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The pandemic makes my breast cancer treatment longer and lonelier – CBC.ca

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This First Person article is the experience of Ann Cavlovic, a writer based in western Quebec. For more information about CBC’s First Person stories, please see the FAQ.

A cancer diagnosis is brutal at the best of times, let alone at the start of a pandemic. Yet people still seem surprised by how the timing of my diagnosis affected my treatment.

Surely, they think, a life-threatening tumour would push me to the front of the line.

The reality is that we’re still digging out of a backlog of elective surgeries that were cancelled before we understood how this virus worked. That term “elective” is deceptive; cancer surgery is not “elective” like a class in school. It just means you likely won’t die if surgery happens on Thursday instead of Tuesday unlike a burst appendix.

For the type of breast cancer I had, it’s normal to start with a mastectomy. Then, based on test results, determine whether chemotherapy or hormone treatments are needed. But I was scheduled to first start chemotherapy to remove one name from the operating room’s waiting list.

I protested, saying there’s a decent chance I might not need chemotherapy, which is powerful but causes all kinds of other damage to the body.

After a lot of stressful phone calls — and I believe a herculean effort by my surgeon — I did get a spot for my surgery. But I had to wait three months — the maximum that’s considered an acceptable risk. Every day during that wait, whenever I felt a twinge or ache, I worried that was the moment the cancer was spreading to my bones or organs. At that point, the cancer is no longer curable.

Ann Cavlovic has a blanket wrapped around her while awaiting her double mastectomy in the summer of 2020. (Submitted by Ann Cavlovic)

In the end, I only received hormone therapy and avoided an unnecessary, brutally harsh treatment. And I’m far from the only one who’s had to face suboptimal or disrupted treatments in this pandemic.

Even when things were going according to plan, there were delays getting tests and appointments. But far scarier were the times when I’d finally show up outside the hospital, only to find someone in the lineup irate about putting on a mask. Dodging their cloud of vitriol felt like a deadly combat mission. Cancer, and its treatments, make you more vulnerable to COVID.

The loneliness of it all

The reality is, one of the hardest parts of cancer diagnosis in the pandemic, is going through so much of this alone. 

My family doctor delivered the diagnosis over the phone. Whenever I received bad news at the hospital, I walked to my car without holding anyone’s hand. The day of my surgery in July 2020, I lay on a gurney, my chest marked up with Sharpie where the incisions would be to remove my breasts, and waited for hours staring at the chair no one was allowed to sit in.

A comforting presence at such times is not trivial. It can make the difference between whether or not your brain processes an event as traumatic. Depression is common after cancer treatment. My mental health hit the floor.

My friends were wonderful and sent over meal delivery kits for months. But in that year before we were vaccinated, they couldn’t come over for a hug. They were also drained from the pandemic.

Caregivers, too, are affected. My partner, as my main caregiver, needed to vent his understandably complicated feelings. Although I was the last person he should do that with at certain times, his options to see friends or family were limited. 

Ann Cavlovic and her fellow members of the ‘COVID Cancer Club’ met together in person for the first time in 2021 after meeting online more than a year earlier. (Submitted by Ann Cavlovic)

Yet there have been some pleasantly surprising signs of resiliency in our systems. Thanks to the first fully online breast cancer support group in my city, I made meaningful friendships with other women. We’ve shared our deepest fears and intimacies over Zoom, and finally met in person in my backyard this past summer. I even made a new best friend, or “breastie.”  Yet, because she is more immunocompromised, we have never once hugged. 

Recently, I had a mammogram to see whether the cancer has recurred. The technician shoved my reconstructed body into the machine with a brusqueness I couldn’t fault her for, as she seemed so clearly on the edge of burning out herself.

I walked into the hospital for this mammogram three months later than the normal testing schedule. But now, this wait is so long partly because remaining hospital staff are overburdened with COVID protocols and patients who, at this point, are largely unvaccinated.

