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Long haul COVID patients find hope in recovery clinics – Medical Xpress

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When Stephanie Hedrick realized she was still suffering from shortness of breath, blurry vision and brain fog months after recovering from COVID-19, she knew she needed more help than her primary care doctor alone could provide.

“Not every doctor knows everything,” said the 62-year-old, a retired teacher from the US state of Virginia.

After months of rehabilitative therapy at a specialized clinic in the nearby capital Washington, Hedrick was finally able to play in the waves with her five grandkids this summer.

The MedStar COVID Recovery Program that she turned to is part of a new wave of clinics specifically treating patients suffering from long COVID—a post-infection syndrome that can affect nearly every system in the body, causing sometimes debilitating symptoms.

“The clinic gave me hope that life was going to go on,” Hedrick said.

Similar clinics have popped up across the United States as thousands of people who recovered from coronavirus infections—even mild ones—have found themselves still struggling.

Doctors have known for years that some patients who recover from go on to develop post-viral syndromes, but the exact cause is unknown.

“There’s something happening. It’s very clearly not in people’s heads,” said Hana Akselrod, co-director of the COVID-19 Recovery Clinic with the George Washington University health system.

Estimates of long COVID’s prevalence vary widely from study to study, from as little as 10 percent of people who recover from a COVID infection, to as high as 35 or even 50 percent.

After her infection, Hedrick—who described herself as otherwise “active”—was suddenly having irregular heart rhythms, joint pain and shortness of breath.

“It’s like somebody took all of your energy and strength and motivation to be able to do something,” she said.

Eric Wisotzky, head of the MedStar clinic, said he works with patients on strategies to manage their complaints—a “delicate balance” of exercise and rest.

Some even regain a lost sense of smell through a regimen of sniffing essential oils several times a day.

To improve endurance, Hedrick was advised to do short, easy exercises.

And when she gets confused at the grocery store, Hedrick uses the strategies her speech therapist taught her, to slow down and go through her shopping list item by item.

She admits she doesn’t feel totally back to normal.

But, “I have longer periods of good days,” she said.

Unknown cause

Alba Azola, co-director of the Johns Hopkins Post-Acute COVID-19 Team in Baltimore, Maryland, said she has “multiple theories” about what causes long COVID, from bits of virus remaining in the body to an out-of-whack immune system.

“I think that there’s more than one mechanism at play and we just need to catch up with the science,” Azola said.

The US Centers for Disease Control and Prevention define long COVID as a collection of “new or ongoing” symptoms four or more weeks after the acute infection has resolved, though there is disagreement about exactly what ailments can be attributed to the condition.

For many patients, the mere idea a doctor will acknowledge their suffering can bring relief.

Marijke Sutter, 39, is a Baltimore nurse who caught COVID in March 2020—likely, she believes, from her job.

Sutter ended up quitting, needing more time to rest.

“That initial four months is a blur,” said Sutter said, who was plagued by fatigue and insomnia.

She began seeing the doctors at Johns Hopkins in June 2021.

“It’s nice to have doctors validate my patient experience,” Sutter said.

Sutter says meditation and yoga have been most helpful to her recovery, and is now back to work half-time, teaching nursing remotely.

But she still needs three-hour naps most days.

“Cognitive functioning is just as exhausting as physical work,” she said.

‘Scary’

Rachel Curley, a 32-year-old Washington resident and MedStar patient, also found moving to part-time work at her policy advocacy job helped her battle long COVID.

Curley became infected in December 2020. Within a few weeks, her fever was gone, replaced by extreme fatigue, brain fog and dizzy spells. Everyday tasks would cause her heart rate to spike.

“It feels on some level scary,” Curley said. “What if I don’t ever feel better?”

So far, Curley has been instructed to avoid stress, but increase physical activity—and the formula has so far helped her eliminate fatigue.

There is no one-size-fits-all cure, Hedrick explained.

“If this is the new normal, then I have a toolbox with tools, I have doctors, I have strategies and I can reach out to any of them,” she said.


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Canada to donate up to 200,000 vaccine doses to combat mpox outbreaks in Africa

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The Canadian government says it will donate up to 200,000 vaccine doses to fight the mpox outbreak in Congo and other African countries.

It says the donated doses of Imvamune will come from Canada’s existing supply and will not affect the country’s preparedness for mpox cases in this country.

Minister of Health Mark Holland says the donation “will help to protect those in the most affected regions of Africa and will help prevent further spread of the virus.”

Dr. Madhukar Pai, Canada research chair in epidemiology and global health, says although the donation is welcome, it is a very small portion of the estimated 10 million vaccine doses needed to control the outbreak.

Vaccine donations from wealthier countries have only recently started arriving in Africa, almost a month after the World Health Organization declared the mpox outbreak a public health emergency of international concern.

A few days after the declaration in August, Global Affairs Canada announced a contribution of $1 million for mpox surveillance, diagnostic tools, research and community awareness in Africa.

On Thursday, the Africa Centres for Disease Control and Prevention said mpox is still on the rise and that testing rates are “insufficient” across the continent.

