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Living life to the fullest with dementia – Winnipeg Free Press

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As a nurse, Tanis Rummery was dedicated to caring for others. Now she’s caring for herself and her dementia, living, shopping and driving on her own while challenging the stigma surrounding the disease.

“I’m going to speak up where I can,” said Rummery, 76, who was diagnosed with dementia in 2013.

More than 23,000 Manitobans have Alzheimer’s disease or another form of dementia. That number is growing at an alarming rate and is expected to hit 40,700 by 2038, the Alzheimer Society of Manitoba says.

When she realized something was wrong, Rummery went for a brain scan and discovered she had vascular dementia, a form of the disease that is caused by an impaired blood supply to the brain.

“I did a lot of crying,” she said. “I live alone with my cats.” Facing hard times on her own wasn’t new to the nurse who grew up “extremely poor” on a farm near Sperling and was widowed at a young age with two small children.

In 2014, Rummery reached out to the Alzheimer Society of Manitoba and joined a support group.

“It was such a healing thing,” she said. “I was processing the idea that I could still make it.”

The weekly group was an eye-opener, Rummery said.

She got to know a 51-year-old woman with Lewy body dementia, who would be mistaken for someone “on drugs, drinking or crazy,” she said.

“I thought, this is nuts,” she said.

So she decided to let people know about her vascular dementia but to keep living life to the fullest for as long as she can. She has a valid driver’s licence, two cats and is managing well in her own place. She has not had a traffic ticket or an accident, she said. “That doesn’t mean I don’t forget.”

What’s helping her stay on track now is her professional training and work habits. “As nurses, we had to chart every damn thing we did,” she said.

Now Rummery charts everything in her life, with a daily diary logging what she has done and what she needs to do to make sure nothing is forgotten. “The place is clean, my garbage is emptied.”

She drives herself to her weekly support group and runs errands. If she’s having trouble somewhere, she’ll quietly tell someone, “I have dementia — can you help me?

“It’s really nice to feel that I’m not afraid.”

The manager of her apartment building is aware of her dementia. Rummery said she knows that if she ever parks her car outside her designated stall, someone will report her to the manager. Staff at her bank and support people at the Alzheimer Society of Manitoba know she has dementia and what to do if there are signs that she’s not managing the disease any more.

“It will progress,” she said.

For now, she wants to focus on enjoying each day.

And Rummery knows how to live. When her two daughters left home, she did, too. After working as an ICU nurse at Victoria General Hospital, she went to Toronto, found a place to stay and started taking nursing contracts that interested her.

“I had no idea what my life would be… I was willing to try anything.” Rummery was the “set nurse” on a production starring Mr. T, cared for patients at a hospice in the early days of the AIDS crisis in Toronto, then worked in Saudi Arabia for two years.

She learned a lot about the world, including not to accept long contracts in unfamiliar places. After arriving in Saudi Arabia, the Persian Gulf War began. It was a restrictive society but full of discovery for the adventurer who had never travelled abroad.

She remembers getting a newspaper from the West that had former British leader Margaret Thatcher’s photo on the front page. It was torn out by officials in the Arab kingdom because it revealed too much of Thatcher’s skin.

“It was weird,” she laughed. “And it was so hot you could cook your potatoes on the sidewalk.” Rummery then took nursing contracts all over the United States and in remote northern Manitoba, which left a mark on her — literally. “I got an eagle tattoo.”

It was a sign of how much she loved working in the Indigenous community near Oxford House.

“I thought it was an amazing experience,” Rummery said from her Winnipeg home where she retired with no regrets.

“I enjoy these memories now. When they’re gone, it’ll be really sad.”

carol.sanders@freepress.mb.ca

Carol Sanders
Reporter

Carol Sanders’ reporting on newcomers to Canada has made international headlines, earned national recognition but most importantly it’s shared the local stories of the growing diversity of people calling Manitoba home.

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Whooping cough is at a decade-high level in US

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MILWAUKEE (AP) — Whooping cough is at its highest level in a decade for this time of year, U.S. health officials reported Thursday.

There have been 18,506 cases of whooping cough reported so far, the Centers for Disease Control and Prevention said. That’s the most at this point in the year since 2014, when cases topped 21,800.

The increase is not unexpected — whooping cough peaks every three to five years, health experts said. And the numbers indicate a return to levels before the coronavirus pandemic, when whooping cough and other contagious illnesses plummeted.

Still, the tally has some state health officials concerned, including those in Wisconsin, where there have been about 1,000 cases so far this year, compared to a total of 51 last year.

Nationwide, CDC has reported that kindergarten vaccination rates dipped last year and vaccine exemptions are at an all-time high. Thursday, it released state figures, showing that about 86% of kindergartners in Wisconsin got the whooping cough vaccine, compared to more than 92% nationally.

Whooping cough, also called pertussis, usually starts out like a cold, with a runny nose and other common symptoms, before turning into a prolonged cough. It is treated with antibiotics. Whooping cough used to be very common until a vaccine was introduced in the 1950s, which is now part of routine childhood vaccinations. It is in a shot along with tetanus and diphtheria vaccines. The combo shot is recommended for adults every 10 years.

“They used to call it the 100-day cough because it literally lasts for 100 days,” said Joyce Knestrick, a family nurse practitioner in Wheeling, West Virginia.

Whooping cough is usually seen mostly in infants and young children, who can develop serious complications. That’s why the vaccine is recommended during pregnancy, to pass along protection to the newborn, and for those who spend a lot of time with infants.