While waiting my turn in a blue gown, I stared down the corridor at other patients spaced two metres apart. The vaccine hesitant don’t see this, I thought to myself. What would happen if they could see inside a hospital now? If they knew how every COVID hospitalization has ripple effects on people with cancer and other diseases. Would it tip the scales, for some at least?

As I write this, my wait for results from that mammogram has reached the six-week mark. I’m grateful for the health-care professionals who are working so very hard. And I’m hoping for the best.


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Older patients, non-English speakers more likely to be harmed in hospital: report

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Patients who are older, don’t speak English, and don’t have a high school education are more likely to experience harm during a hospital stay in Canada, according to new research.

The Canadian Institute for Health Information measured preventableharmful events from 2023 to 2024, such as bed sores and medication errors,experienced by patients who received acute care in hospital.

The research published Thursday shows patients who don’t speak English or French are 30 per cent more likely to experience harm. Patients without a high school education are 20 per cent more likely to endure harm compared to those with higher education levels.

The report also found that patients 85 and older are five times more likely to experience harm during a hospital stay compared to those under 20.

“The goal of this report is to get folks thinking about equity as being a key dimension of the patient safety effort within a hospital,” says Dana Riley, an author of the report and a program lead on CIHI’s population health team.

When a health-care provider and a patient don’t speak the same language, that can result in the administration of a wrong test or procedure, research shows. Similarly, Riley says a lower level of education is associated with a lower level of health literacy, which can result in increased vulnerability to communication errors.

“It’s fairly costly to the patient and it’s costly to the system,” says Riley, noting the average hospital stay for a patient who experiences harm is four times more expensive than the cost of a hospital stay without a harmful event – $42,558 compared to $9,072.

“I think there are a variety of different reasons why we might start to think about patient safety, think about equity, as key interconnected dimensions of health-care quality,” says Riley.

The analysis doesn’t include data on racialized patients because Riley says pan-Canadian data was not available for their research. Data from Quebec and some mental health patients was also excluded due to differences in data collection.

Efforts to reduce patient injuries at one Ontario hospital network appears to have resulted in less harm. Patient falls at Mackenzie Health causing injury are down 40 per cent, pressure injuries have decreased 51 per cent, and central line-associated bloodstream infections, such as IV therapy, have been reduced 34 per cent.

The hospital created a “zero harm” plan in 2019 to reduce errors after a hospital survey revealed low safety scores. They integrated principles used in aviation and nuclear industries, which prioritize safety in complex high-risk environments.

“The premise is first driven by a cultural shift where people feel comfortable actually calling out these events,” says Mackenzie Health President and Chief Executive Officer Altaf Stationwala.

They introduced harm reduction training and daily meetings to discuss risks in the hospital. Mackenzie partnered with virtual interpreters that speak 240 languages and understand medical jargon. Geriatric care nurses serve the nearly 70 per cent of patients over the age of 75, and staff are encouraged to communicate as frequently as possible, and in plain language, says Stationwala.

“What we do in health care is we take control away from patients and families, and what we know is we need to empower patients and families and that ultimately results in better health care.”

This report by The Canadian Press was first published Oct. 17, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

The Canadian Press. All rights reserved.

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Alberta to launch new primary care agency by next month in health overhaul

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CALGARY – Alberta’s health minister says a new agency responsible for primary health care should be up and running by next month.

Adriana LaGrange says Primary Care Alberta will work to improve Albertans’ access to primary care providers like family doctors or nurse practitioners, create new models of primary care and increase access to after-hours care through virtual means.

Her announcement comes as the provincial government continues to divide Alberta Health Services into four new agencies.

LaGrange says Alberta Health Services hasn’t been able to focus on primary health care, and has been missing system oversight.

The Alberta government’s dismantling of the health agency is expected to include two more organizations responsible for hospital care and continuing care.

Another new agency, Recovery Alberta, recently took over the mental health and addictions portfolio of Alberta Health Services.

This report by The Canadian Press was first published Oct. 15, 2024.

The Canadian Press. All rights reserved.

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Experts urge streamlined, more compassionate miscarriage care in Canada

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Rana Van Tuyl was about 12 weeks pregnant when she got devastating news at her ultrasound appointment in December 2020.

