CRANBURY, N.J.–(BUSINESS WIRE)–CURE Media Group, the industry-leading multimedia platform devoted to cancer updates and research that reaches more than one million patients, has named the winners of the MPN Heroes® Recognition Program. The virtual celebration will take place tonight from 6 to 7:30 p.m. CST.
Keynote speaker Devon Still, former professional athlete, entrepreneur, motivational speaker, author and advocate for childhood cancer awareness, will join in this year’s annual evening of gratitude and celebration honoring these eight remarkable heroes who have gone above and beyond, making a difference in the field of rare blood cancers known as myeloproliferative neoplasms (MPNs).
The following individuals will be recognized in the Commitment to the Individual category:
- Nicholas Callahan is a caregiver for his significant other, Toula Bonié, who is a professional violinist w living with essential thrombocythemia (ET). Ever since they met in 1991, Callahan has viewed himself as a facilitator, doing whatever he can to help Toula overcome the daily challenges of ET. His selfless patience and kindness have a huge impact on her ability to live and enjoy her life.
- Rami S. Komrokji, M.D., is vice chair of the Department of Malignant Hematology and head of the myeloid section at the Moffitt Cancer Center in Tampa, Florida. While at the University of Cincinnati, Komrokji reactivated the American VA Hematology/Oncology Association (AVAHO), serving at various times as president and vice president. Komrokji demonstrates a true understanding of what veterans and other patients go through on their MPN journeys. He also shares his expertise with the MPN community as an author and co-author of scientific literature on MPNs, as well as partnering with numerous patient advocacy organizations.
- Carmen Orrico was diagnosed with ET at the age of 17 and felt “a little bit alone” when she realized she did not have a place to connect with other young patients with ET. Orrico created an Instagram page about ET to raise awareness of the condition, and shares resources that may help others overcome obstacles presented by ET. She and other young adults all over the world now share stories and compare notes about managing ET.
- David S. Snyder, M.D., is acting chair of the Department of Hematology & Hematopoietic Cell Transplantation at City of Hope Comprehensive Cancer Center in Duarte, California. A fixture at City of Hope for more than 36 years, Snyder is a nationally recognized expert in stem cell transplantation for managing MPNs, chronic myeloid leukemia (CML), and other blood disorders. Whether through patient advocacy forums or talking one-on-one with patients, Snyder has helped people with MPNs live with hope, strength, and courage.
The second category honors MPN specialists whose efforts have helped the broader MPN community:
- Michele A. Couri, M.D., is a board-certified obstetrician/gynecologist at the Couri Center for Gynecology and Integrative Women’s Health in Peoria, Illinois, as well as an avid hiker who is living with myelofibrosis (MF). To help raise awareness and funding for MPNs, Couri founded a not-for-profit organization called MPN Peoria. Since founding the organization, she has organized two hiking events—one virtual—that cumulatively raised $150,000 to help people with MPNs.
- Summer Golden is an MPN network manager for the Patient Empowerment Network (PEN), who is living with MF. Golden calls on her years of theatre training and comedy to cope with her condition and help others, while maintaining positivity about the future. In her role at PEN, Golden has made a positive impact on thousands of patients in the MPN community. She works to enhance patient health literacy, enabling shared decision-making and providing educational resources that empower patients and caregivers at every step of their cancer journey.
- Nick Napolitano’s transformation into becoming an outspoken advocate for people with MPNs began in 2016 when a routine physical revealed he had PV. Napolitano dedicated himself to educating others and raising awareness of MPNs. He shared his story through a documentary titled “The Unknown,” which was sponsored by Incyte. In it, he discusses his determination to help others meet the challenges of living with an MPN. Since then, he has participated in numerous webinars and conferences and has partnered with Patient Power to create and share coronavirus coping strategies for patients with MPNs.
- Hon. Col. Dr. Samuel Verniero Jr. has had a life of distinction as a United Nations diplomat, honorary Kentucky colonel, and leader in the state of Georgia for people with disabilities. Living with PV, he is passionate about increasing awareness about MPNs throughout the health care and public sectors of the community.
“These incredible heroes have truly dedicated themselves to improving the lives of people with myeloproliferative neoplasms,” said Mike Hennessy Jr., president and CEO of MJH Life Sciences™, parent company of CURE Media Group. “This year marks the eighth anniversary of the MPN Heroes® Recognition Program, and we look forward to an amazing celebration this evening recognizing these champions who have made a difference in MPN care.”
The MPN Heroes® Recognition Program is sponsored by Incyte and CURE Media Group, publishers of CURE® magazine. Incyte partners with CURE Media Group to support the program, with CURE® hosting the annual MPN Heroes Celebration Event. The honorees were nominated by colleagues, patients and caregivers for their heroic contributions and dedication. The selected MPN Heroes were chosen by an independent judging panel comprised of patient advocates and healthcare professionals. Individuals or entities supported through funding or directed by Incyte were not eligible for consideration or recognition. Supporting the MPN community is an ongoing priority for Incyte, a global biopharmaceutical company focused on finding solutions for serious unmet medical needs through the discovery, development, and commercialization of proprietary therapeutics.
About CURE Media Group
CURE Media Group is the leading resource for cancer updates, research, and education. It features a full suite of media products, including the industry-leading website CUREtoday.com; innovative video programs such as “CURE Connections®”; a series of widely attended live events; CURE® magazine, which reaches more than 1 million readers; and the dynamic website for oncology nurses, OncNursingNews.com, and its companion publication, Oncology Nursing News®. CURE Media Group is a brand of MJH Life Sciences™, the largest privately held, independent, full-service medical media company in North America, dedicated to delivering trusted health care news across multiple channels.