But public health workers say outbreaks this year are hitting older kids and teens. In Pennsylvania, most outbreaks have been in middle school, high school and college settings, an official said. Nearly all the cases in Douglas County, Nebraska, are schoolkids and teens, said Justin Frederick, deputy director of the health department.

That includes his own teenage daughter.

“It’s a horrible disease. She still wakes up — after being treated with her antibiotics — in a panic because she’s coughing so much she can’t breathe,” he said.

It’s important to get tested and treated with antibiotics early, said Dr. Kris Bryant, who specializes in pediatric infectious diseases at Norton Children’s in Louisville, Kentucky. People exposed to the bacteria can also take antibiotics to stop the spread.

“Pertussis is worth preventing,” Bryant said. “The good news is that we have safe and effective vaccines.”

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AP data journalist Kasturi Pananjady contributed to this report.

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The Associated Press Health and Science Department receives support from the Robert Wood Johnson Foundation. The AP is solely responsible for all content.

The Canadian Press. All rights reserved.

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Scientists show how sperm and egg come together like a key in a lock

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How a sperm and egg fuse together has long been a mystery.

New research by scientists in Austria provides tantalizing clues, showing fertilization works like a lock and key across the animal kingdom, from fish to people.

“We discovered this mechanism that’s really fundamental across all vertebrates as far as we can tell,” said co-author Andrea Pauli at the Research Institute of Molecular Pathology in Vienna.

The team found that three proteins on the sperm join to form a sort of key that unlocks the egg, allowing the sperm to attach. Their findings, drawn from studies in zebrafish, mice, and human cells, show how this process has persisted over millions of years of evolution. Results were published Thursday in the journal Cell.

Scientists had previously known about two proteins, one on the surface of the sperm and another on the egg’s membrane. Working with international collaborators, Pauli’s lab used Google DeepMind’s artificial intelligence tool AlphaFold — whose developers were awarded a Nobel Prize earlier this month — to help them identify a new protein that allows the first molecular connection between sperm and egg. They also demonstrated how it functions in living things.

It wasn’t previously known how the proteins “worked together as a team in order to allow sperm and egg to recognize each other,” Pauli said.

Scientists still don’t know how the sperm actually gets inside the egg after it attaches and hope to delve into that next.

Eventually, Pauli said, such work could help other scientists understand infertility better or develop new birth control methods.

The work provides targets for the development of male contraceptives in particular, said David Greenstein, a genetics and cell biology expert at the University of Minnesota who was not involved in the study.

The latest study “also underscores the importance of this year’s Nobel Prize in chemistry,” he said in an email.

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The Associated Press Health and Science Department receives support from the Howard Hughes Medical Institute’s Science and Educational Media Group. The AP is solely responsible for all content.

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Older patients, non-English speakers more likely to be harmed in hospital: report

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Patients who are older, don’t speak English, and don’t have a high school education are more likely to experience harm during a hospital stay in Canada, according to new research.

The Canadian Institute for Health Information measured preventableharmful events from 2023 to 2024, such as bed sores and medication errors,experienced by patients who received acute care in hospital.

The research published Thursday shows patients who don’t speak English or French are 30 per cent more likely to experience harm. Patients without a high school education are 20 per cent more likely to endure harm compared to those with higher education levels.

The report also found that patients 85 and older are five times more likely to experience harm during a hospital stay compared to those under 20.

“The goal of this report is to get folks thinking about equity as being a key dimension of the patient safety effort within a hospital,” says Dana Riley, an author of the report and a program lead on CIHI’s population health team.

When a health-care provider and a patient don’t speak the same language, that can result in the administration of a wrong test or procedure, research shows. Similarly, Riley says a lower level of education is associated with a lower level of health literacy, which can result in increased vulnerability to communication errors.

“It’s fairly costly to the patient and it’s costly to the system,” says Riley, noting the average hospital stay for a patient who experiences harm is four times more expensive than the cost of a hospital stay without a harmful event – $42,558 compared to $9,072.

“I think there are a variety of different reasons why we might start to think about patient safety, think about equity, as key interconnected dimensions of health-care quality,” says Riley.

The analysis doesn’t include data on racialized patients because Riley says pan-Canadian data was not available for their research. Data from Quebec and some mental health patients was also excluded due to differences in data collection.

Efforts to reduce patient injuries at one Ontario hospital network appears to have resulted in less harm. Patient falls at Mackenzie Health causing injury are down 40 per cent, pressure injuries have decreased 51 per cent, and central line-associated bloodstream infections, such as IV therapy, have been reduced 34 per cent.

The hospital created a “zero harm” plan in 2019 to reduce errors after a hospital survey revealed low safety scores. They integrated principles used in aviation and nuclear industries, which prioritize safety in complex high-risk environments.

“The premise is first driven by a cultural shift where people feel comfortable actually calling out these events,” says Mackenzie Health President and Chief Executive Officer Altaf Stationwala.

They introduced harm reduction training and daily meetings to discuss risks in the hospital. Mackenzie partnered with virtual interpreters that speak 240 languages and understand medical jargon. Geriatric care nurses serve the nearly 70 per cent of patients over the age of 75, and staff are encouraged to communicate as frequently as possible, and in plain language, says Stationwala.

“What we do in health care is we take control away from patients and families, and what we know is we need to empower patients and families and that ultimately results in better health care.”

This report by The Canadian Press was first published Oct. 17, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

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