Jason Kindrachuk, Canada research chair in emerging viruses at the University of Manitoba, said donating vaccines, in addition to supporting surveillance and diagnostic tests, is “massively important.”

But Kindrachuk, who has worked on the ground in Congo during the epidemic, also said that the international response to the mpox outbreak is “better late than never (but) better never late.”

“It would have been fantastic for us globally to not be in this position by having provided doses a much, much longer time prior than when we are,” he said, noting that the outbreak of clade I mpox in Congo started in early 2023.

Clade II mpox, endemic in regions of West Africa, came to the world’s attention even earlier — in 2022 — as that strain of virus spread to other countries, including Canada.

Two doses are recommended for mpox vaccination, so the donation may only benefit 100,000 people, Pai said.

Pai questioned whether Canada is contributing enough, as the federal government hasn’t said what percentage of its mpox vaccine stockpile it is donating.

“Small donations are simply not going to help end this crisis. We need to show greater solidarity and support,” he said in an email.

“That is the biggest lesson from the COVID-19 pandemic — our collective safety is tied with that of other nations.”

This report by The Canadian Press was first published Sept. 13, 2024.

Canadian Press health coverage receives support through a partnership with the Canadian Medical Association. CP is solely responsible for this content.

The Canadian Press. All rights reserved.

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How many Nova Scotians are on the doctor wait-list? Number hit 160,000 in June

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HALIFAX – The Nova Scotia government says it could be months before it reveals how many people are on the wait-list for a family doctor.

The head of the province’s health authority told reporters Wednesday that the government won’t release updated data until the 160,000 people who were on the wait-list in June are contacted to verify whether they still need primary care.

Karen Oldfield said Nova Scotia Health is working on validating the primary care wait-list data before posting new numbers, and that work may take a matter of months. The most recent public wait-list figures are from June 1, when 160,234 people, or about 16 per cent of the population, were on it.

“It’s going to take time to make 160,000 calls,” Oldfield said. “We are not talking weeks, we are talking months.”

The interim CEO and president of Nova Scotia Health said people on the list are being asked where they live, whether they still need a family doctor, and to give an update on their health.

A spokesperson with the province’s Health Department says the government and its health authority are “working hard” to turn the wait-list registry into a useful tool, adding that the data will be shared once it is validated.

Nova Scotia’s NDP are calling on Premier Tim Houston to immediately release statistics on how many people are looking for a family doctor. On Tuesday, the NDP introduced a bill that would require the health minister to make the number public every month.

“It is unacceptable for the list to be more than three months out of date,” NDP Leader Claudia Chender said Tuesday.

Chender said releasing this data regularly is vital so Nova Scotians can track the government’s progress on its main 2021 campaign promise: fixing health care.

The number of people in need of a family doctor has more than doubled between the 2021 summer election campaign and June 2024. Since September 2021 about 300 doctors have been added to the provincial health system, the Health Department said.

“We’ll know if Tim Houston is keeping his 2021 election promise to fix health care when Nova Scotians are attached to primary care,” Chender said.

This report by The Canadian Press was first published Sept. 11, 2024.

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Newfoundland and Labrador monitoring rise in whooping cough cases: medical officer

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ST. JOHN’S, N.L. – Newfoundland and Labrador‘s chief medical officer is monitoring the rise of whooping cough infections across the province as cases of the highly contagious disease continue to grow across Canada.

Dr. Janice Fitzgerald says that so far this year, the province has recorded 230 confirmed cases of the vaccine-preventable respiratory tract infection, also known as pertussis.

Late last month, Quebec reported more than 11,000 cases during the same time period, while Ontario counted 470 cases, well above the five-year average of 98. In Quebec, the majority of patients are between the ages of 10 and 14.

Meanwhile, New Brunswick has declared a whooping cough outbreak across the province. A total of 141 cases were reported by last month, exceeding the five-year average of 34.

The disease can lead to severe complications among vulnerable populations including infants, who are at the highest risk of suffering from complications like pneumonia and seizures. Symptoms may start with a runny nose, mild fever and cough, then progress to severe coughing accompanied by a distinctive “whooping” sound during inhalation.

“The public, especially pregnant people and those in close contact with infants, are encouraged to be aware of symptoms related to pertussis and to ensure vaccinations are up to date,” Newfoundland and Labrador’s Health Department said in a statement.

Whooping cough can be treated with antibiotics, but vaccination is the most effective way to control the spread of the disease. As a result, the province has expanded immunization efforts this school year. While booster doses are already offered in Grade 9, the vaccine is now being offered to Grade 8 students as well.

Public health officials say whooping cough is a cyclical disease that increases every two to five or six years.

Meanwhile, New Brunswick’s acting chief medical officer of health expects the current case count to get worse before tapering off.

A rise in whooping cough cases has also been reported in the United States and elsewhere. The Pan American Health Organization issued an alert in July encouraging countries to ramp up their surveillance and vaccination coverage.

This report by The Canadian Press was first published Sept. 10, 2024.

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