Seven days a week, Margot Algie can’t get out of bed before noon. Not from choice. She has amyotrophic lateral sclerosis (ALS), a debilitating neurodegenerative disease, and needs a home care worker to help start her day.
But once someone arrives to shift her into a wheelchair, dress her and help with toileting, Algie often only has one hour — sometimes two — before another home care worker arrives to put her back to bed at 4 p.m.
“Being stuck in bed … isn’t great for my body, my skin or my psyche,” said the Toronto woman, who is gradually losing the ability to do all basic living activities.
But the home care company says “that’s all that’s available,” she said.
At least once a week, she gets a call to say no home care worker is available at all.
“I’m terrified when they say I can’t have help,” said Algie, 63, who says she’s fully dependent on the care she receives.
A home care worker helps Algie transfer to her wheelchair. (Norm Arnold/CBC)
Algie is not alone when it comes to complaints about substandard home care. A recent CBC Marketplace investigation sparked hundreds of stories from home care clients and their families across the country, complaining of missed visits, shortened visits and the inability to get visits at all.
Compounding problems, the number of people who rely on home care is expected to increase by more than 50 per cent in less than a decade, according to the Canadian Medical Association (CMA).
It estimated in a recent report that more than 1.1 million Canadians receive home care and that by 2031, that number will likely increase to 1.7 million. On top of that, the report estimates the annual cost for long-term care and home care in Canada will almost double during that period, from $29.7 billion to $58.5 billion.
“This problem is getting worse,” said CMA president Katharine Smart. “There is a real risk we will see our systems start collapsing over the next months and years.”
It’s a grim prediction that doesn’t have to materialize, said Dr. Samir Sinha, director of health policy research for the National Institute on Ageing and director of geriatrics at Sinai Health and the University Health Network in Toronto.
Geriatrician Dr. Samir Sinha says more investment in home care is needed to avert a financial long-term care crisis a decade from now. (Tiffany Foxcroft/CBC)
“The problem that we’ve had in Canada is this notion that if you can’t care for someone at home, they need to go live somewhere else,” said Sinha. “And so we have this real culture of institutionalizing people.”
Sinha said what’s needed isn’t rocket science. Provinces need to invest more in home care to help people age in place.
“Right now there are about 200,000 Canadians living in long-term care homes,” he said. “About a third of them — 60,000 or 70,000 people — could’ve actually stayed in their own homes, with proper home care support.”
Meantime, he said, at least 50,000 Canadians are waiting to get into a long-term care bed but there’s no room. Many have no option but to wait in hospitals for a spot to open up.
WATCH | The system this clinician says he’s up against:
‘That breaks my heart,’ says Canadian geriatrician
23 hours ago
Duration 0:30
Dr. Samir Sinha says Canada’s home care system often robs the dignity of his patients. 0:30
But Sinha said making a fundamental change to invest more in home care is a hard pitch to sell.
“Our politicians are living on four-year political life cycles and just trying to focus on getting re-elected — rather than figuring out how to create a sustainable health-care system for the future,” he said.
Smart says time to act is running out.
“I think there has never been a more urgent moment to shift our health-care system.
“This is a real example of where the government needs to get beyond politics and understand that Canadians need this system. It has to be functional. And right now it is not.”
Look to Denmark, geriatrician urges
The way forward is to take a page from Denmark, said Sinha, who has travelled to the Scandinavian country to study its long-term care strategy and returned last month with a CBC Marketplace crew.
In the late 1980s, Denmark — which, like Canada, has an aging population and publicly funded home care — slowed the growth of new nursing homes and instead used that money to heavily invest in home care.
In Ringsted, Denmark, elder dwellings with no stairs are available to rent. Here seniors receive home care and live independently. (Katie Pederson/CBC)
The funding means people in Denmark can get anywhere from 20 minutes to 10 hours of home care a day, depending on their needs.
When Danish people turn 80, they are automatically offered a home visit by a nurse to assess how things are going and whether they need any support to help keep them aging at home.
“We talk about if they have lost their husbands or wives, and how it is to be alone,” said Camilla Hove Lund, who manages the home care program in the municipality of Ringsted, 70 kilometres southwest of Copenhagen.
“We talk about their network — do you have some friends? Some family? Do you have activities you go to?” said Hove Lund. “And if we hear they need a little bit of help, we give that to them.”
Camilla Hove Lund runs the home care program in Denmark’s Ringsted municipality. She says focusing on prevention keeps aging people out of long-term care beds. (Katie Pederson/CBC)
It may sound like a warm and fuzzy approach, but don’t be fooled, said Sinha. “It’s actually a deliberate strategy to keep the overall health-care system sustainable.”
When Danes find themselves struggling physically — perhaps no longer able to bathe themselves — they’re registered in what’s called a “reablement” program.
