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'My muscles forget': B.C. people talk about the impact of Parkinson's – Kelowna Capital News

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Documented as early as the 12th Century B.C. in Ancient Egypt, Parkinson’s disease (PD) was first extensively medically described in 1817 by English surgeon James Parkinson.

More than two centuries later, this progressive neurological disorder of the brain now affects more than 17,500 people in British Columbia and about 100,000 people across Canada.

As April marks Parkinson’s Awareness Month internationally, this time of the year presents a chance to educate the public about this incurable disease, which is projected to double globally by 2040.

Parkinson’s disease and its symptoms

Parkinson’s occurs when dopamine-producing cells in the brain deteriorate. Dopamine, an important neurotransmitter for nervous system functions, is responsible for regulating movements and emotions. The exact cause for the death of these cells remains unclear.

Individuals diagnosed with PD might exhibit common motor symptoms including tremors (shaking), slowness of movement, muscle stiffness, and impaired balance. Other less visible and non-motor symptoms frequently observed are fatigue, speaking difficulties, sleep disorders, and cognitive changes among other things. Some have also reported losing their sense of smell.

Despite the common symptoms associated with Parkinson’s disease, each individual’s experience varies greatly, with unique symptoms and requirements.

Researchers believe that Parkinson’s is likely caused by genetic and environmental factors. However, there’s still no clear understanding of what triggers the onset of the neurodegenerative disorder.

Commonly associated with older age, this progressive brain disease typically sees an increased risk of diagnosis as people grow older, with the average age being around 60. However, onset can occur as early as 40.

The risk of developing PD is twice as high in men than women but is known to progress faster and be more lethal to female patients.

Living with Parkinson’s

Ross Lane, a retired industrial electrician living in Courtenay, was diagnosed last year with the neurodegenerative condition at 76 years old.

Feeling increasingly tired, Lane first met with a sleep doctor who diagnosed him with sleep apnea. After visiting a clinic in Nanaimo, he was given a machine to help him sleep, but after a few months, his condition didn’t seem to improve.

“I (went back to my doctor) and by that time I had clear symptoms,” Lane said. “When I would reach for something, my hand would move very slowly. When I was writing, (everything) would get very tiny. After seeing this, my doctor said ‘That doesn’t sound like a sleep problem, it sounds like Parkinson’s.’”

Struggling with various motor and non-motor symptoms, Lane said that some are more apparent than others.

“When I walk, I stagger around like I’m drunk, but I haven’t had a drink in years,” Lane said.

When asked how it was to live with Parkinson’s disease, the man explained it was as if somehow, his “muscles forgot how to do stuff (he’s) been doing forever.”

Despite living independently, Lane finds that life’s most basic tasks often pose serious challenges daily.

“Normally, you wouldn’t really even think about dressing up because you would just whip your pants on or whatever,” said Lane. “But when you have Parkinson’s, you have much less mobility so I really struggle. That’s one of the reasons I went back to coveralls.”

Some things that many might consider trivial, like flipping pancakes or cleaning one’s home, take considerably more time and energy for Lane to accomplish.

Regardless of these physical limitations, the retiree mentioned that one of the most debilitating parts of Parkinson’s is the isolating nature of this disease. After surrendering his driver’s licence for fear of causing an accident, Lane now feels trapped within the confine of his apartment.

“It’s kind of lonely because I don’t have anybody to talk to about it,” said Lane. “Even though I’m in a support group, we only meet once a month. I can’t walk as far or as quickly as before.”

This loneliness is made worse by a lack of prognosis.

“The medical profession will not give me a prognosis and can’t tell me how quickly my disease is going to progress or (when I’m going) to be dead,” Lane said. “I feel a little abandoned.”

Comox Valley resident Bev White shares a similar story to Lane.

In 2022, at age 75, she was diagnosed with PD after her partner, Paul Atterton, asked their doctor to take a closer look at White’s gait.

In the following month, the woman was diagnosed with Parkinson’s disease and Lewy body dementia – which is commonly associated with Parkinson’s and Alzheimer’s.

“I think there were early signs if you knew that you were looking for. I think a lot of people don’t know (about PD’s symptoms,)” said White. “I was trying to learn how to play bridge because it’s supposed to be good for your brain, but for the life of me, I couldn’t (learn) anything beyond the very basics.”

