Seeking a stem cell match? Start with social media.
Media
Toddler’s case proves patients must harness social media in quest for stem cell donors
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Seeking a stem cell match? Start with social media.
For patients seeking potentially life-saving stem cell donors, the online platforms are the next frontier, area advocates say on the heels of highly successful weekend campaigns in Windsor and London sparked by 18-month-old Savannah Hill’s search for a match.
Savannah is battling non-Down syndrome acute megakaryoblastic leukemia, a rare and aggressive form of blood cancer, and is undergoing treatment at Children’s Hospital at London Health Sciences Centre.
While she is responding to the chemotherapy, Savannah may require a stem cell transplant later on, her family said.
Her story is prompting stem cell donation clubs at 18 Canadian universities to hold their own campus donor drives in honour of the Windsor toddler, said Elena Kum, co-president of the Western University group.
“Stem Cell Club is a national non-profit organization run by students,” Kum said. “We’re part of a much larger movement.”
Early on, the Hill family took finding a match into their own hands, spreading the word among their friends and on social media. It caught the attention of others, including mainstream news outlets.
“We’re not the only family going through this,” said Lawrence Hill, Savannah’s father. “We’re trying to make it public that we need more donors and get people registered.”
Stem cell donor drives at London’s White Oaks Mall and Windsor’s Canadian Blood Services location drew nearly 800 people Saturday, Hill said. Thirty-two-year-old Windsor resident Shane Meyers was among them.
“I have a two-year-old daughter so this pulled some strings on the old heart violin,” said Meyers, who learned about the registration clinic through Facebook.
Social media is a way for patients and their families to amplify their message, said Sharr Cairns, Canadian Blood Services territory manager. By telling their story they raise awareness about the need for stem cell donors in general, a move that has the potential to help many other patients, Cairns said.
“We find that people don’t know about the program because they haven’t known someone who’s needed it,” she said.
“But when someone in their family or circle of friends does needs it, they often take it upon themselves to say ‘This is our story, learn from us.’ They’re really advocates for our program and patients.”
Stem cells have the ability to develop into different types of cells. Unlike embryonic stem cells, which come from a fertilized human egg and have raised ethical concerns about research and testing, blood stem cells are harvested from circulating blood, bone marrow or umbilical cord blood.
Transplanting healthy blood stem cells into a sick patient can help them recover. In Canada, blood stem cells are used to treat more than 80 different diseases and disorders, Cairns said.
Western’s stem cell club is holding a drive Feb. 11-13 in support of Savannah’s search for a match. Other campus drives in honour of the toddler are in the works.
“Social media has really allowed us to get in touch with a lot people we wouldn’t have been able to get in touch with otherwise,” said Western Stem Cell Club co-president Gabriele Jagelaviciute.
“Running these drives in conjunction with universities and campuses across Canada would not be possible if we weren’t connected through social media and sharing Savannah’s story through that.”
Both Kum and Jagelaviciute got involved in stem cell donation advocacy when they were high school students. Since donors must be between 17 and 35 years old, online outreach is integral to the cause, Kum said.
“We’re really trying to target a young population and that’s why social media is a great medium to advertise these events,” Kum said. “A lot of people aren’t aware of what stem cell donation is.”
– with files by Mary Caton, Windsor Star
ABOUT BLOOD STEM CELLS
- The human body has many different kinds of cells – including nerve, muscle and blood cells – that serve different functions. Stem cells have the ability to develop into different types of cells.
- Blood stem cells can develop into red blood cells, which carry oxygen, white blood cells, which help fight infection, or platelets, which help blood clot.
- Blood stem cells don’t come from human embryos, but from blood, bone marrow or umbilical cord blood.
- Canadian Blood Services maintains a registry of potential blood stem cell donors. Healthy individuals between 17 and 35 years old can register by completing a kit that includes cheek swabs.
- Blood stem cell transplants can be used to treat more than 80 different diseases and disorders
Media
Georgia’s parliament votes to approve so-called ‘Russian law’ targeting media in first reading – CityNews Kitchener
TBILISI, Georgia (AP) — Georgia’s parliament has voted in the first reading to approve a proposed law that would require media and non-commercial organizations to register as being under foreign influence if they receive more than 20% of their funding from abroad.
Opponents say the proposal would obstruct Georgia’s long-sought prospects of joining the European Union. They denounce it as “the Russian law” because Moscow uses similar legislation to stigmatize independent news media and organizations seen as being at odds with the Kremlin.