“We offer them the bath,” said Hove Lund. “But we also offer training with our workers … to do the bath by themselves again.”
WATCH | Come inside a home in Denmark:
‘The goal is to strengthen his legs,’ says Danish PSW
23 hours ago
Duration 1:07
Johnny Olsen does rehab exercises with a trained personal support worker as part of Denmark’s ‘reablement’ program in home care. 1:07
It’s a much different approach than the home care most often provided in Canada, said Sinha.
“The little home care that we make available to Canadians is often what we call ‘reactive’ home care,” he said. “Someone falls, they need a bath, we send in people to help. Whereas [in Denmark] there is this idea of preventative home care.”
In Ringsted’s rural outskirts, 72-year-old Johnny Olsen, a former farmer, is struggling with Alzheimer’s disease.
He gets six home care visits a day, including physical therapy twice a week to strengthen his arms and back and try to prevent him from falling.
Johnny Olsen, who has from Alzheimer’s, pictured here with a regular home care worker, gets six home care visits every day in Ringsted, Denmark. (Katie Pederson/CBC)
“It’s working,” he said, as he diligently followed the prompts of his home care worker to raise and lower his legs.
In Denmark, all home care workers are trained to do preventative physio to try to keep people aging in place, whereas in Canada, it’s not standard practice for home care workers to get rehab training and physiotherapists are in high demand.
“We have a big group of elderly who need a lot less help if we give them rehabilitation,” said Hove Lund.
Those who do get rehab also have their progress tracked.
“The results are very important to us,” said Hove Lund. “We have to show our politicians that this works. You have to give money to this.”
Lonni Bensadon stands next to one of many electric vehicles provided to personal support workers in the Danish municipality of Ringsted so they can conduct home care visits. (Submitted by Samir Sinha)
It’s all a deliberate effort to help people age at home — and all a far cry from what’s being delivered back at home, said Sinha.
“We need to say that we don’t have a system that’s currently working as well as it could,” he said. “These aren’t pie in the sky ideas — we’re physically seeing them here in Denmark.”
Promises to invest more in home care
In 2018, Ontario’s Conservative government hired Sinha to develop a Senior Strategy — a long-term care plan for the province’s aging population.
He presented a report that called on the government to build fewer long-term care beds and invest more in home care.
But he said the Ford government basically shelved his report and instead committed to spending $6.4 billion to build 30,000 new long-term care beds by 2028. That’s on top of its annual $6-billion budget for long-term care and $3 billion for home care.
Ontario Premier Doug Ford talks on Feb. 1, 2022, about committing $6.4 billion to build 30,000 new long-term care beds by 2028. (CBC)
“They chose the solution that frankly is a lot more costly to taxpayers, but works really well for developers,” said Sinha.
“It really troubles me because we’re not getting the fundamentals right here. Nobody actually aspires to end up in a nursing home. But for the public, it’s being presented as, ‘We’re doing this big thing to take care of this big problem.'”
But earlier this week, in a surprise announcement, the Ontario government said it plans to invest an additional $1 billion over three years in home care if re-elected in June.
“This significant investment will ensure Ontarians can receive the care they need in the comfort of their own homes,” said Health Minister Christine Elliott.
It’s a step in the right direction, said Sinha. “This investment will help to fix fundamental problems [the Ontario government] created after four years of deliberately starving Ontario’s home care system.”
The Ontario government said this week that it plans to invest an additional $1 billion over three years in home care if re-elected in June. (David Donnelly/CBC)
Meanwhile, the Ontario Liberal Party said that if elected, it would invest a further $2 billion in home care over four years and end for-profit long-term care by 2028.
The provincial NDP said it would invest up to $1 billion in home care if elected and would also end for-profit long-term care.
A survey by the National Institute on Ageing found that almost 100 per cent of people said they hope to age at home, as opposed to moving to a long-term care facility.
Figures obtained by Ontario’s Ministry of Health show that providing home care is also half the price of a long-term care bed — roughly $100/day compared to $200/day — and far less costly than a hospital bed that costs approximately $700/day.
Home care clients in Canada receive, on average, 4.9 hours of care a week. According to the CMA, even if that number was increased to 22.2 hours per week, to reflect higher need clients, it would still be cheaper than institutionalized care.
Algie has amyotrophic lateral sclerosis, a debilitating neurodegenerative disease, and needs a home care worker to help start her day. (Tiffany Foxcroft/CBC)
“When you’re delivering care in a long-term care home, you’ve got to buy a piece of land, you’ve got to erect a building, you have to heat and cool it,” said Sinha.
“You don’t have to be a mathematician to realize that the care that most people actually want is the most cost-effective for the taxpayer and more in line with what everybody hopes for.”
Stuck in bed for most of the day, Algie said she’s tired of struggling with a broken home care system that’s in desperate need of better funding.
