limiting family visits, outings, and therapeutic connections with the outside world. 3:26

Gauthier feels the health rules that curtailed their outings and deprived Dessureault of face-to-face contact robbed him of precious time as a husband, father and grandfather.

At his care home, there is little mingling these days and many residents eat their meals in their rooms.

The social isolation has left him more fragile, both physically and emotionally, said Gauthier.

Since the spring, she says, Dessureault appears more upset and anxious. His balance has gotten worse and even the simplest words have lost their meaning.

“If I want to show him where we’d like to sit, I need to tap the seat and do more gestures,” said Gauthier.

“There is a lot he can’t do anymore.”

Worsening symptoms linked to lockdowns

During the pandemic, many residents in long-term care experienced rapid cognitive decline, increased depression and more behavioural symptoms such as wandering and agitation, said Dr. Isabelle Vedel, a public health physician and associate professor in McGill University’s Department of Family Medicine.

McGill University’s Dr. Isabelle Vedel is leading a research project that will examine the impact of the pandemic on people living with dementia. (McGill University)

There is some preliminary research from the United States and the U.K. suggesting people with dementia were hit the hardest by the virus. 

Not only were they at an increased risk of being infected and of dying from COVID-19, but there were thousands of so-called excess deaths — meaning many more people died than the average for the same period in previous years.

Vedel fears the same will be true in Canada.

“People living in long-term care were extremely affected by the pandemic,” said Vedel. “Eighty per cent of the deaths happened in long-term care in Canada, and we know that approximately 80 per cent of people in long-term care have dementia.”

With funding from the Canadian Institutes for Health Research, Vedel is leading a research project in collaboration with Alzheimer’s societies across Canada that will measure the deaths of people with dementia during the pandemic.

It will also examine what impact the disruption of services and access to health care may have had on their lives.

For instance, during the first wave of the pandemic, Quebec feared hospitals would be overrun, so long-term care facilities were asked not to send people to the ER, said Vedel.

“It’s very probable that even though they had acute illnesses, they were not sent to the emergency department, so they didn’t receive the appropriate care they needed.”

Lessons for the 2nd wave

Maintaining services as much as possible during subsequent waves of the virus is paramount, Vedel said.

People with dementia rely on home care, community services, family physicians and caregivers. If there are obstacles to getting these services, people with dementia will decline and fall between the cracks, she said.

“We have to make an extra effort for them and make sure that they can be well cared for during the pandemic,” said Vedel.

She expects the research group will have statistics and recommendations in the spring.

Disruptions, reimposed restrictions

With parts of Canada now firmly in a second wave of the pandemic, all the changing health precautions and disruption can be especially distressing for people with dementia.

In Quebec, for instance, more and more regions are in red zones, where visits are once again limited in long-term care homes and private seniors’ residences. The partial lockdown also means many programs are suspended.

The goal is to limit contacts and keep the virus from sweeping through those facilities as it did in the first wave.

The directive to wear masks or face coverings to slow the spread poses a problem for these patients because it’s harder to read facial expressions, which they rely on to communicate and interact.

Many of the outings Gauthier and her husband enjoyed, like going out for an ice cream, were curtailed due to COVID-19 public health restrictions. (Submitted by Lyne Gauthier)

Overmedication is another problem: As patients get more agitated, more medication is being prescribed, including anti-psychotic drugs to calm them down, said Nouha Ben Gaied, the director of research and development for the Federation of Quebec Alzheimer Societies.

These drugs, “are inappropriate to use for people with dementia and they can cause more harm than benefits” said Ben Gaied.

Ben Gaied hopes Quebec’s health ministry has learned lessons from the first wave.

Nouha Ben Gaied, director of research and development for the Federation of Quebec Alzheimer Societies, said people with dementia are being prescribed more medication to keep them calm during the pandemic. (Dave St-Amant/CBC)

A spokesperson for the ministry said it has introduced measures to better protect this population and reduce the number of excess deaths.