“If it is adopted, it will bring Georgia in line with Russia, Kazakhstan and Belarus and those countries where human rights are trampled. It will destroy Georgia’s European path,” said Giorgi Rukhadze, founder of the Georgian Strategic Analysis Center.
Although Georgian President Salome Zourabichvili would veto the law if it is passed by parliament in the third reading, the ruling party can override the veto by collecting 76 votes. Then the parliament speaker can sign it into law.
The bill is nearly identical to a proposal that the governing party was pressured to withdraw last year after large street protests. Police in the capital, Tbilisi, used tear gas Tuesday to break up a large demonstration outside the parliament.
The only change in wording from the previous draft law says non-commercial organizations and news media that receive 20% or more of their funding from overseas would have to register as “pursuing the interests of a foreign power.” The previous draft law said “agents of foreign influence.”
Zaza Bibilashvili with the civil society group Chavchavadze Center called the vote on the law an “existential choice.”
He suggested it would create an Iron Curtain between Georgia and the EU, calling it a way to keep Georgia “in the Russian sphere of influence and away from Europe.”
The Associated Press
Media
Henry Winter’s surprise exit a sign of the fracturing evolution of the football media
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For more than three decades, English football media was a Winter wonderland. An eternal Winter. Winter extending an icy grip over the landscape. But even Winter, it seems, can end up being frozen out. Given the cold shoulder. It’s time to wrap up for Winter, now this particular Winter’s tale has reached its final chapter.
That, with apologies, was the opening paragraph to a column about Henry Winter’s dismissal by the Times, written in the style of Henry Winter for the Times. On the other hand, it’s entirely possible you haven’t the faintest idea what, or who, I’m talking about. Which to an oblique and probably self-defeating extent is actually the point.
Winter is the chief football writer of the Times, at least until he was suddenly made redundant last week. It was the dismissal heard around the world, if by “the world” you mean “the WhatsApp groups of newspaper sports journalists”. And in a low-key, navel-gazing sort of way, a move that actually tells us quite a lot about how, and through whom, we consume football these days.
Because over his 35 years at the Independent, the Telegraph and the Times, Winter probably became the closest thing football journalism has ever had to a celebrity. Players know him. Managers know him. He was ubiquitous, respected, pretty much untouchable. When the Times hired him they announced the signing with a lavish television advertising campaign. And though he rarely set out to ruffle feathers, when he pursued a cause – the Hillsborough survivors’ fight for justice, or his distaste at the cross on the recent England kit – his voice invariably lent that cause extra weight.
Winter and I were colleagues at the Telegraph for seven years, but our interactions were brief. Invariably he was out on the road: notching up hundreds of games a season, thousands of miles, match reports by the kilo, interviews by the ream, pre-season tours, under-21 tournaments, Friday night Championship games: every waking second of every waking day funnelled into this existence, a career that became a life, and vice versa.
On the writing side you might even describe him as a kind of personal inspiration: a reminder of the timeless virtues of simple, elegant prose. Extremely short sentences. Like these. No unnecessary adjectives, no undue nuance, no pun too excruciating. Barcelona v Chelsea is “the Catalans among the London pigeons”. Birmingham 0-7 Liverpool is “seven-up for Liverpool, grapes of wrath for Steve Bruce”. Mario Götze’s winning goal in the 2014 World Cup final becomes “Mario de Janeiro.” The fans are invariably “wonderful” or “magnificent”.
And what was this existence? Perhaps from a non-industry perspective, the most macabrely fascinating aspect of Winter’s career is the way it represents one of the media’s last concerted attempts to embody what you might term “the authentic voice of football”: authoritative, omniscient, unaffiliated, gospel. Ultra on the streets, Shakespeare on the sheets. And by extension the idea that this sport is a common space, a singular space. That when we watch football we are all essentially watching the same thing, together.
This is, in case you hadn’t noticed, an idea that has been in recession for quite some time, a process that largely mirrors the evolution of the football media as a whole. But for decades it was the way we all received the game: through the giants of television and radio, the doyens of Fleet Street, camel-coated men who offered not so much opinion but judgement. When Alan Hansen said something on Match of the Day, or Brian Woolnough opined in the Sun, it became truth by the very dint of being uttered, by the sheer absence of alternative or dissenting voices.