Her fetus’s heartbeat had stopped.

“We were both shattered,” says Van Tuyl, who lives in Nanaimo, B.C., with her partner. Her doctor said she could surgically or medically pass the pregnancy and she chose the medical option, a combination of two drugs taken at home.

“That was the last I heard from our maternity physician, with no further followup,” she says.

But complications followed. She bled for a month and required a surgical procedure to remove pregnancy tissue her body had retained.

Looking back, Van Tuyl says she wishes she had followup care and mental health support as the couple grieved.

Her story is not an anomaly. Miscarriages affect one in five pregnancies in Canada, yet there is often a disconnect between the medical view of early pregnancy loss as something that is easily managed and the reality of the patients’ own traumatizing experiences, according to a paper published Tuesday in the Canadian Medical Association Journal.

An accompanying editorial says it’s time to invest in early pregnancy assessment clinics that can provide proper care during and after a miscarriage, which can have devastating effects.

The editorial and a review of medical literature on early pregnancy loss say patients seeking help in emergency departments often receive “suboptimal” care. Non-critical miscarriage cases drop to the bottom of the triage list, resulting in longer wait times that make patients feel like they are “wasting” health-care providers’ time. Many of those patients are discharged without a followup plan, the editorial says.

But not all miscarriages need to be treated in the emergency room, says Dr. Modupe Tunde-Byass, one of the authors of the literature review and an obstetrician/gynecologist at Toronto’s North York General Hospital.

She says patients should be referred to early pregnancy assessment clinics, which provide compassionate care that accounts for the psychological impact of pregnancy loss – including grief, guilt, anxiety and post-traumatic stress.

But while North York General Hospital and a patchwork of other health-care providers in the country have clinics dedicated to miscarriage care, Tunde-Byass says that’s not widely adopted – and it should be.

She’s been thinking about this gap in the Canadian health-care system for a long time, ever since her medical training almost four decades ago in the United Kingdom, where she says early pregnancy assessment centres are common.

“One of the things that we did at North York was to have a clinic to provide care for our patients, and also to try to bridge that gap,” says Tunde-Byass.

Provincial agency Health Quality Ontario acknowledged in 2019 the need for these services in a list of ways to better manage early pregnancy complications and loss.

“Five years on, little if any progress has been made toward achieving this goal,” Dr. Catherine Varner, an emergency physician, wrote in the CMAJ editorial. “Early pregnancy assessment services remain a pipe dream for many, especially in rural Canada.”

The quality standard released in Ontario did, however, prompt a registered nurse to apply for funding to open an early pregnancy assessment clinic at St. Joseph’s Healthcare Hamilton in 2021.

Jessica Desjardins says that after taking patient referrals from the hospital’s emergency room, the team quickly realized that they would need a bigger space and more people to provide care. The clinic now operates five days a week.

“We’ve been often hearing from our patients that early pregnancy loss and experiencing early pregnancy complications is a really confusing, overwhelming, isolating time for them, and (it) often felt really difficult to know where to go for care and where to get comprehensive, well-rounded care,” she says.

At the Hamilton clinic, Desjardins says patients are brought into a quiet area to talk and make decisions with providers – “not only (from) a physical perspective, but also keeping in mind the psychosocial piece that comes along with loss and the grief that’s a piece of that.”

Ashley Hilliard says attending an early pregnancy assessment clinic at The Ottawa Hospital was the “best case scenario” after the worst case scenario.

In 2020, she was about eight weeks pregnant when her fetus died and she hemorrhaged after taking medication to pass the pregnancy at home.

Shortly after Hilliard was rushed to the emergency room, she was assigned an OB-GYN at an early pregnancy assessment clinic who directed and monitored her care, calling her with blood test results and sending her for ultrasounds when bleeding and cramping persisted.

“That was super helpful to have somebody to go through just that, somebody who does this all the time,” says Hilliard.

“It was really validating.”

This report by The Canadian Press was first published Oct. 15, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

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