That includes better access to a family doctor and improving the transition between primary care and specialized services, said Marie-Louise Harvey.

The government has also recruited nearly 10,000 new patient attendants, about 7,000 of whom are already working in the system. The rest are still in training.

The province has asked long-term care homes to limit the movement of employees between long-term care homes as much as possible.

Infection control and prevention is also being closely watched. 

Even so, since September, some of the new outbreaks in long-term care homes or private seniors’ residences in Quebec have been in units for people with a cognitive impairment like Alzheimer’s or dementia. 

‘He deserves better’

Gauthier’s greatest fear is her husband getting COVID.

She’s concerned about the high number of cases in Quebec, and what will happen to her husband if the partial lockdown is extended beyond the end of the month.

She’s doing everything she can to help her husband connect, though now that his care home is in a red zone, all she can offer are video chats with family, walks on the grounds or jaunts in the car to listen to music.

One of the activities that still makes Dessureault light up, she says, is a visit with his grandchildren — even if it is through a window or on FaceTime. Dessureault loves children, she says, and seeing them brings out his goofy, playful side.

“I find my husband for a few more seconds, a minute. It’s as if my husband is back,” said Gauthier, fighting to hold back tears. “The emotions are there. They connect. It’s just simple.”

Dessureault gets a visit from his grandchildren through the window of his care home. (Submitted by Lyne Gauthier)

She says she knows he’s still there, underneath the disease, but his quality of life has spiralled downward during the pandemic.

“He deserves better,” said Gauthier, who sometimes finds it hard to keep her spirits up.

“As a society, we can do better.”

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What’s the greatest holiday gift: lips, hair, skin? Give the gift of great skin this holiday season

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Give the gift of great skin this holiday season

Skinstitut Holiday Gift Kits take the stress out of gifting

Toronto, October 31, 2024 – Beauty gifts are at the top of holiday wish lists this year, and Laser Clinics Canada, a leader in advanced beauty treatments and skincare, is taking the pressure out of seasonal shopping. Today, Laser Clincs Canada announces the arrival of its 2024 Holiday Gift Kits, courtesy of Skinstitut, the exclusive skincare line of Laser Clinics Group.

In time for the busy shopping season, the limited-edition Holiday Gifts Kits are available in Laser Clinics locations in the GTA and Ottawa. Clinics are conveniently located in popular shopping centers, including Hillcrest Mall, Square One, CF Sherway Gardens, Scarborough Town Centre, Rideau Centre, Union Station and CF Markville. These limited-edition Kits are available on a first come, first served basis.

“These kits combine our best-selling products, bundled to address the most relevant skin concerns we’re seeing among our clients,” says Christina Ho, Senior Brand & LAM Manager at Laser Clinics Canada. “With several price points available, the kits offer excellent value and suit a variety of gift-giving needs, from those new to cosmeceuticals to those looking to level up their skincare routine. What’s more, these kits are priced with a savings of up to 33 per cent so gift givers can save during the holiday season.

There are two kits to select from, each designed to address key skin concerns and each with a unique theme — Brightening Basics and Hydration Heroes.

Brightening Basics is a mix of everyday essentials for glowing skin for all skin types. The bundle comes in a sleek pink, reusable case and includes three full-sized products: 200ml gentle cleanser, 50ml Moisture Defence (normal skin) and 30ml1% Hyaluronic Complex Serum. The Brightening Basics kit is available at $129, a saving of 33 per cent.

Hydration Heroes is a mix of hydration essentials and active heroes that cater to a wide variety of clients. A perfect stocking stuffer, this bundle includes four deluxe products: Moisture 15 15 ml Defence for normal skin, 10 ml 1% Hyaluronic Complex Serum, 10 ml Retinol Serum and 50 ml Expert Squalane Cleansing Oil. The kit retails at $59.