After sharing his life for the last three decades with White, Atterton has seen the state of his partner decline drastically over the past 12 months.

“It’s been two years now and there’s been a dramatic change, especially on the cognitive side,” Atterton said. “(Her symptoms have just) exaggerated over time. The length of the awake day is shortened. Her shuffling is getting more (evident). There’s a lot of muscle stiffness, shortness of steps, loss of speech and overall confusion.”

Atterton describes every morning as a “business meeting,” during which both review the day’s schedule, ensuring they stay within a 24-hour time cycle to avoid further confusion on White’s part.

Considering herself lucky to be sharing life with her loved one, White recognized the chance she had to have a supportive partner.

“(Paul) is a rascal!” White said laughing. “But he’s been absolutely amazing and incredibly patient in the last couple of years as we’ve gone through all this.

“He makes me breakfast, lunch and dinner, and washes the dishes. He’s been very supportive and very patient. I can’t imagine where I would be without him.”

Yet, underneath this unwavering support, the couple is increasingly feeling the ever-growing weight of this disease. Having to give up his own hobbies and social life, Atterton is now fully dedicated to White.

“I don’t say that selfishly or begrudgingly, but we’re not getting the support we need and I’m basically Bev’s 24/7 health care system,” Atterton said. “She is not able to live by herself. If I wasn’t here, she’d be in the hospital today. Bev can’t manage simple things like putting out her medication, knowing what time of day it is or even what house she’s living in.”

The hardest thing for Atterton is to witness the disappearance of his lover, day by day, and watch Bev slowly become a shadow of her former self.

“(Everyday is just) like fixing a puzzle,” Atterton said. “I had Bev as a 1,000-piece puzzle and now she’s 400 pieces of it. It’s changing dramatically every day more so in the last two months than it was in the last year.”

Despite what the disease brings, White, Atterton, and Lane want to spread awareness about this progressive brain disorder.

“People seem to be afraid to even ask me what’s going on, but I’m not embarrassed by (my condition,)” Lane said. “It’s just the disease that I happen to have and I’m happy to talk about it. I don’t know if people are not curious or they’re scared to ask me questions, but I would say ask me about it if you’re interested!”

For more information about Parkinson’s disease and to learn more about services and resources available in B.C., visit parkinson.bc.ca.

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Health Canada approves updated Moderna COVID-19 vaccine

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TORONTO – Health Canada has authorized Moderna’s updated COVID-19 vaccine that protects against currently circulating variants of the virus.

The mRNA vaccine, called Spikevax, has been reformulated to target the KP.2 subvariant of Omicron.

It will replace the previous version of the vaccine that was released a year ago, which targeted the XBB.1.5 subvariant of Omicron.

Health Canada recently asked provinces and territories to get rid of their older COVID-19 vaccines to ensure the most current vaccine will be used during this fall’s respiratory virus season.

Health Canada is also reviewing two other updated COVID-19 vaccines but has not yet authorized them.

They are Pfizer’s Comirnaty, which is also an mRNA vaccine, as well as Novavax’s protein-based vaccine.

This report by The Canadian Press was first published Sept. 17, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

The Canadian Press. All rights reserved.

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These people say they got listeria after drinking recalled plant-based milks

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TORONTO – Sanniah Jabeen holds a sonogram of the unborn baby she lost after contracting listeria last December. Beneath, it says “love at first sight.”

Jabeen says she believes she and her baby were poisoned by a listeria outbreak linked to some plant-based milks and wants answers. An investigation continues into the recall declared July 8 of several Silk and Great Value plant-based beverages.

“I don’t even have the words. I’m still processing that,” Jabeen says of her loss. She was 18 weeks pregnant when she went into preterm labour.

The first infection linked to the recall was traced back to August 2023. One year later on Aug. 12, 2024, the Public Health Agency of Canada said three people had died and 20 were infected.

The number of cases is likely much higher, says Lawrence Goodridge, Canada Research Chair in foodborne pathogen dynamics at the University of Guelph: “For every person known, generally speaking, there’s typically 20 to 25 or maybe 30 people that are unknown.”

The case count has remained unchanged over the last month, but the Public Health Agency of Canada says it won’t declare the outbreak over until early October because of listeria’s 70-day incubation period and the reporting delays that accompany it.