More latterly that role was assumed by Twitter, a website where – as a friend once memorably described it – journalists could pretend they were celebrities and celebrities could pretend they were journalists. Naturally Winter, with his million-plus followers, was at the vanguard of the migration, holding court in the digital town square, still road-testing those puns, still toasting those magnificent fans.
But, under the surface, the terrain has been fracturing for years: attention and influence draining away not just from traditional newspapers, but from everybody. Even television has lost its power to unite us: its live action now mostly paywalled, its pundits now invariably partisan, its content disposable. What once constituted our shared football space has splintered into a million galaxies: forums and fan media, podcasts and YouTube channels, blogs and specialist websites, Reddit and TikTok, the curated feeds that allow us to view a game through whatever filter we choose: tribal, social, banter, fantasy team.
The old world – a drowned world of traditional gatekeepers and newspaper dukes and lukewarm Gareth Southgate quotes embargoed until 10.30pm Friday – is gone. And perhaps the last people yet to notice are the dwindling few still inside it.
What might an “authentic voice of football” sound like in 2024? What kind of journalist could meaningfully speak to all the sport’s various silos? They would need to be an expert in men’s and women’s football, the game’s social and historical context, geopolitics and finance, transfers and tactics, analytics and sports science, banter and rage, all the major European leagues and quite a few others besides. And, of course, they would be conversant in all the dizzying new languages of visual media, across all conceivable formats and platforms. That person, in case you’re wondering, doesn’t actually exist. It’s all football. But increasingly, it’s too big for any one entity to conceive, let alone cover.
And for the avoidance of doubt, none of this is necessarily a bad thing. For all its inequities and inefficiencies, the landscape of football media is broader and richer place than it has ever been. You have Fabrizio Romano for transfers, Grace Robertson for tactics, Versus for football culture, Stadio podcast for the global game, Mark Goldbridge for performative rants about Erik ten Hag, the Guardian for chin-strokey think-pieces written by the guys picked last at PE. In a way, there has never been a better time to consume football. The garden is blooming. But for spring to begin – and yes, you know it’s coming – first winter has to end.
Media
Pakistan says it blocked social media platform X over ‘national security’ – Al Jazeera English
The platform remained inaccessible to users, but government officials refused to acknowledge any restrictions, until now.
Pakistan blocked access to social media platform X around the time of elections in February, the interior ministry said, citing national security concerns.
Users had reported problems using the platform, formerly known as Twitter, since mid-February, when jailed former Prime Minister Imran Khan’s party called for protests against a government official’s admission of vote manipulation.
At the time, both the government and the Pakistan Telecommunication Authority (PTA), the state regulatory body, refused to comment on the outages that were also widely reported by internet watchdog groups.
On Wednesday, the Ministry of Interior mentioned the shutdown in a written court submission.
“It is very pertinent to mention here that the failure of Twitter/X to adhere to the lawful directives of the government of Pakistan and address concerns regarding the misuse of its platform necessitated the imposition of a ban,” said the report, seen by the Reuters news agency, which confirmed the long-suspected shutdown.
“The decision to impose a ban on Twitter/X in Pakistan was made in the interest of upholding national security, maintaining public order, and preserving the integrity of our nation,” the ministry said, according to the report submitted to the Islamabad High Court in a challenge to the shutdown.
It additionally said the platform had been reluctant to resolve the issue.
Activists challenging the ban said it was designed to quash dissent after the February 8 general elections that were marred by widespread opposition claims of vote rigging and protests.
The authorities had shut down mobile services on the day of the elections, citing security concerns. NetBlocks, an internet monitor, also reported that users could not access X on February 10 while the country was awaiting the results.
The decision to temporarily block X was taken after considering confidential reports from Pakistan’s intelligence and security agencies, the report said.
It claimed that “hostile elements operating on Twitter/X have nefarious intentions to create an environment of chaos and instability, with the ultimate goal of destabilising the country and plunging it into some form of anarchy”.
The Sindh High Court on Wednesday ordered the government to restore the platform within one week, the AFP news agency reported, citing lawyer Moiz Jaaferi, who launched a separate challenge against the ban.
Access to X has been sporadic, occasionally available for short cycles based on the internet service provider, forcing users to use virtual private networks, said Alp Toker of NetBlocks.
Khan’s Pakistan Tehreek-e-Insaaf (PTI) party is the most prolific user of social media platforms, particularly after the country’s traditional media began censoring news about the former cricket star and his party in the run-up to the polls. Khan has 20.6 million followers on X.
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