In addition to the 2024 Holiday Gifts Kits, gift givers can easily add a Laser Clinic Canada gift card to the mix. Offering flexibility, recipients can choose from a wide range of treatments offered by Laser Clinics Canada, or they can expand their collection of exclusive Skinstitut products.

 

Brightening Basics 2024 Holiday Gift Kit by Skinstitut, available exclusively at Laser Clincs Canada clinics and online at skinstitut.ca.

Hydration Heroes 2024 Holiday Gift Kit by Skinstitut – available exclusively at Laser Clincs Canada clinics and online at skinstitut.ca.

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Here is how to prepare your online accounts for when you die

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LONDON (AP) — Most people have accumulated a pile of data — selfies, emails, videos and more — on their social media and digital accounts over their lifetimes. What happens to it when we die?

It’s wise to draft a will spelling out who inherits your physical assets after you’re gone, but don’t forget to take care of your digital estate too. Friends and family might treasure files and posts you’ve left behind, but they could get lost in digital purgatory after you pass away unless you take some simple steps.

Here’s how you can prepare your digital life for your survivors:

Apple

The iPhone maker lets you nominate a “ legacy contact ” who can access your Apple account’s data after you die. The company says it’s a secure way to give trusted people access to photos, files and messages. To set it up you’ll need an Apple device with a fairly recent operating system — iPhones and iPads need iOS or iPadOS 15.2 and MacBooks needs macOS Monterey 12.1.

For iPhones, go to settings, tap Sign-in & Security and then Legacy Contact. You can name one or more people, and they don’t need an Apple ID or device.

You’ll have to share an access key with your contact. It can be a digital version sent electronically, or you can print a copy or save it as a screenshot or PDF.

Take note that there are some types of files you won’t be able to pass on — including digital rights-protected music, movies and passwords stored in Apple’s password manager. Legacy contacts can only access a deceased user’s account for three years before Apple deletes the account.

Google

Google takes a different approach with its Inactive Account Manager, which allows you to share your data with someone if it notices that you’ve stopped using your account.

When setting it up, you need to decide how long Google should wait — from three to 18 months — before considering your account inactive. Once that time is up, Google can notify up to 10 people.

You can write a message informing them you’ve stopped using the account, and, optionally, include a link to download your data. You can choose what types of data they can access — including emails, photos, calendar entries and YouTube videos.

There’s also an option to automatically delete your account after three months of inactivity, so your contacts will have to download any data before that deadline.

Facebook and Instagram

Some social media platforms can preserve accounts for people who have died so that friends and family can honor their memories.

When users of Facebook or Instagram die, parent company Meta says it can memorialize the account if it gets a “valid request” from a friend or family member. Requests can be submitted through an online form.

The social media company strongly recommends Facebook users add a legacy contact to look after their memorial accounts. Legacy contacts can do things like respond to new friend requests and update pinned posts, but they can’t read private messages or remove or alter previous posts. You can only choose one person, who also has to have a Facebook account.

You can also ask Facebook or Instagram to delete a deceased user’s account if you’re a close family member or an executor. You’ll need to send in documents like a death certificate.

TikTok

The video-sharing platform says that if a user has died, people can submit a request to memorialize the account through the settings menu. Go to the Report a Problem section, then Account and profile, then Manage account, where you can report a deceased user.

Once an account has been memorialized, it will be labeled “Remembering.” No one will be able to log into the account, which prevents anyone from editing the profile or using the account to post new content or send messages.

X

It’s not possible to nominate a legacy contact on Elon Musk’s social media site. But family members or an authorized person can submit a request to deactivate a deceased user’s account.

Passwords

Besides the major online services, you’ll probably have dozens if not hundreds of other digital accounts that your survivors might need to access. You could just write all your login credentials down in a notebook and put it somewhere safe. But making a physical copy presents its own vulnerabilities. What if you lose track of it? What if someone finds it?