Danone Canada’s head of communications said in an email Wednesday that the company is still investigating the “root cause” of the outbreak, which has been linked to a production line at a Pickering, Ont., packaging facility.

Pregnant people, adults over 60, and those with weakened immune systems are most at risk of becoming sick with severe listeriosis. If the infection spreads to an unborn baby, Health Canada says it can cause miscarriage, stillbirth, premature birth or life-threatening illness in a newborn.

The Canadian Press spoke to 10 people, from the parents of a toddler to an 89-year-old senior, who say they became sick with listeria after drinking from cartons of plant-based milk stamped with the recalled product code. Here’s a look at some of their experiences.

Sanniah Jabeen, 32, Toronto

Jabeen says she regularly drank Silk oat and almond milk in smoothies while pregnant, and began vomiting seven times a day and shivering at night in December 2023. She had “the worst headache of (her) life” when she went to the emergency room on Dec. 15.

“I just wasn’t functioning like a normal human being,” Jabeen says.

Told she was dehydrated, Jabeen was given fluids and a blood test and sent home. Four days later, she returned to hospital.

“They told me that since you’re 18 weeks, there’s nothing you can do to save your baby,” says Jabeen, who moved to Toronto from Pakistan five years ago.

Jabeen later learned she had listeriosis and an autopsy revealed her baby was infected, too.

“It broke my heart to read that report because I was just imagining my baby drinking poisoned amniotic fluid inside of me. The womb is a place where your baby is supposed to be the safest,” Jabeen said.

Jabeen’s case is likely not included in PHAC’s count. Jabeen says she was called by Health Canada and asked what dairy and fresh produce she ate – foods more commonly associated with listeria – but not asked about plant-based beverages.

She’s pregnant again, and is due in several months. At first, she was scared to eat, not knowing what caused the infection during her last pregnancy.

“Ever since I learned about the almond, oat milk situation, I’ve been feeling a bit better knowing that it wasn’t something that I did. It was something else that caused it. It wasn’t my fault,” Jabeen said.

She’s since joined a proposed class action lawsuit launched by LPC Avocates against the manufacturers and sellers of Silk and Great Value plant-based beverages. The lawsuit has not yet been certified by a judge.

Natalie Grant and her seven year-old daughter, Bowmanville, Ont.

Natalie Grant says she was in a hospital waiting room when she saw a television news report about the recall. She wondered if the dark chocolate almond milk her daughter drank daily was contaminated.

She had brought the girl to hospital because she was vomiting every half hour, constantly on the toilet with diarrhea, and had severe pain in her abdomen.

“I’m definitely thinking that this is a pretty solid chance that she’s got listeria at this point because I knew she had all the symptoms,” Grant says of seeing the news report.

Once her daughter could hold fluids, they went home and Grant cross-checked the recalled product code – 7825 – with the one on her carton. They matched.

“I called the emerg and I said I’m pretty confident she’s been exposed,” Grant said. She was told to return to the hospital if her daughter’s symptoms worsened. An hour and a half later, her fever spiked, the vomiting returned, her face flushed and her energy plummeted.

Grant says they were sent to a hospital in Ajax, Ont. and stayed two weeks while her daughter received antibiotics four times a day until she was discharged July 23.

“Knowing that my little one was just so affected and how it affected us as a family alone, there’s a bitterness left behind,” Grant said. She’s also joined the proposed class action.

Thelma Feldman, 89, Toronto

Thelma Feldman says she regularly taught yoga to friends in her condo building before getting sickened by listeria on July 2. Now, she has a walker and her body aches. She has headaches and digestive problems.

“I’m kind of depressed,” she says.

“It’s caused me a lot of physical and emotional pain.”

Much of the early days of her illness are a blur. She knows she boarded an ambulance with profuse diarrhea on July 2 and spent five days at North York General Hospital. Afterwards, she remembers Health Canada officials entering her apartment and removing Silk almond milk from her fridge, and volunteers from a community organization giving her sponge baths.

“At my age, 89, I’m not a kid anymore and healing takes longer,” Feldman says.

“I don’t even feel like being with people. I just sit at home.”

Jasmine Jiles and three-year-old Max, Kahnawake Mohawk Territory, Que.

Jasmine Jiles says her three-year-old son Max came down with flu-like symptoms and cradled his ears in what she interpreted as a sign of pain, like the one pounding in her own head, around early July.