Incyte is a Wilmington, Delaware-based, global biopharmaceutical company focused on finding solutions for serious unmet medical needs through the discovery, development and commercialization of proprietary therapeutics. For additional information on Incyte, please visit Incyte.com and follow @Incyte.
MPN Heroes® is a registered trademark of Incyte. Other trademarks are the property of their respective owners.
Social Media Buzz: Larry King Dies, Dr. Birx, Heathrow Crowds – BNN
(Bloomberg) — What’s buzzing on social media this morning:
Larry King, the interviewer whose schmoozy style attracted celebrities, politicians and other newsmakers as guests and made him the star of a top-rated U.S. cable talk show, has died. He was 87.
- King died Saturday morning at Cedars-Sinai Medical Center in Los Angeles. The cause of death wasn’t provided. The cancer and stroke survivor had spent time recently undergoing treatment for Covid-19.
Pfizer Inc. is trending on Twitter. Senior doctors in the U.K. are urging the gap between first and second doses of the Pfizer-BioNTech Covid-19 vaccine doses be halved to ensure efficacy. The U.K. extended the maximum wait from three to 12 weeks to get more people to take the first shot. France may also delay second doses to stretch supplies.
- Large crowds at Heathrow Airport on Friday sparked concerns of virus spread. U.K. only allows residents to travel internationally for “legally-permitted reasons.”
Dr. Deborah Birx said she “always” considered quitting Donald Trump’s coronavirus task force as she worried she’d been viewed as a political person. “I mean, why would you want to put yourself through that, um, every day?” Birx told CBS in an interview that will air Sunday, according to an advance clip. Her term ended as Biden took office.
Protests broke out in cities across Russia as tens of thousands demanded the release of jailed opposition leader Alexey Navalny. Police detained hundreds of people.
©2021 Bloomberg L.P.
Blockbuster Laine-Dubois deal draws mixed reviews on social media – Sportsnet.ca
Sometimes, change happens fast.
Mere days after Columbus Blue Jackets head coach John Tortorella benched Pierre-Luc Dubois, one of his team’s best players, in an overtime loss against the Tampa Bay Lightning, Dubois was packing his bags to go play in another country altogether.
The Blue Jackets traded the 22-year-old, who had requested to be dealt shortly after signing a two-year, $10-million bridge contract in the off-season, to the Winnipeg Jets for superstar winger Patrik Laine and Jack Roslovic in a move that sent shockwaves through the NHL.
Not all blockbusters are universally well-received, of course. And while some on Twitter celebrated the move as a shuffling of high-profile talent, others were quick to wonder how the dynamic between Laine, an offensive-minded forward, and Tortorella will play out.
Here is some of the best reaction to the winter blockbuster:
— Sportsnet (@Sportsnet) January 23, 2021
Oh yeah, this Tortorella/Laine relationship isn’t gonna have any issues..none at all.
— Scott MacArthur (@ScottyMacThinks) January 23, 2021
Now that it’s been announced, some personal thoughts:
– Laine’s talent is more rare than PLD
– The connection with PLD dad played a role
– not sure Roslovic needed to be added in
– Laine & Torts
— Rachel Doerrie (@racheldoerrie) January 23, 2021
— Sportsnet (@Sportsnet) January 23, 2021
Social media's sea shanty trend scores well with musician-curator – CBC.ca
Southern Ontario folk musician Ian Bell says it makes sense that sea shanties are taking off on social media right now because they are participatory and easy to learn.
“It’s easier to learn Heave ‘Er Up and Bust ‘Er than it is to try and figure out all the bits for, say Bohemian Rhapsody or something,” Bell, who is also the former curator of the Port Dover Habour Museum, told CBC.
“I think for a lot of people, singing shanties at this moment is like the musical equivalent of learning to bake your own bread.”
The social media platform Tik Tok is awash in videos of people performing the traditional work songs or altering others’ videos of them, and even talk show hosts such as Stephen Colbert have gotten in on the action.
The songs are appealing because of their communal nature, Bell said.
“There is nothing better than being in a large gang of people who are singing their faces off often in three or four part harmonies, and it’s one of those situations where it kind of goes beyond musical. You know the vibrations can go right through you,” he said.
One of the best shanty sings used to take place at the Mill Race Festival in Cambridge, he said, where 60 or 70 singers would pack into the Kiwi Pub and belt out the numbers.
Songs to make work easier
Shanties aren’t so much songs as they are templates of songs, Bell said.
The rhythm helped workers carry out tasks in unison such as pulling in sails on sailboats.
“Some of the jobs needed a bunch of short pulls, and some of the jobs needed longer pulls, and so there was a whole repertoire of songs that fitted those needs and that the sailors sang to make the work go a little more easily,” he said.
But the lyrics were fluid.
Each work crew might have a shantyman — possibly the person with the loudest voice — who might recall some of the original words to the number, but there was a lot of improvisation, Bell explained.
“If the job wasn’t over and he’d finished the song, ‘Well, we’ll add a verse about the cook,'” he added.
Great Lakes shanties name local spots
A number of sea shanties were written on or about the Great Lakes and they are particular to the types of ships on the lakes, he said. Specifically, they were schooners rather than clipper ships.
There were lots of capstan shanties, or songs sung while rotating the capstan to pull in an anchor, he said. Some also specifically mention the lakes or the surrounding areas.
“They mention Buffalo and they mention Long Point and they mention Windsor and Sarnia,” Bell said.
For those wanting to learn a shanty or two and get in on the social media activity, Bell recommended Bully in the Alley and It’s Me for the Inland Lakes.
“I love the way it’s happening on Tik Tok,” Bell said, “which I haven’t tried, because, let’s be frank; I’m an old guy.”
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