Victoria family focuses on 'letting go, enjoying time together' after dad gets dementia - Surrey Now-Leader | Canada News Media
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Victoria family focuses on 'letting go, enjoying time together' after dad gets dementia – Surrey Now-Leader

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When Walter Strauss, a certified accountant — who with his wife, had spent years creating a magazine with over a million subscribers — started to have trouble with numbers his family knew something was wrong.

“Nobody wanted to believe it, but something wasn’t right,” says Strauss’s daughter, Helga. The family ended up moving back to Canada from the Bahamas to be closer to family. It wasn’t until a year later, in 2018, when Strauss received a formal diagnosis after a long process of tests.

That’s how dementia starts to present itself in people says Tara Speirs with the Alzheimer Society of B.C.

“All of us from time to time forget things,” she says, adding it’s more significant forgetfulness that can be indicative of the disease. “[For example] the person who always starts their day by making coffee and wakes up one morning [not knowing] how to work the coffee maker.”

READ ALSO: Video guide on dealing with dementia snags Island Health two awards

Speirs facilitates a fitness and social program for people living with early-stage dementia and their care partners called Minds in Motion, where she met Strauss.

“When I approached Walter about being a spokesperson for the campaign, he thought about it and the first thing he said to me was ‘Can I tell people I don’t want them to tell me to fight it? I just want to be me’,” says Speirs.

It’s one of the biggest messages the Strauss and Speirs want to share with the public during Alzheimer’s Awareness Month — just because you’ve been diagnosed with the disease, doesn’t mean you can no longer live well.

Since Strauss’s diagnosis, he’s developed an interest in music and even takes line dancing classes in addition to the Minds in Motion class. Helga has learned she can’t correct Strauss when he forgets something and says it’s become about “letting go and enjoying their time together.”’

One in four Canadians surveyed say they would feel ashamed or embarrassed if they had dementia, which is what spurred the need for the Alzheimer Society’s new campaign: I live with dementia, let me help you understand.

Speirs explains there are many kinds of dementia, but says the thing they all have in common is the brain cells and neuropathways in people living with the disease, are dying. The cause of dementia is unknown, with only a small portion of the population diagnosed with the genetic disease Alzheimer’s.

READ ALSO: 6 myths people still believe about dementia

According to the Alzheimer Society, more than half a million people in Canada are living with dementia today, with many more family members who provide care affected as well. Research shows that in the next 12 years, nearly a million Canadians will be living with dementia.

One of the biggest factors leading to the stigmatization of dementia, says Speirs, is how isolating it can be once you’ve been diagnosed. For the first half of the Minds in Motion class, a fitness instructor leads participants in 45 minutes of seated exercise, but the last 45 minutes are focused on connection.

Speirs leads the group in conversation focusing on seasonal topics, most recently the theme was what winter and the holidays were like during the participants’ youth. Another favorite is music bingo with songs from the 1950s.

“I’ve been doing this job for four years, and it’s really difficult to see the disease progressing,” says Spiers. “It’s not a nice disease, and it’s a really cruel reality so we just try to maintain quality of life for as long as possible because there is no cure.”

Minds in Motion is run out of six recreation centers across Greater Victoria, for more information on the program visit bit.ly/2FX5QgZ.

The Alzheimer Society also offers many other support services for those living with dementia and their care partners, such as an outreach call system, a first link dementia helpline — which offers services in Cantonese, Punjabi and Mandarin — along with support groups. For more information on the Society visit alzheimer.ca/en/bc .



kendra.crighton@blackpress.ca

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How many Nova Scotians are on the doctor wait-list? Number hit 160,000 in June

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HALIFAX – The Nova Scotia government says it could be months before it reveals how many people are on the wait-list for a family doctor.

The head of the province’s health authority told reporters Wednesday that the government won’t release updated data until the 160,000 people who were on the wait-list in June are contacted to verify whether they still need primary care.

Karen Oldfield said Nova Scotia Health is working on validating the primary care wait-list data before posting new numbers, and that work may take a matter of months. The most recent public wait-list figures are from June 1, when 160,234 people, or about 16 per cent of the population, were on it.

“It’s going to take time to make 160,000 calls,” Oldfield said. “We are not talking weeks, we are talking months.”

The interim CEO and president of Nova Scotia Health said people on the list are being asked where they live, whether they still need a family doctor, and to give an update on their health.

A spokesperson with the province’s Health Department says the government and its health authority are “working hard” to turn the wait-list registry into a useful tool, adding that the data will be shared once it is validated.

Nova Scotia’s NDP are calling on Premier Tim Houston to immediately release statistics on how many people are looking for a family doctor. On Tuesday, the NDP introduced a bill that would require the health minister to make the number public every month.

“It is unacceptable for the list to be more than three months out of date,” NDP Leader Claudia Chender said Tuesday.

Chender said releasing this data regularly is vital so Nova Scotians can track the government’s progress on its main 2021 campaign promise: fixing health care.

The number of people in need of a family doctor has more than doubled between the 2021 summer election campaign and June 2024. Since September 2021 about 300 doctors have been added to the provincial health system, the Health Department said.

“We’ll know if Tim Houston is keeping his 2021 election promise to fix health care when Nova Scotians are attached to primary care,” Chender said.

This report by The Canadian Press was first published Sept. 11, 2024.

The Canadian Press. All rights reserved.

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Newfoundland and Labrador monitoring rise in whooping cough cases: medical officer

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ST. JOHN’S, N.L. – Newfoundland and Labrador‘s chief medical officer is monitoring the rise of whooping cough infections across the province as cases of the highly contagious disease continue to grow across Canada.

Dr. Janice Fitzgerald says that so far this year, the province has recorded 230 confirmed cases of the vaccine-preventable respiratory tract infection, also known as pertussis.

Late last month, Quebec reported more than 11,000 cases during the same time period, while Ontario counted 470 cases, well above the five-year average of 98. In Quebec, the majority of patients are between the ages of 10 and 14.

Meanwhile, New Brunswick has declared a whooping cough outbreak across the province. A total of 141 cases were reported by last month, exceeding the five-year average of 34.

The disease can lead to severe complications among vulnerable populations including infants, who are at the highest risk of suffering from complications like pneumonia and seizures. Symptoms may start with a runny nose, mild fever and cough, then progress to severe coughing accompanied by a distinctive “whooping” sound during inhalation.

“The public, especially pregnant people and those in close contact with infants, are encouraged to be aware of symptoms related to pertussis and to ensure vaccinations are up to date,” Newfoundland and Labrador’s Health Department said in a statement.

Whooping cough can be treated with antibiotics, but vaccination is the most effective way to control the spread of the disease. As a result, the province has expanded immunization efforts this school year. While booster doses are already offered in Grade 9, the vaccine is now being offered to Grade 8 students as well.

Public health officials say whooping cough is a cyclical disease that increases every two to five or six years.

Meanwhile, New Brunswick’s acting chief medical officer of health expects the current case count to get worse before tapering off.

A rise in whooping cough cases has also been reported in the United States and elsewhere. The Pan American Health Organization issued an alert in July encouraging countries to ramp up their surveillance and vaccination coverage.

This report by The Canadian Press was first published Sept. 10, 2024.

The Canadian Press. All rights reserved.

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