When Jiles heard about the recall soon after, she called Danone Canada, the plant-based milk manufacturer, to find out if their Silk coconut milk was in the contaminated batch. It was, she says.

“My son is very small, he’s very young, so I asked what we do in terms of overall monitoring and she said someone from the company would get in touch within 24 to 48 hours,” Jiles says from a First Nations reserve near Montreal.

“I never got a call back. I never got an email”

At home, her son’s fever broke after three days, but gas pains stuck with him, she says. It took a couple weeks for him to get back to normal.

“In hindsight, I should have taken him (to the hospital) but we just tried to see if we could nurse him at home because wait times are pretty extreme,” Jiles says, “and I don’t have child care at the moment.”

Joseph Desmond, 50, Sydney, N.S.

Joseph Desmond says he suffered a seizure and fell off his sofa on July 9. He went to the emergency room, where they ran an electroencephalogram (EEG) test, and then returned home. Within hours, he had a second seizure and went back to hospital.

His third seizure happened the next morning while walking to the nurse’s station.

In severe cases of listeriosis, bacteria can spread to the central nervous system and cause seizures, according to Health Canada.

“The last two months have really been a nightmare,” says Desmond, who has joined the proposed lawsuit.

When he returned home from the hospital, his daughter took a carton of Silk dark chocolate almond milk out of the fridge and asked if he had heard about the recall. By that point, Desmond says he was on his second two-litre carton after finishing the first in June.

“It was pretty scary. Terrifying. I honestly thought I was going to die.”

Cheryl McCombe, 63, Haliburton, Ont.

The morning after suffering a second episode of vomiting, feverish sweats and diarrhea in the middle of the night in early July, Cheryl McCombe scrolled through the news on her phone and came across the recall.

A few years earlier, McCombe says she started drinking plant-based milks because it seemed like a healthier choice to splash in her morning coffee. On June 30, she bought two cartons of Silk cashew almond milk.

“It was on the (recall) list. I thought, ‘Oh my God, I got listeria,’” McCombe says. She called her doctor’s office and visited an urgent care clinic hoping to get tested and confirm her suspicion, but she says, “I was basically shut down at the door.”

Public Health Ontario does not recommend listeria testing for infected individuals with mild symptoms unless they are at risk of developing severe illness, such as people who are immunocompromised, elderly, pregnant or newborn.

“No wonder they couldn’t connect the dots,” she adds, referencing that it took close to a year for public health officials to find the source of the outbreak.

“I am a woman in my 60s and sometimes these signs are of, you know, when you’re vomiting and things like that, it can be a sign in women of a bigger issue,” McCombe says. She was seeking confirmation that wasn’t the case.

Disappointed, with her stomach still feeling off, she says she decided to boost her gut health with probiotics. After a couple weeks she started to feel like herself.

But since then, McCombe says, “I’m back on Kawartha Dairy cream in my coffee.”

This report by The Canadian Press was first published Sept. 16, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

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B.C. mayors seek ‘immediate action’ from federal government on mental health crisis

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VANCOUVER – Mayors and other leaders from several British Columbia communities say the provincial and federal governments need to take “immediate action” to tackle mental health and public safety issues that have reached crisis levels.

Vancouver Mayor Ken Sim says it’s become “abundantly clear” that mental health and addiction issues and public safety have caused crises that are “gripping” Vancouver, and he and other politicians, First Nations leaders and law enforcement officials are pleading for federal and provincial help.

In a letter to Prime Minister Justin Trudeau and Premier David Eby, mayors say there are “three critical fronts” that require action including “mandatory care” for people with severe mental health and addiction issues.

The letter says senior governments also need to bring in “meaningful bail reform” for repeat offenders, and the federal government must improve policing at Metro Vancouver ports to stop illicit drugs from coming in and stolen vehicles from being exported.

Sim says the “current system” has failed British Columbians, and the number of people dealing with severe mental health and addiction issues due to lack of proper care has “reached a critical point.”

Vancouver Police Chief Adam Palmer says repeat violent offenders are too often released on bail due to a “revolving door of justice,” and a new approach is needed to deal with mentally ill people who “pose a serious and immediate danger to themselves and others.”

This report by The Canadian Press was first published Sept. 16, 2024

The Canadian Press. All rights reserved.

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