Instead, consider a password manager that has an emergency access feature. Password managers are digital vaults that you can use to store all your credentials. Some, like Keeper,Bitwarden and NordPass, allow users to nominate one or more trusted contacts who can access their keys in case of an emergency such as a death.

But there are a few catches: Those contacts also need to use the same password manager and you might have to pay for the service.

___

Is there a tech challenge you need help figuring out? Write to us at onetechtip@ap.org with your questions.

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Pediatric group says doctors should regularly screen kids for reading difficulties

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The Canadian Paediatric Society says doctors should regularly screen children for reading difficulties and dyslexia, calling low literacy a “serious public health concern” that can increase the risk of other problems including anxiety, low self-esteem and behavioural issues, with lifelong consequences.

New guidance issued Wednesday says family doctors, nurses, pediatricians and other medical professionals who care for school-aged kids are in a unique position to help struggling readers access educational and specialty supports, noting that identifying problems early couldhelp kids sooner — when it’s more effective — as well as reveal other possible learning or developmental issues.

The 10 recommendations include regular screening for kids aged four to seven, especially if they belong to groups at higher risk of low literacy, including newcomers to Canada, racialized Canadians and Indigenous Peoples. The society says this can be done in a two-to-three-minute office-based assessment.

Other tips encourage doctors to look for conditions often seen among poor readers such as attention-deficit hyperactivity disorder; to advocate for early literacy training for pediatric and family medicine residents; to liaise with schools on behalf of families seeking help; and to push provincial and territorial education ministries to integrate evidence-based phonics instruction into curriculums, starting in kindergarten.

Dr. Scott McLeod, one of the authors and chair of the society’s mental health and developmental disabilities committee, said a key goal is to catch kids who may be falling through the cracks and to better connect families to resources, including quicker targeted help from schools.

“Collaboration in this area is so key because we need to move away from the silos of: everything educational must exist within the educational portfolio,” McLeod said in an interview from Calgary, where he is a developmental pediatrician at Alberta Children’s Hospital.

“Reading, yes, it’s education, but it’s also health because we know that literacy impacts health. So I think that a statement like this opens the window to say: Yes, parents can come to their health-care provider to get advice, get recommendations, hopefully start a collaboration with school teachers.”

McLeod noted that pediatricians already look for signs of low literacy in young children by way of a commonly used tool known as the Rourke Baby Record, which offers a checklist of key topics, such as nutrition and developmental benchmarks, to cover in a well-child appointment.

But he said questions about reading could be “a standing item” in checkups and he hoped the society’s statement to medical professionals who care for children “enhances their confidence in being a strong advocate for the child” while spurring partnerships with others involved in a child’s life such as teachers and psychologists.

The guidance said pediatricians also play a key role in detecting and monitoring conditions that often coexist with difficulty reading such as attention-deficit hyperactivity disorder, but McLeod noted that getting such specific diagnoses typically involves a referral to a specialist, during which time a child continues to struggle.

He also acknowledged that some schools can be slow to act without a specific diagnosis from a specialist, and even then a child may end up on a wait list for school interventions.

“Evidence-based reading instruction shouldn’t have to wait for some of that access to specialized assessments to occur,” he said.

“My hope is that (by) having an existing statement or document written by the Canadian Paediatric Society … we’re able to skip a few steps or have some of the early interventions present,” he said.

McLeod added that obtaining specific assessments from medical specialists is “definitely beneficial and advantageous” to know where a child is at, “but having that sort of clear, thorough assessment shouldn’t be a barrier to intervention starting.”

McLeod said the society was partly spurred to act by 2022’s “Right to Read Inquiry Report” from the Ontario Human Rights Commission, which made 157 recommendations to address inequities related to reading instruction in that province.

He called the new guidelines “a big reminder” to pediatric providers, family doctors, school teachers and psychologists of the importance of literacy.

“Early identification of reading difficulty can truly change the trajectory of a child’s life.”

This report by The Canadian Press was first published Oct. 23, 2024.

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