“It really gets my goat,” she said. “Everybody knows it. And yet, we’re still in this pickle of being underfunded. I just don’t get it.”
VANCOUVER – Contract negotiations resume today in Vancouver in a labour dispute that has paralyzed container cargo shipping at British Columbia’s ports since Monday.
The BC Maritime Employers Association and International Longshore and Warehouse Union Local 514 are scheduled to meet for the next three days in mediated talks to try to break a deadlock in negotiations.
The union, which represents more than 700 longshore supervisors at ports, including Vancouver, Prince Rupert and Nanaimo, has been without a contract since March last year.
The latest talks come after employers locked out workers in response to what it said was “strike activity” by union members.
The start of the lockout was then followed by several days of no engagement between the two parties, prompting federal Labour Minister Steven MacKinnon to speak with leaders on both sides, asking them to restart talks.
MacKinnon had said that the talks were “progressing at an insufficient pace, indicating a concerning absence of urgency from the parties involved” — a sentiment echoed by several business groups across Canada.
In a joint letter, more than 100 organizations, including the Canadian Chamber of Commerce, Business Council of Canada and associations representing industries from automotive and fertilizer to retail and mining, urged the government to do whatever it takes to end the work stoppage.
“While we acknowledge efforts to continue with mediation, parties have not been able to come to a negotiated agreement,” the letter says. “So, the federal government must take decisive action, using every tool at its disposal to resolve this dispute and limit the damage caused by this disruption.
“We simply cannot afford to once again put Canadian businesses at risk, which in turn puts Canadian livelihoods at risk.”
In the meantime, the union says it has filed a complaint to the Canada Industrial Relations Board against the employers, alleging the association threatened to pull existing conditions out of the last contract in direct contact with its members.
“The BCMEA is trying to undermine the union by attempting to turn members against its democratically elected leadership and bargaining committee — despite the fact that the BCMEA knows full well we received a 96 per cent mandate to take job action if needed,” union president Frank Morena said in a statement.
The employers have responded by calling the complaint “another meritless claim,” adding the final offer to the union that includes a 19.2 per cent wage increase over a four-year term remains on the table.
“The final offer has been on the table for over a week and represents a fair and balanced proposal for employees, and if accepted would end this dispute,” the employers’ statement says. “The offer does not require any concessions from the union.”
The union says the offer does not address the key issue of staffing requirement at the terminals as the port introduces more automation to cargo loading and unloading, which could potentially require fewer workers to operate than older systems.
The Port of Vancouver is the largest in Canada and has seen a number of labour disruptions, including two instances involving the rail and grain storage sectors earlier this year.
A 13-day strike by another group of workers at the port last year resulted in the disruption of a significant amount of shipping and trade.
This report by The Canadian Press was first published Nov. 9, 2024.
The Royal Canadian Legion says a new partnership with e-commerce giant Amazon is helping boost its veterans’ fund, and will hopefully expand its donor base in the digital world.
Since the Oct. 25 launch of its Amazon.ca storefront, the legion says it has received nearly 10,000 orders for poppies.
Online shoppers can order lapel poppies on Amazon in exchange for donations or buy items such as “We Remember” lawn signs, Remembrance Day pins and other accessories, with all proceeds going to the legion’s Poppy Trust Fund for Canadian veterans and their families.
Nujma Bond, the legion’s national spokesperson, said the organization sees this move as keeping up with modern purchasing habits.
“As the world around us evolves we have been looking at different ways to distribute poppies and to make it easier for people to access them,” she said in an interview.
“This is definitely a way to reach a wider number of Canadians of all ages. And certainly younger Canadians are much more active on the web, on social media in general, so we’re also engaging in that way.”
Al Plume, a member of a legion branch in Trenton, Ont., said the online store can also help with outreach to veterans who are far from home.
“For veterans that are overseas and are away, (or) can’t get to a store they can order them online, it’s Amazon.” Plume said.
Plume spent 35 years in the military with the Royal Engineers, and retired eight years ago. He said making sure veterans are looked after is his passion.
“I’ve seen the struggles that our veterans have had with Veterans Affairs … and that’s why I got involved, with making sure that the people get to them and help the veterans with their paperwork.”
But the message about the Amazon storefront didn’t appear to reach all of the legion’s locations, with volunteers at Branch 179 on Vancouver’s Commercial Drive saying they hadn’t heard about the online push.
Holly Paddon, the branch’s poppy campaign co-ordinator and bartender, said the Amazon partnership never came up in meetings with other legion volunteers and officials.
“I work at the legion, I work with the Vancouver poppy office and I go to the meetings for the Vancouver poppy campaign — which includes all the legions in Vancouver — and not once has this been mentioned,” she said.
Paddon said the initiative is a great idea, but she would like to have known more about it.
The legion also sells a larger collection of items at poppystore.ca.
This report by The Canadian Press was first published Nov. 9, 2024.
